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Fibromyalgia Medications

Posted by @trouse in Autoimmune Diseases, Mar 2, 2013

Can anyone tell me some medications that have helped them control the symptoms of Fibromyalgia? I heard that Lyrica works the best w/ less side effects. Does any of the meds come in a liquid or injectable form?

Need suggesstions Please!

trouse

bettyann

Posted by @bettyann, Mar 6, 2013

Hi Trouse,
Here is a note of encouragement, I hope! Do not let ANYONE tell you that fibromyalgia is something you will have the rest of your life! That is NOT necessarily true.
My fibro started almost 15 years ago and at that time it didn't even have a NAME... I refused just pain meds...too easy to get hooked on them. At the advice of a nurse friend I started in taking Magnesium Malate... it helped most definately... Not saying it 'made it go away'...
I had days when it didn't bother me at all...but most days were devoted to what I called "my whole right side was shot down"... A few years later I started in taking MSM with Glucosamine (couldn't deal with the chondroitin) ... and it really and truly helped ease all the symptoms... I am now to the point (in spite of being a senion) where it is UNusual for me to have a fibro attack or any symptoms... Regular OTC pain relievers never touched it...might as well have been drinking water.
Do what YOU know works for you... just know it takes awhile for supplements to really kick in and start working for you. But at least it is a CURE not just a pain cover up. Drs probably won't agree...With Fibro...there are NO 'instant cures'....
Good luck to you!
Bettyann

teri15

Posted by @teri15, Mar 6, 2013

I've heard Cymbalta for depression helps with fibro. Don't no if it comes in liquid or not. Good luck!
Teri

trouse

Posted by @trouse, Mar 6, 2013

I have heard of Cymbalta too, it cannot be crushed and does not come in liquid form. I heard Levsin was good, with les side effects. I did talk to my pharmasist, he said he looked it up and it comes in a capsule that you can open. My problem right now is my specialist will not let me take any other meds due to having c-diff infectious disease right now, which is intestional. I have to wait for that to clear up first. It is just hard because I am dealing w/ so much ilness right now, my fibromyalgia symptoms seem like they are getting worse, headaches, all over body aches and pain, fatigue, etc. Stress does not help either in my situation!!

bettyann

Posted by @bettyann, Mar 6, 2013

You might consider Teri15's suggestion and ask your pharacist (dr) about Cymbalta... sometimes you just need all the help you can get! 🙂 It's not as if you have to 'stay on' any other meds forever... Your state of mind has a direct bearing on how you feel physically... this is why I suggested the healing tapes to help relax and soothe you. I hope your day is a good one, Trouse.

trouse

Posted by @trouse, Mar 15, 2013

I want to thank everyone for their suggestions on the meds. My rheumatologist did call back and started me on Neurotin, I guess that is how you spell it. It is in capsule form that I can break. I take it in the evening 1 x per day in evening, I can increase up to 3 x a day if needed. I am doing Ok w/ it. My body is trying to get used to it. Feeling fatigue, dizzy, and causes weight gain, which I have noticed. I am noticing that I am very moody as well.
How long does it take for a new med to get into your system and get used to it!!

Thank again for your concerns and comments!
I will keep you updated!

trouse

piglit

Posted by @piglit, Mar 15, 2013

Hi trouse so pleased that you have started on your new medication and it seems to be starting to work for you. I'm not sure how long it takes for your system to get used to the new medication ask you specialist. All new medications will take a little while to get used to I would think to readjust You take care and keep in touch Piglit

trouse

Posted by @trouse, Mar 18, 2013

It has been almost a week on the new med Neurotin, I have noticed that I get very moody, I have been crying off and on, very nervous like, shaky,headaches, etc. I am only taking 100 mg per day in evening. Has anyone had this reaction before? I also have noticed some coughing, sinus issues and cramping! Does anyone have any sugesstions for me?

piglit

Posted by @piglit, Mar 18, 2013

Hi sorry that your not feeling the best,not sure about the side effects or reactions so defineltly check with your dr and see what he suggests Take care Let me know how you get along you'll be in my thoughts

trouse

Posted by @trouse, Mar 19, 2013

I spoke w/ the rheumatologist yesterday. he stopped my med, and wants to wait till I see him in may. He said my side effects do not match the side effects of the med. i looked up the med, and I do not know what else it could be. i am seeing my primary doctor on Mon, I am to ask him!! The rheumatologist doctor said that this med i stopped could be in my system up to 7 days. Can this be true? I have noticed a small difference since I stopped, of course my body aches and pains are coming back, but having a little diarrhea now!
trouse

trouse

Posted by @trouse, Mar 6, 2013

What is magnesium malate? does it mix well w/ other prescription meds? It just seems like my fibromyalgia is getting worse everyday. The all over pain and aches, fatigue, weakness etc. It also doesn't help that I am on medications fighting c-diff infectious disease. It is all so overwhelming!!!

