@leacy

I’m 59, with osteoporosis, primarily in my spine, 3.4 t-score in spots. I’ll begin a daily injectable soon, it’s called Tymlos. If I understand correctly, it’s the newest version of daily injectable. Does anyone have any experience with this med? The results for other daily injectables sound good. Side effects?

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I’ve been on Tymolos for 4 months. Nothing to report yet other than it’s easy. No side effects for me. I pay 4$ copay for 1 month. It comes to my house.

I have been on Tymlos for about the same amount of time. It has suppressed my appetite and my hair is falling out. Also — I'm paying $600/month co-pay. May I ask how you are able to get it so cheaply?

@jmanj

Thank you for your input! Can you share what kind of results you experienced? How much did your bone density improve? And what did you follow up with after the Forteo?

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Please excuse my delay on answering, jmanj, I just had cataract surgery. Forteo really improved my bone density almost 20 percent. Was going to use it another year but lost my good drug insurance. I started taking and eating lots of calcium, multivitamins for women, fresh fruit, etc. And miles of walking. Osteoporosis runs in my family, nobody but me bothered to get treated. Reclast did very little for my bones only 3–5 percent. Unfortunately I now developed congestive heart failure/long QT syndrome and my cardiologist said no to anymore bone density drugs for now. I just try to keep the faith, keep up the supplements and take my mind off myself with pleasant activities. Good luck and best wishes, jumanj! Your bones will really be OK. Peggy

@laurapearl

thanks everyone! Seems like the racing heart is indeed pretty common. I'm taking it at bedtime too. I guess it is something that I just need to accept.

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I think the benefits of stronger bones outweighs the risks of a temporary racing heart. Good luck to you all with this side effect! Peggy

@peggy1944

I think the benefits of stronger bones outweighs the risks of a temporary racing heart. Good luck to you all with this side effect! Peggy

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Yes, I'm with you — as long as it's medically insignificant, I can definitely accept the racing heart! I have written to my doctor about this to see what she thinks — because I wonder, does a nightly drug-induced spell of palpitations have any negative effect on our hearts (for those of us who have this side effect)? Or is it just a passing thing that really does no harm? Have any of you asked this question to your doctors? I will let you know what mine says — she is consulting some of her colleagues.

Hello Laurapearl! Since I already have tachycardia and take medication for it, I don't give drug–induced palpitations much thought. But you brought up a great point, something everyone should take into consideration. I would like to hear what your doctor thinks. Best wishes, Peggy

@cireland

I have been on Tymlos for about the same amount of time. It has suppressed my appetite and my hair is falling out. Also — I'm paying $600/month co-pay. May I ask how you are able to get it so cheaply?

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WHHHAATT! 600 BUCKS A MONTH!! That is terrible, like that epi–pen business. Sometimes drug companies can help with co–pay or no payment at all. How do you manage, that is AWFUL!

@peggy1944

WHHHAATT! 600 BUCKS A MONTH!! That is terrible, like that epi–pen business. Sometimes drug companies can help with co–pay or no payment at all. How do you manage, that is AWFUL!

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It is absolutely crazy, I know. I was steeled to pay quite a bit per month for the Forteo. I was shocked to discover my insurance has it on their list, and the co-pay is affordable. It breaks my heart when people don't have insurance, or their co-pay is so high the medications are still too expensive. I know drug companies have to make enough to cover their research … but often these prices just are not justified.

You must be on something other than Medicare. I agree it's criminal when drugs that can help are priced too high for many people.

@peggy1944

Please excuse my delay on answering, jmanj, I just had cataract surgery. Forteo really improved my bone density almost 20 percent. Was going to use it another year but lost my good drug insurance. I started taking and eating lots of calcium, multivitamins for women, fresh fruit, etc. And miles of walking. Osteoporosis runs in my family, nobody but me bothered to get treated. Reclast did very little for my bones only 3–5 percent. Unfortunately I now developed congestive heart failure/long QT syndrome and my cardiologist said no to anymore bone density drugs for now. I just try to keep the faith, keep up the supplements and take my mind off myself with pleasant activities. Good luck and best wishes, jumanj! Your bones will really be OK. Peggy

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Wow … a 20% increase. That is amazing. I'm so sorry to hear about the insurance issue. It is unacceptable when the co-pays get too high, much less when people have no insurance at all for their needed drugs. We really need to get everyone on Medicare-for-All. There is no excuse for people not having the ability to get their meds. And I hope that your heart issue resolves in a positive way! Best wishes to you!!

@jmanj

Wow … a 20% increase. That is amazing. I'm so sorry to hear about the insurance issue. It is unacceptable when the co-pays get too high, much less when people have no insurance at all for their needed drugs. We really need to get everyone on Medicare-for-All. There is no excuse for people not having the ability to get their meds. And I hope that your heart issue resolves in a positive way! Best wishes to you!!

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Thanks so much for your nice reply! Actually I privately doubted the 20% increase was correct, but there really was a big increase over the Reclast. My insurance issue is nerve–wracking and indeed there should be Medicare-For-All with a guaranteed drug plan. What makes me so mad is all those billions and billions of dollars spent on that Outer Space Program. And for what reason, send Senior Citizens to Mars? Use the money for Earth People who desperately need their medicine. Thank you so much for your kind concern about my heart, tomorrow I go for a cardiac CAT scan. Happy Bones to you, jmanj, and have s nice holiday weekend! Best Wishes, Peggy

@user_chf56161a

I’ve been on Tymolos for 4 months. Nothing to report yet other than it’s easy. No side effects for me. I pay 4$ copay for 1 month. It comes to my house.

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I would like to get my drugs by mail, too (doesn't that sound ominous?) But am leery of boiling hot in summer/freezing cold in winter temperatures affecting the potency of my pills. My sister does and seems to be satisfied. Does anyone else worry about what climate does to pills and in hot weather, what about drugs that have to be refrigerated, like Forteo? Thank you all for such great help! Peggy

hi there! i get tymlos by mail and it arrives in a little cooler chest surrounded by cold packs. plus, you can track the package to know when to receive it — that way, it never gets a chance to warm up!

@laurapearl

hi there! i get tymlos by mail and it arrives in a little cooler chest surrounded by cold packs. plus, you can track the package to know when to receive it — that way, it never gets a chance to warm up!

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Thanks so much, Laurapearl, for the info. I never knew this, then getting refrigerated drugs would be safe. That would save me so much trouble! Have a good rest of the week! Regards, Peggy

@kdbones

@lisainfl So she thought it worked better than Reclast? Mine had said as for as fracture prevention they were about equal after 1 year – despite any comparative BMD. It was a tough decision for me. I will likely do 1 year then follow with a year or two with Reclast. Save the second year since we only get 2 years lifetime use. Thanks for sharing!

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I was on Forteo for two years and saw a big jump in bone density. My doctor then put me on reclast infusion. It maintained the increase, but did not show any additional improvement. I am now on Prolia. If you get approved for Tymlos or Forteo, I recommend that you do it for the full two years. You might not get approved for it again or your insurance might change.–you never know.