Forteo vs. Tymlos

Posted by suze317 @suze317, Oct 17, 2018

I have to make a decision on Forteo vs. Tymlos and am not sure what to choose. Forteo has been around a lot longer, but has to be refrigerated. Tymlos only around 1 1/2 years but is shelf stable and seems to have less side effects and less issues with calcium. Can anyone offer their perspective? Thank you!

Hi everyone. I just began Tymlos today — about 3 hours ago to be exact. I have osteoporosis and finished two years on Prolia. My bone density did increase over the first year with Prolia, but my rheumatologist believes that I may have plateaued on it. I will likely return to it in the future (I am 58) but in the meantime, she would like me to do two years on Tymlos to build bone strength. Apparently, Tymlos does not always increase density measurably, but it is better at making bones strong than Prolia is. I'm happy to hear that the injections are not an issue for most of you. I think I do feel some side effects today — some fatigue, lightheadedness, and nausea. Makes me feel that a nighttime administration will definitely be best as I would not like to feel this way as I was starting my day. Did any of you experience that reaction, and did it get better over time?

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@laurapearl

Hi everyone. I just began Tymlos today — about 3 hours ago to be exact. I have osteoporosis and finished two years on Prolia. My bone density did increase over the first year with Prolia, but my rheumatologist believes that I may have plateaued on it. I will likely return to it in the future (I am 58) but in the meantime, she would like me to do two years on Tymlos to build bone strength. Apparently, Tymlos does not always increase density measurably, but it is better at making bones strong than Prolia is. I'm happy to hear that the injections are not an issue for most of you. I think I do feel some side effects today — some fatigue, lightheadedness, and nausea. Makes me feel that a nighttime administration will definitely be best as I would not like to feel this way as I was starting my day. Did any of you experience that reaction, and did it get better over time?

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I just started a week ago. I have a little funky feel, but I think some may be my nerves as well. It passes within 15 minutes or so and then I’m good to go. For some reason it pumps me up mentally each morning when I give myself my dose of bone:)) More people seem to like to do the night time routine so I’m not the norm. I can’t comment yet in effect wearing off but I think I’ve read from some that was the case. Good luck!

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@kdbones

I just started a week ago. I have a little funky feel, but I think some may be my nerves as well. It passes within 15 minutes or so and then I’m good to go. For some reason it pumps me up mentally each morning when I give myself my dose of bone:)) More people seem to like to do the night time routine so I’m not the norm. I can’t comment yet in effect wearing off but I think I’ve read from some that was the case. Good luck!

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Hello, I just started Tymlos too…so still very early. I felt jittery yesterday for about three hours after injection. I did notice on my Fitbit that my resting heart rate, which has always been 68ish, is up to 73, and the number of what they call “active minutes” was way up (6 hours versus my normal 2 hours). Anyway, maybe this will resolve over time.

Also, I often listen to guided meditations on YouTube for falling asleep and I found a couple of them on building bone, so I thought, why not, it can’t hurt. Thank you to all who have shared on this thread! I appreciated the info as I got started.

Liked by medshy

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@mvezina

Hello, I just started Tymlos too…so still very early. I felt jittery yesterday for about three hours after injection. I did notice on my Fitbit that my resting heart rate, which has always been 68ish, is up to 73, and the number of what they call “active minutes” was way up (6 hours versus my normal 2 hours). Anyway, maybe this will resolve over time.

Also, I often listen to guided meditations on YouTube for falling asleep and I found a couple of them on building bone, so I thought, why not, it can’t hurt. Thank you to all who have shared on this thread! I appreciated the info as I got started.

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I also have looked up some meditations, many for overall relaxations. For the bone building is it binaural beats that you are listening to? I ran across many of those for different areas and have turned some on at times – I guess I felt like you – why not. I have been also going back collecting pieces of videos or books that focused on hip and spine exercises. I really like Melioguide from Canada, and some of Dr Fishman's yoga based on his studies at Columbia University (but I don't do any of the twisty ones). I would like to find a local specialist to focus on a series of hand weights and band exercises but haven't found someone yet. On the Tymlos shot I am on day 8 and think my awareness of the small side effects is diminishing. I was very focused on it the first days – I think I was more nervous that it might get worse but has not been the case so far so hopefully this will continue. Best to you for great success on Tymlos! Karan

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@kdbones

I also have looked up some meditations, many for overall relaxations. For the bone building is it binaural beats that you are listening to? I ran across many of those for different areas and have turned some on at times – I guess I felt like you – why not. I have been also going back collecting pieces of videos or books that focused on hip and spine exercises. I really like Melioguide from Canada, and some of Dr Fishman's yoga based on his studies at Columbia University (but I don't do any of the twisty ones). I would like to find a local specialist to focus on a series of hand weights and band exercises but haven't found someone yet. On the Tymlos shot I am on day 8 and think my awareness of the small side effects is diminishing. I was very focused on it the first days – I think I was more nervous that it might get worse but has not been the case so far so hopefully this will continue. Best to you for great success on Tymlos! Karan