bettyann

Posted by @bettyann, Mar 6, 2013

Magnesium malate is a supplement ... its a specialized form of magnesium that helps to reduce pain in muscles and relax them. Ordinary magnesium (several varieties) don't address this pain/relaxation problem in the same way. I could only hope it would help you, trouse. I'm so sorry for what you are going through.

bettyann

Posted by @bettyann, Mar 6, 2013

I've only seen it in capsule form.

bettyann

Posted by @bettyann, Mar 6, 2013

you should be able to crush these pills.

bettyann

Posted by @bettyann, Mar 6, 2013

Here is another suggestion: work with some hypnosis cd's or tapes to help increase your positivity towards health... it CAN be done...you have got to start believing that your body WANTS to be well and CAN be.

trouse

Posted by @trouse, Mar 6, 2013

I have tried hypnosis for other reasons, my mind is like on overdrive, I cannot seem to go under! I have alot going on w/ my personal life along w/ battling c-diff infectious disease. The meds I am on is not helping my fibromyalgia. My rheumatolist will not put me on anything now until I am clear from C-diff!

piglit

Posted by @piglit, Mar 6, 2013

Hi trouse, maybe ask your specialist about the meds that you may need.Hopefully you find the answers. Take care and let me know how you get along. Take care Piglit

trouse

Posted by @trouse, Mar 6, 2013

I see my rheumatologist in may, he will not put me on anything until my c-diff infection disease goes away. The pain I am in is awful, fatigue, weakness all over, it is like having the flu!!! It seems to get worse everyday! Do you also get headaches from fibromyalgia?

piglit

Posted by @piglit, Mar 6, 2013

I myself don't have fibromyalgia, but I can relate to being in constant pain. I experience this due to health problems that i have. Can you maybe arrange an appoint.ment earlier with your rheumatologist .Wish I could do more to help, try to relax if you can and get rest. Always here Piglit

piglit

Posted by @piglit, Mar 6, 2013

Also just try to keep in mind that trying to stay positive is also a good thing. It's can really help to keep your train of thought along these lines. Beleive me it does work and Betty is right that you do have to beleive in yourself that your body does want to get better. The power of positive thinking can help so much. Take care always here Annie

trouse

Posted by @trouse, Mar 7, 2013

Thank you all for your feedback and support. I left a message w/ my rheumatologist to see if I can get in sooner than May! I will keep you updated!!!

trouse

piglit

Posted by @piglit, Mar 7, 2013

That's such good news let us know how you get along take care always here anytime Piglit

piglit

Posted by @piglit, Mar 9, 2013

Hi Trouse just wondering how things are going and if youv'e heard back from your specialist Take care Piglit

trouse

Posted by @trouse, Mar 9, 2013

The doctor tried to reach me last night but I missed his call, I have to call his office on Monday to find out what he is going to do! I will keep you posted.
Thank You for your concerns.
trouse

piglit

Posted by @piglit, Mar 9, 2013

Will talk again Monday glad that the dr has made contact that's a positive. Take care Piglit

trouse

Posted by @trouse, Mar 11, 2013

Called the pharamist yesterday. My rheumatologist apparantly put me on a med called Neurontin/ Gabapentin for my fibromyalgia 3 x a day. Has anyone heard of thismed before? Pharmacist said it was similar to Lyrica. I am still going to call the doctors office to make sure. Never been on a med for fibromalgia before. Scared it will effect my other meds since I still have the c-diff intestional infection. I am so scared it will affect the infection that is in my intestional track?
Has anyone heardof this med before? Never been on meds for fibromyalgia?
Feedback would be appreciated!

Thanks,
trouse

piglit

Posted by @piglit, Mar 11, 2013

Hi trouse my haemotologist adviced me to try gabapentin for pain, but however read up and decided against it. But I did have along talk with my GP in regards to this before I made this decision. Also my staffy dog uses gabapentin to assist him with his itchy skin complaint. I again would speak to my specialist in regards to this as he will be able to answer any questions that concern you. Take care

trouse

Posted by @trouse, Mar 11, 2013

Why did you decide not to take it, or change your med?

piglit

Posted by @piglit, Mar 11, 2013

Hi trouse I have to take warfarin for the rest of my life due to ongoing clotting problems and it tends to interact with almost everything so decided not to go down that pathway. I try to control my pain with panadolosteo or codeine when it gets really severe. Take care

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