Forteo vs. Tymlos

Posted by suze317 @suze317, Oct 17, 2018

I have to make a decision on Forteo vs. Tymlos and am not sure what to choose. Forteo has been around a lot longer, but has to be refrigerated. Tymlos only around 1 1/2 years but is shelf stable and seems to have less side effects and less issues with calcium. Can anyone offer their perspective? Thank you!

@leacy

I’m 59, with osteoporosis, primarily in my spine, 3.4 t-score in spots. I’ll begin a daily injectable soon, it’s called Tymlos. If I understand correctly, it’s the newest version of daily injectable. Does anyone have any experience with this med? The results for other daily injectables sound good. Side effects?

Jump to this post

I’ve been on Tymolos for 4 months. Nothing to report yet other than it’s easy. No side effects for me. I pay 4$ copay for 1 month. It comes to my house.

Liked by peggy1944, jmanj

REPLY

I have been on Tymlos for about the same amount of time. It has suppressed my appetite and my hair is falling out. Also — I'm paying $600/month co-pay. May I ask how you are able to get it so cheaply?

Liked by peggy1944

REPLY
@jmanj

Thank you for your input! Can you share what kind of results you experienced? How much did your bone density improve? And what did you follow up with after the Forteo?

Jump to this post

Please excuse my delay on answering, jmanj, I just had cataract surgery. Forteo really improved my bone density almost 20 percent. Was going to use it another year but lost my good drug insurance. I started taking and eating lots of calcium, multivitamins for women, fresh fruit, etc. And miles of walking. Osteoporosis runs in my family, nobody but me bothered to get treated. Reclast did very little for my bones only 3–5 percent. Unfortunately I now developed congestive heart failure/long QT syndrome and my cardiologist said no to anymore bone density drugs for now. I just try to keep the faith, keep up the supplements and take my mind off myself with pleasant activities. Good luck and best wishes, jumanj! Your bones will really be OK. Peggy

Liked by jmanj

REPLY
@laurapearl

thanks everyone! Seems like the racing heart is indeed pretty common. I'm taking it at bedtime too. I guess it is something that I just need to accept.

Jump to this post

I think the benefits of stronger bones outweighs the risks of a temporary racing heart. Good luck to you all with this side effect! Peggy

Liked by Laurapearl, jmanj

REPLY
@peggy1944

I think the benefits of stronger bones outweighs the risks of a temporary racing heart. Good luck to you all with this side effect! Peggy

Jump to this post

Yes, I'm with you — as long as it's medically insignificant, I can definitely accept the racing heart! I have written to my doctor about this to see what she thinks — because I wonder, does a nightly drug-induced spell of palpitations have any negative effect on our hearts (for those of us who have this side effect)? Or is it just a passing thing that really does no harm? Have any of you asked this question to your doctors? I will let you know what mine says — she is consulting some of her colleagues.

Liked by peggy1944, jmanj

REPLY

Hello Laurapearl! Since I already have tachycardia and take medication for it, I don't give drug–induced palpitations much thought. But you brought up a great point, something everyone should take into consideration. I would like to hear what your doctor thinks. Best wishes, Peggy

REPLY
@cireland

I have been on Tymlos for about the same amount of time. It has suppressed my appetite and my hair is falling out. Also — I'm paying $600/month co-pay. May I ask how you are able to get it so cheaply?

Jump to this post

WHHHAATT! 600 BUCKS A MONTH!! That is terrible, like that epi–pen business. Sometimes drug companies can help with co–pay or no payment at all. How do you manage, that is AWFUL!

Liked by jmanj

REPLY
@peggy1944

WHHHAATT! 600 BUCKS A MONTH!! That is terrible, like that epi–pen business. Sometimes drug companies can help with co–pay or no payment at all. How do you manage, that is AWFUL!

Jump to this post

It is absolutely crazy, I know. I was steeled to pay quite a bit per month for the Forteo. I was shocked to discover my insurance has it on their list, and the co-pay is affordable. It breaks my heart when people don't have insurance, or their co-pay is so high the medications are still too expensive. I know drug companies have to make enough to cover their research … but often these prices just are not justified.