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Karan, I do often listen to binaural beat style meditations for falling asleep. The osteoporosis YouTube’s I found don’t say they use binaural so I am not sure. But I like the visualizations described…strong bones, healing cells etc. ( one by “Mindset” 13 minutes, and one by Jason Stephenson 27 minutes).
Glad to hear you may be past the initial symptoms. I’m only on day 5. Like you, I am going to do everything I can to support the overall goal of bone building. It’s the one shot we get at it in this lifetime! All the best and I’ll be sure to keep checking in here.

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Hi everyone. I'm now finishing up my first month on Tymlos. Are any of you experiencing palpitations with this medication? I see that listed among the more common side effects, and it has definitely been the most noticeable one for me. I feel my heart racing soon after the injections, and it is still pounding for another hour (or three). Maybe this is common, and might still diminish at some point? Not sure if I should be concerned about this. Thanks!

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@laurapearl

Hi everyone. I'm now finishing up my first month on Tymlos. Are any of you experiencing palpitations with this medication? I see that listed among the more common side effects, and it has definitely been the most noticeable one for me. I feel my heart racing soon after the injections, and it is still pounding for another hour (or three). Maybe this is common, and might still diminish at some point? Not sure if I should be concerned about this. Thanks!

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Hi Laurapearl. I have this side effect. The palpitations last for about an hour or so. I am starting month 16, and I still have this effect.

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@laurapearl

Hi everyone. I'm now finishing up my first month on Tymlos. Are any of you experiencing palpitations with this medication? I see that listed among the more common side effects, and it has definitely been the most noticeable one for me. I feel my heart racing soon after the injections, and it is still pounding for another hour (or three). Maybe this is common, and might still diminish at some point? Not sure if I should be concerned about this. Thanks!

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Hi All!! I just took my first shot of Tymlos yesterday! I took it at the doctor's office and brought my husband anticipating the dizzy side effects…I didn't want to drive…good thing…I was dizzy and did have the palpitations. The doctor said that this is common…I would say that I felt better about 3 hours after…but not as bad as I thought. I will most likely take this at bedtime. He was surprised it happened so quickly…about 10 minutes after the injection. I thought it would be a lot worse…feeling a little strange this morning though..

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I’m currently on Tymolos. 2 weeks. I found myself so tired. I was injecting it in the morning. Today I’m changing it to bed time. No other reactions. My T score was at -3.1 we’ll see if it improves.

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@laurapearl

Hi everyone. I'm now finishing up my first month on Tymlos. Are any of you experiencing palpitations with this medication? I see that listed among the more common side effects, and it has definitely been the most noticeable one for me. I feel my heart racing soon after the injections, and it is still pounding for another hour (or three). Maybe this is common, and might still diminish at some point? Not sure if I should be concerned about this. Thanks!

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Yes…and feeling a little weak along with racing heart… happens 1-2 hours after

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thanks everyone! Seems like the racing heart is indeed pretty common. I'm taking it at bedtime too. I guess it is something that I just need to accept.

Liked by peggy1944

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After reading the posts on this site, I was made the decision to try Forteo. So far, I’ve been on the medication for just over a month. I was able to begin the injections without nurse instruction … the directions are clear, though it did feel strange to give myself a shot the first couple of times. Now, it doesn’t bother me at all, and it really doesn’t hurt at all. I’ve experienced (so far) no noticeable side effects, but did decide to do the injections at bedtime (based on the good advice in this thread). If there is anyone who has been on Forteo for the two year regime, I’d be very interested to hear what results you experienced and what you followed the Forteo with to maintain your gains.

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I had very good results with Forteo, which was years ago. Never needed Tymlos because it wasn't necessary. You actually get used to giving yourself a shot– I used my belly area. For me, Forteo was effective and easy to use.

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@peggy1944

I had very good results with Forteo, which was years ago. Never needed Tymlos because it wasn't necessary. You actually get used to giving yourself a shot– I used my belly area. For me, Forteo was effective and easy to use.

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Thank you for your input! Can you share what kind of results you experienced? How much did your bone density improve? And what did you follow up with after the Forteo?

Liked by peggy1944

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I am in my 5th month of Tymlos, don't know yet what it is doing for my bones. Injections into the abdomen usually are no big deal, every once in a while quite painful. Anyone have ideas about the variation? Overall few noticeable side effects except for some fatigue.

Liked by jmanj

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