16 yr old daughter. Hit by car. Lung obstruction in small airways. Biopsy shows inflammation and plant based material. They think lettuce from Subway sandwich ended up in small airways from aspiration. Working w Boston Childrens. They said they have never seen this before and they diagnosed her with Obliteran but say she isnt truly that either. Not getting worse. Stayimg the same for a yr now at FVC around 55% and FEB1 at 39% . They dont know how to treat the cause which is the plant based material encased in inflammation cells. They can see body trying to break it down. We have tried pulse high dose steriods, immune suppressant drugs and IVIG therapy. Nothing has helped. Thinking of Lung lavage or lung washing next. Anyone????
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