fibromyalgia pain

Posted by clownscrytoo @clownscrytoo, Oct 22, 2016

Is there anyone here that suffers from fibro? I had the ‘tender spot test’ several years ago and I had 17 out of the 18. I try my hardest to get through the pain with my 4 hydrocodone/acetaminaphine pills a day, Tiger Balm rubbed into areas that are the worst, light exercises, and distracting myself with hobbies or chores, etc; but there are many occasions where none of that helps and I spend most of the day holding down the couch, getting up about 30-45 minutes after that, walking/standing around the house for 15-20 minutes, or sitting for about 15-30 min. I do not drive and my husband works 6 days a week, overtime almost every day, so I’m alone a lot. my wonderful husband is very supportive and I am very grateful for that, but my only other friends are online, out of state, and I will probably never even get to meet them. when extreme pain takes over, my depression takes over and it is so difficult to find hope. does anyone have tips for fibro, whether diet or over-the-counter meds (I’ve tried them all, I think), or anything, besides hobbies and such? I’ve tried every over-the-counter med, and the Tiger Balm does cover some of what the pain pill doesn’t help, but I’m hoping one of our members might have some knowledge that could help. I’d really appreciate it.
hugz,
Clownscrytoo

I wish in many ways I could retire…disability is on the table. I adore my job but I also have a child who was just diagnosed with an extremely rare digestive disease so we are headed up to MN to start treating him for a disease with now cure or no known real treatment. You can find me with Collagenous Gastritis group as well. I do not feel sorry myself I feel immense concern.

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@jlfisher56

I used to use Thermacare pain patches for the neck and low back in 2003 and worker com paid for them. I decreased my pain medication. When I started with skin breakdown, no longer could I use them. Now I use Teracin pain patches that are much smaller (menthol—cool, lidocaine—numb, and capsaicin but doesn’t burn), and do have to change skin sites because my skin will start to become sensitive with continued application. Thermacare is heat and now the cool works better for my nerve pain also. Best of luck!

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Where are these purchased?

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@parus

@clownscrytoo I am in one of my lows and lack energy to even think about doing something. Depression engulfs me when the pain gets worse. Loneliness takes any energy that may have hidden a way. Is what it is. In that dark chasm of not wanting to try. Any of the meds for fibro mess terribly with my mind and I become suicidal on most of them. The Cannabis thing is illegal where I reside and dubious about this as a solution. With the quirky reactions I have to medications I shudder at what this may do. Just because I can no longer work does not mean I am happy w/o a quality of life. I find some quality at times. Excuse please, head not thinking positive at this time.

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So sorry to hear this was it citrate?that will cause diarrea the ones that don’t are gluconate,Malate and some others there are alot of different compounds,for lack of better word, of magnesium.Oxide is another but it it helped you otherwise ,look into research of the different kinds of you haven’t done so.

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@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

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I agree 100%. I take it for leg cramps. Works like a charm.

Liked by jlfisher56

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I’m not sure what you’re asking to purchase because you don’t state it, if it’s the patches that are being talked about I don’t know. If you’re talking about the Theracane, I bought it at a medical supply store that’s in my doctors office building. I have also seen them online, I believe at Amazon. If you Google them you’ll find them. If you want it right away go to a medical supply store. I’d call first to make sure they have it.

Liked by jlfisher56

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If you’re talking about the Theracane, I got it at a medical supply store. I have also seen them online in places like Amazon. There are probably other places online also.

Liked by jlfisher56

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@kellye5

I wish in many ways I could retire…disability is on the table. I adore my job but I also have a child who was just diagnosed with an extremely rare digestive disease so we are headed up to MN to start treating him for a disease with now cure or no known real treatment. You can find me with Collagenous Gastritis group as well. I do not feel sorry myself I feel immense concern.

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So sorry to hear, I know the anxiety of a parent with a sick child. My son got Crohn’s disease as a teen, very tough, now a tough adult, my hero. Lucked into a clinical trial after a few years of very bad stuff. You may want a therapist for your child/family to deal with it, was very helpful and my wife and I are both therapists LOL. I hope things go well for you all.

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@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

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I’ll take any blessings I can get!

We have similar symptoms but our bodies react differently. I’ve taken a ton of magnesium glycinate, Jigsaw, good brand, no effect on anything. Also salve, onto shelf with dozens of failed supplements and meds.

Liked by jlfisher56

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@jenapower

I’m not sure what you’re asking to purchase because you don’t state it, if it’s the patches that are being talked about I don’t know. If you’re talking about the Theracane, I bought it at a medical supply store that’s in my doctors office building. I have also seen them online, I believe at Amazon. If you Google them you’ll find them. If you want it right away go to a medical supply store. I’d call first to make sure they have it.

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I used to buy them in the drug store, Walmart, etc.

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@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

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Pray you get help and answers. Please post. Been finding so many articles on chronic fatigue and the new name for it. Watch TED on youtube. (CFS is often now called ME) Myalgic encephalomyelitis (ME); a wonderful speaker Jennifer Brea who was going for her Doctorate (has this) gives a great presentation and a wonderful explanation of it and what science has discovered.

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@kellye5

I wish in many ways I could retire…disability is on the table. I adore my job but I also have a child who was just diagnosed with an extremely rare digestive disease so we are headed up to MN to start treating him for a disease with now cure or no known real treatment. You can find me with Collagenous Gastritis group as well. I do not feel sorry myself I feel immense concern.

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So sorry to hear about your child.Hope he/she finds some relief.Stay strong.

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@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

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Glycanate
didn’t help me either but Magnesium hydroxide(yields 86mg elemental magnesium ) does ,we know what helps one may not others that’s why we have to research.Therecane Jennapower has this information.

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@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

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Here’s the info on where to order the Thera Cane or you can get it at a medical supply store.
Hope this helps, I like mine a lot.
http://www.theracane.com/mobile/

Liked by jlfisher56, LynneB

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@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

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Thank you It lie good I will looking into ordering it .Maybe it will help my thighs and shoulders .Someone said they used Flexiril but I,d rather use massage for this the TENS helps but I don’t like putting it on my neck.Thanks again

Liked by LynneB

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@kellye5

HI @jlfisher56. I have all of your symptoms including numbness and some cognitive and speech issues. I will be seeing and integrative MD in Winston
Salem next week. However, I have found that heat and regular massage helps most. I will not take fibro meds except advil when really bad. I do not sleep well and have chronic fatigue. The neuro symptoms are becoming more frightening and hope to gain some information on that soon. The joint pain can be breathe taking is exhausting but massage oh and chiropractic care if done regularly doe relieve some of the symptoms keeping me able to work as a principal 5 days a week (most weeks).

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Flexiril also causes dry mouth. Have not had thus in years.

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