Forteo vs. Tymlos

Posted by suze317 @suze317, Oct 17, 2018

I have to make a decision on Forteo vs. Tymlos and am not sure what to choose. Forteo has been around a lot longer, but has to be refrigerated. Tymlos only around 1 1/2 years but is shelf stable and seems to have less side effects and less issues with calcium. Can anyone offer their perspective? Thank you!

If there are financial concerns about Tymlos, I would suggest checking the Tymlos website for assistance. Tymnlos.com. Also I would hope your doctor and pharmacy would assist in dealing with finding financial help. There are protocols that some (all?) insurance companies require. For me, a spinal fracture was the key to eligibility.

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@pinkrabbit

For those of your taking Calcium, Magnesium and DS-3, please add Vitamin K2 (MK7form) to your list of supplements. "For Healthy Bones. Research has shown that Vitamin K2 is one of the most important nutrients for long-term bone health and that it is even more important than calcium. K2 is needed to help calcium and other minerals bind into the bone matrix to strengthen bones (and not to stay in soft tissue where it can cause calcification in the wrong places). In fact, studies have shown that Vitamin K is effective at not just stopping bone loss in people with osteoporosis but potentially reversing it as well."

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Thank you for mentioning the k2. I have been reading about osteoporosis and have had consults with Dx, and hadn’t heard about it.

It makes me wonder if there is an optimal combination and timing (daily) to maximize benefits of the supplements. Calcium, magnesium, now k2 … do they work best staggered, etc.? There is slow release calcium, citrate calcium. Now I see magnesium and calcium can negatively interact?

I’m about to start Tymlos and want to get the best benefit I can. Any help would be appreciated. @kanaazpereira

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@mvezina

Thank you for mentioning the k2. I have been reading about osteoporosis and have had consults with Dx, and hadn’t heard about it.

It makes me wonder if there is an optimal combination and timing (daily) to maximize benefits of the supplements. Calcium, magnesium, now k2 … do they work best staggered, etc.? There is slow release calcium, citrate calcium. Now I see magnesium and calcium can negatively interact?

I’m about to start Tymlos and want to get the best benefit I can. Any help would be appreciated. @kanaazpereira

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I have been using Tymlos for about 3 months. Totally agree with the people who say a training in person is worth it. I had started with only remote instruction and was having a hard time doing the shots. A wonderful nurse came, sponsored by Tymlos, and it made all the difference. Now it is truly almost nothing. I don't think I have had any side effects. I am exercising and taking vitamin and mineral supplements and a small amount of additional calcium (I am a vegetarian, almost vegan). Hope it is working. I will probably explore soon a provider of multivitamins who has figured out how to time their morning and evening doses to avoid interactions. A friend referred me to the product, I think it is called nutreince, but I don't know yet how good it is. Still investigating. Reading all this thread makes me want to check with the Tymlos support line to see whether there might be new results suggesting a particular time of day is best. Like most others, I prefer nighttime, rather than adding to the morning rush. Up until now, I have not seen anything about it specifically for this product, which is different enough from Forteo to make me not want to generalize. Will let you know what they tell me.

Liked by mvezina

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How can I talk with the Tymlos support group

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@bizpeterson1970

How can I talk with the Tymlos support group

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I should like some feedback from others using Tymlos. Interestingly , as I had considerable side effects from the oral meds in the America’s category and had to cease taking, I am not having side effects so far from Tymlos after injecting once daily for less now than a month. What about others on Tymlos?

Forteo was first drug prescribed for me, but was not part of my prescription drug formulary and would have been $700 per month. As it was the drug of choice rom my doctor, I am wondering about reactions people on Forteo have experienced and also about the relative merits of each of the 2 drugs. My rheumatologist indicates that a generic of Forteo is ready and will be out there as soon as the brand name patent runs out, I don’t think he would change me over midstream, but m not sure.

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I was originally quoted $305/month by insurance. On the tymlos website there was a reference to a discount program and I could pay as low as $4/month. Ha…what were the chances. I called tymlos… Turned out that I met the criteria, one of which was having private/non government related insurance. Sure enough the specialty pharmacy at cvs reran the claim with the tymlos-provided ID number and my co- pay fell to $4/month. So before you decide the regimen will cost too much, check out the discount program.

Liked by jmanj

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Many thanks for info. I will explore as I have insurance through a university. However, they just changed the plan (midyear) to one with Medicare in the name, so I possibly will have to pay like tier one of new plan, $35. Certainly beats hundreds of dollars per month, however.

Liked by mvezina

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@medshy

@electii I have completed over 12 months on Tymlos, and like you, have had migraine all my adult life. Drug reactions and multiple allergies have been ongoing issues for me. Perhaps my experience might be helpful. I suffered a compression fracture of the L4 two years ago, and it became shockingly clear that I, an active high altitude hiker, had severe osteoporosis. ( spine 4, hip 3.5 ). If I hoped to regain an active life, something had to be done. My endocrinologist prescribed Forteo. Two weeks later I had to stop Forteo due to an allergic reaction. Providentially, at that time, Tymlos had just come on the market. It felt reckless to try such a new drug, but I did. Nearly 13 months later, I am successfully tolerating Tymlos. I had a mild headache (not migraine) for a few days after starting Tymlos. Now, I have a bit of fatigue, and for a short time after the injection I am aware of my pulse. The best side effect was evident when I had a DEXA after 5 months. I had a profound increase in bone density. I am so thankful, and glad I did not give in to my fears. I totally understand the devastation and fear that drug reactions bring. I hope to complete two years with Tymlos. I send my best to you and hope you will soon be running again.

