Fibromyalgia pain: Let's connect

Wow Justin, thank you ever so much. I've been looking for this for so long and so is my husband. It's hard to just sit here and suffer and watch my well-meaning doctors not know what to do. I will definitely look into what you've given me and I thank you from the bottom my heart. Jen

Sandy I did figure out where to register at the right place I just didn't know when I wrote that post. Thank you. I think what I was talking about with the marijuana was I didn't realize it was so different with than one state. Every doctor I've been to and there's been a lot, Especially my pain management doctor, who guided me through the whole marijuana system, have recommended that I use it and guided me to the people that could me. So I was extremely surprised to hear that anyone at least in our state, would be kicked out of their pain management doctors practice. My pain management doctor, my rheumatologist, my internal medicine doctor, have all told me to take marijuana. No one has ever mentioned being removed from at practice for using. Just honestly the first time I've ever heard of it. I don't think it's just my one doctor believing in it, I do think you're right in that some doctors who don't believe in it would use it as a reason to remove people from their practice. In a state where it's completely legal, it works, that just seems cruel especially when they want to take away the narcotics too, what are they want chronic pain parents to do? Thank you for your response I appreciate it a lot.

One of the things that I didn't explain, is that none of the regular pain management doctors or internal medicine or rheumatologist prescribe marijuana. They tell you the name of the physician that that is their whole practice is giving out marijuana licenses. You have to come in with your x-rays, CT or MRI's, the medications are wrong, and then they will decide whether you're a candidate for a medical marijuana license. The license is good for one year and then it has to be renewed. After that you have to go to a dispensary. Believe it or not we have dispensaries that are made just for the older/elderly. They have brochures you look at what you want, you call and talk to the owner about what product would be best for you, thenthey send I lovely young lady to your house goes over everything with you you pay them and they live. You never have to go into a dispensary. There are other dispensaries that are made for all ages that will do it just in the mail as long as you get your license to them. They have to have a copy of it on file and then they will very discreetly get you the medications, the doses, the forms of medication that you prefer. I do it through it's either UPS or FedEx I'm not sure my company uses. I honestly have never even met anybody. Which makes it for an older person that isn't comfortable, like my children would've been, going into a dispensary comfortable. The funny part is state is when my kids were in high school I chase them around trying to get them to never use marijuana, now they are in their 30s don't use it, and their mom does. But I'm pretty sick and they know that. So the world kind of turns its end. I feel bad for the people in other states can't get it because it really doesn't make a difference. I hope someday those people that are not against it or able to get it if they're sick.
Jen

That is a remarkable endorsement. I have tried L-glutamine with no real improvement to my over-all well-being. Also D-Ribose, although it does seems to help with fatigue after workouts (not that I can workout anymore).
I am happy for you that you found such a magic bullet for a mysterious ailment. I would like to hear if anyone else has had such a results.
Many Regards,
Robbinr

It wasn't L-glutamine.  It was glutathione.  I don't know if those two things are the same or not.  They may not be anything alike, but after stopping it for a year or so, the FM came back, and during stressful times, with a vengeance.

They are both amino acids but they are definitely different components. I'll try anything, so thanks for the tip!
Regards, Robbinr

Thank you very much for the mocha tea suggestion I'll try that.

As for the fibro fog I've had every single doctor mind tell me that's what the problem is. I've asked them over and over is something else worse wrong... no...they seriously have done CAT scans on my brain, CT scans on my brain and x-rays of everything. There are no house hidden tumors nothing. I almost kinda wish there was something they could fix, but no. So I thought there might be some type of herb or vitamin that my spur things on. I will read what's below and try those things to thank you all for your help I appreciate it a lot. This is a very comforting place and although I'm' said you all have struggles like I do, I'm glad I have you to share them with and talk to them. Jen

@jenapower Thank you for the info on how California does medical marijuana. I have wondered how it was handled. My doctor doesn't prescribe adequate pain meds for me. I get a small amount of Vicodin a month that I take for degenerative disc disease, bulging disc and the associated problems. I also have Fibro and arthritis. I have thought about trying marijuana for the pain.
Jen

@jenapower You are not alone in having fatigue or Fibro fog. Sometimes the fatigue is the worst part for me. It seems to come in cycles, at least every 5 weeks I have 3-4 days when getting out of bed, making coffee and brushing my teeth, make me feel as if I've run a marathon on no sleep. I am on Cymbalta, Lyrica and Baclofen and Doxepin. I take Centrum Silver, Citrical D3 with magnesium daily as well. The magnesium helps with the pain. Has your doctor done blood work with a vitamin panel? I highly suggest it. You could be anemic or low on your B vitamins.
Try not to stress about the memory loss. The more you do, the worse it is. Also are you getting at least 6-7 hours of sleep per night? Less sleep will exacerbate all of your symptoms.
Praying for you,
Jen

@basslakeview It appears that your post did not appear correctly. Can you tell me if you are using a Word type application or typing directly into the reply box? I'm tagging our moderators on this as well. @JustinMcClanahan @colleenyoung

So what were you taking that did work. I'm considering stopping all pain meds, and move forward with other meds that are not as harsh and addictive but no Lyrica or Cymbalta which I have reactions to. Jen