Connect
Arikayce causing severe throat irritation/voice loss—help?
I am currently being treated for NTM lung infection and one of my medications is Arikayce via nebulizer.
I am having severe throat irritation and voice loss. It has become bad enough that I’ve had to stop treatments for several days at a time just to allow my throat to recover.
I have tried lozenges, warm water, saltwater/baking soda gargles, and throat coating products, but nothing has made a meaningful difference.
Has anyone else experienced this with Arikayce? If so, were you able to find anything that helped you stay on treatment consistently?
I would greatly appreciate hearing what worked (or didn’t work) for others.
Like
Helpful
HugInterested in more discussions like this? Go to the Lung Health Support Group.
Connect
Update: This is causing missed doses, which I’m concerned about given how important consistency is with treatment.
@coco2023
The treatment drug I’m referring to is Arikayce (inhaled amikacin, liposomal form).
The first thing I found when looking at this medication is that it is a “black box warning” prescription. I would recommend that you discuss this with your pharmacy and seek alternative medication. If you are not being treated by a pulmonologist, I would advise that you get one.