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This is great news … thank you for sharing!

Liked by mvezina

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@leftysan

I should like some feedback from others using Tymlos. Interestingly , as I had considerable side effects from the oral meds in the America’s category and had to cease taking, I am not having side effects so far from Tymlos after injecting once daily for less now than a month. What about others on Tymlos?

Forteo was first drug prescribed for me, but was not part of my prescription drug formulary and would have been $700 per month. As it was the drug of choice rom my doctor, I am wondering about reactions people on Forteo have experienced and also about the relative merits of each of the 2 drugs. My rheumatologist indicates that a generic of Forteo is ready and will be out there as soon as the brand name patent runs out, I don’t think he would change me over midstream, but m not sure.

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I have 2 compression fractures in my spine…doc prescribed forteo but insurance will not cover it…so tymlos is the one supposedly. I'm very concerned about the side effects of these drugs….does anyone have and experience with side effects? I took Actonel…1 pill…and wound up with ulcers…that's why I'm worred about taking anything…but I have to do something!

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@chrissyp

I have 2 compression fractures in my spine…doc prescribed forteo but insurance will not cover it…so tymlos is the one supposedly. I'm very concerned about the side effects of these drugs….does anyone have and experience with side effects? I took Actonel…1 pill…and wound up with ulcers…that's why I'm worred about taking anything…but I have to do something!

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I am going in for my shot demonstration tomorrow – I may do my first injection at her office. I know all of these meds have possible side effects and I postponed doing anything as long as I felt safe to postpone. The one good thing about the daily shot is that it doesn't build up and stay in your body so, at least according to my doctor, if you get side effects that you cannot tolerate once you stop they are gone. At least I haven't heard of any effect that continues once you quit the shots. So I figured I would try it, and if I cannot tolerate it I will try something else. I already have some gerd issues so oral bisphosphonates are out for me.

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@chrissyp

I have 2 compression fractures in my spine…doc prescribed forteo but insurance will not cover it…so tymlos is the one supposedly. I'm very concerned about the side effects of these drugs….does anyone have and experience with side effects? I took Actonel…1 pill…and wound up with ulcers…that's why I'm worred about taking anything…but I have to do something!

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Hi chrissyp. I am on month 13 with Tymlos after a compression fracture of my L4. I have many allergies and was initially prescribed Forteo. After ten days on Forteo I had an allergic reaction. The doctor then prescribed Tymlos. I am doing well on Tymlos. I have experienced some fatigue as a side effect, but am used to it now. I know from experience how scary it is to consider a new drug. So far, so good for me. Hopefully you will do well with Tymlos.

Liked by mvezina

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@kdbones

I am going in for my shot demonstration tomorrow – I may do my first injection at her office. I know all of these meds have possible side effects and I postponed doing anything as long as I felt safe to postpone. The one good thing about the daily shot is that it doesn't build up and stay in your body so, at least according to my doctor, if you get side effects that you cannot tolerate once you stop they are gone. At least I haven't heard of any effect that continues once you quit the shots. So I figured I would try it, and if I cannot tolerate it I will try something else. I already have some gerd issues so oral bisphosphonates are out for me.

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Hi kdbones. I was willing to try Forteo and Tymlos given their short duration in the body. As an allergic person, I had to have the option of a quick exit, and a drug with a very short half life. As it turned out, I was allergic to Forteo, but was able to drop it quickly with no lingering issues. I am doing great with Tymlos. My allergist suggests it could be an issue with preservatives for me. Forteo and Tymlos use different preservatives. Good luck kdbones!

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Thank you so much everyone…I'm waiting to hear from insurance company to see if they will cover tymlos… so happy I found this group! I'll let you know how it goes!!

Liked by mvezina

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@medshy

Hi chrissyp. I am on month 13 with Tymlos after a compression fracture of my L4. I have many allergies and was initially prescribed Forteo. After ten days on Forteo I had an allergic reaction. The doctor then prescribed Tymlos. I am doing well on Tymlos. I have experienced some fatigue as a side effect, but am used to it now. I know from experience how scary it is to consider a new drug. So far, so good for me. Hopefully you will do well with Tymlos.

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Just finishing my first week of Tymlos – really no side effects as of yet. I am curious if you are only doing shots in the abdomen. I've heard mixed advise. My doctor's NP who gave me the shot demonstration said it didn't matter where I did the shot. I know someone from another major medical institution whose doctor said abdomen only because it entered the system faster. Were you told abdomen or anywhere (mostly abdomen or inner thigh for self-injection – through she said someone could give it to me in my arm as well).

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@kdbones

Just finishing my first week of Tymlos – really no side effects as of yet. I am curious if you are only doing shots in the abdomen. I've heard mixed advise. My doctor's NP who gave me the shot demonstration said it didn't matter where I did the shot. I know someone from another major medical institution whose doctor said abdomen only because it entered the system faster. Were you told abdomen or anywhere (mostly abdomen or inner thigh for self-injection – through she said someone could give it to me in my arm as well).

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Hi kdbones. Good news about your first week on Tymlos! I have only given the injection in my abdomen.

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