Liked by peggy1944, jmanj

REPLY

You must be on something other than Medicare. I agree it's criminal when drugs that can help are priced too high for many people.

Liked by peggy1944, jmanj

REPLY
@peggy1944

Please excuse my delay on answering, jmanj, I just had cataract surgery. Forteo really improved my bone density almost 20 percent. Was going to use it another year but lost my good drug insurance. I started taking and eating lots of calcium, multivitamins for women, fresh fruit, etc. And miles of walking. Osteoporosis runs in my family, nobody but me bothered to get treated. Reclast did very little for my bones only 3–5 percent. Unfortunately I now developed congestive heart failure/long QT syndrome and my cardiologist said no to anymore bone density drugs for now. I just try to keep the faith, keep up the supplements and take my mind off myself with pleasant activities. Good luck and best wishes, jumanj! Your bones will really be OK. Peggy

Jump to this post

Wow … a 20% increase. That is amazing. I'm so sorry to hear about the insurance issue. It is unacceptable when the co-pays get too high, much less when people have no insurance at all for their needed drugs. We really need to get everyone on Medicare-for-All. There is no excuse for people not having the ability to get their meds. And I hope that your heart issue resolves in a positive way! Best wishes to you!!

Liked by peggy1944

REPLY
@jmanj

Wow … a 20% increase. That is amazing. I'm so sorry to hear about the insurance issue. It is unacceptable when the co-pays get too high, much less when people have no insurance at all for their needed drugs. We really need to get everyone on Medicare-for-All. There is no excuse for people not having the ability to get their meds. And I hope that your heart issue resolves in a positive way! Best wishes to you!!

Jump to this post

Thanks so much for your nice reply! Actually I privately doubted the 20% increase was correct, but there really was a big increase over the Reclast. My insurance issue is nerve–wracking and indeed there should be Medicare-For-All with a guaranteed drug plan. What makes me so mad is all those billions and billions of dollars spent on that Outer Space Program. And for what reason, send Senior Citizens to Mars? Use the money for Earth People who desperately need their medicine. Thank you so much for your kind concern about my heart, tomorrow I go for a cardiac CAT scan. Happy Bones to you, jmanj, and have s nice holiday weekend! Best Wishes, Peggy

Liked by jmanj

REPLY
@user_chf56161a

I’ve been on Tymolos for 4 months. Nothing to report yet other than it’s easy. No side effects for me. I pay 4$ copay for 1 month. It comes to my house.

Jump to this post

I would like to get my drugs by mail, too (doesn't that sound ominous?) But am leery of boiling hot in summer/freezing cold in winter temperatures affecting the potency of my pills. My sister does and seems to be satisfied. Does anyone else worry about what climate does to pills and in hot weather, what about drugs that have to be refrigerated, like Forteo? Thank you all for such great help! Peggy

REPLY

hi there! i get tymlos by mail and it arrives in a little cooler chest surrounded by cold packs. plus, you can track the package to know when to receive it — that way, it never gets a chance to warm up!

Liked by peggy1944, jmanj

REPLY
@laurapearl

hi there! i get tymlos by mail and it arrives in a little cooler chest surrounded by cold packs. plus, you can track the package to know when to receive it — that way, it never gets a chance to warm up!

Jump to this post

Thanks so much, Laurapearl, for the info. I never knew this, then getting refrigerated drugs would be safe. That would save me so much trouble! Have a good rest of the week! Regards, Peggy

REPLY
@kdbones

@lisainfl So she thought it worked better than Reclast? Mine had said as for as fracture prevention they were about equal after 1 year – despite any comparative BMD. It was a tough decision for me. I will likely do 1 year then follow with a year or two with Reclast. Save the second year since we only get 2 years lifetime use. Thanks for sharing!

Jump to this post

I was on Forteo for two years and saw a big jump in bone density. My doctor then put me on reclast infusion. It maintained the increase, but did not show any additional improvement. I am now on Prolia. If you get approved for Tymlos or Forteo, I recommend that you do it for the full two years. You might not get approved for it again or your insurance might change.–you never know.

Liked by jmanj

REPLY
Please login or register to post a reply.