piglit
@piglit
@piglit
Posts: 1492
Joined: Jan 04, 2012
Thank you all for your feedback and support. I left a message w/ my rheumatologist to see if I can get in sooner than May! I will keep you updated!!!
trouse
Hi Trouse just wondering how things are going and if youv’e heard back from your specialist Take care Piglit
Thank you all for your feedback and support. I left a message w/ my rheumatologist to see if I can get in sooner than May! I will keep you updated!!!
trouse
The doctor tried to reach me last night but I missed his call, I have to call his office on Monday to find out what he is going to do! I will keep you posted.
Thank You for your concerns.
trouse
piglit
@piglit
@piglit
Posts: 1492
Joined: Jan 04, 2012
Thank you all for your feedback and support. I left a message w/ my rheumatologist to see if I can get in sooner than May! I will keep you updated!!!
trouse
Will talk again Monday glad that the dr has made contact that’s a positive. Take care Piglit
Called the pharamist yesterday. My rheumatologist apparantly put me on a med called Neurontin/ Gabapentin for my fibromyalgia 3 x a day. Has anyone heard of thismed before? Pharmacist said it was similar to Lyrica. I am still going to call the doctors office to make sure. Never been on a med for fibromalgia before. Scared it will effect my other meds since I still have the c-diff intestional infection. I am so scared it will affect the infection that is in my intestional track?
Has anyone heardof this med before? Never been on meds for fibromyalgia?
Feedback would be appreciated!
Thanks,
trouse
piglit
@piglit
@piglit
Posts: 1492
Joined: Jan 04, 2012
Called the pharamist yesterday. My rheumatologist apparantly put me on a med called Neurontin/ Gabapentin for my fibromyalgia 3 x a day. Has anyone heard of thismed before? Pharmacist said it was similar to Lyrica. I am still going to call the doctors office to make sure. Never been on a med for fibromalgia before. Scared it will effect my other meds since I still have the c-diff intestional infection. I am so scared it will affect the infection that is in my intestional track?
Has anyone heardof this med before? Never been on meds for fibromyalgia?
Feedback would be appreciated!
Thanks,
trouse
Hi trouse my haemotologist adviced me to try gabapentin for pain, but however read up and decided against it. But I did have along talk with my GP in regards to this before I made this decision. Also my staffy dog uses gabapentin to assist him with his itchy skin complaint. I again would speak to my specialist in regards to this as he will be able to answer any questions that concern you. Take care
Called the pharamist yesterday. My rheumatologist apparantly put me on a med called Neurontin/ Gabapentin for my fibromyalgia 3 x a day. Has anyone heard of thismed before? Pharmacist said it was similar to Lyrica. I am still going to call the doctors office to make sure. Never been on a med for fibromalgia before. Scared it will effect my other meds since I still have the c-diff intestional infection. I am so scared it will affect the infection that is in my intestional track?
Has anyone heardof this med before? Never been on meds for fibromyalgia?
Feedback would be appreciated!
Thanks,
trouse
Why did you decide not to take it, or change your med?
piglit
@piglit
@piglit
Posts: 1492
Joined: Jan 04, 2012
Called the pharamist yesterday. My rheumatologist apparantly put me on a med called Neurontin/ Gabapentin for my fibromyalgia 3 x a day. Has anyone heard of thismed before? Pharmacist said it was similar to Lyrica. I am still going to call the doctors office to make sure. Never been on a med for fibromalgia before. Scared it will effect my other meds since I still have the c-diff intestional infection. I am so scared it will affect the infection that is in my intestional track?
Has anyone heardof this med before? Never been on meds for fibromyalgia?
Feedback would be appreciated!
Thanks,
trouse
Hi trouse I have to take warfarin for the rest of my life due to ongoing clotting problems and it tends to interact with almost everything so decided not to go down that pathway. I try to control my pain with panadolosteo or codeine when it gets really severe. Take care
Hi Trouse,
Here is a note of encouragement, I hope! Do not let ANYONE tell you that fibromyalgia is something you will have the rest of your life! That is NOT necessarily true.
My fibro started almost 15 years ago and at that time it didn’t even have a NAME… I refused just pain meds…too easy to get hooked on them. At the advice of a nurse friend I started in taking Magnesium Malate… it helped most definately… Not saying it ‘made it go away’…
I had days when it didn’t bother me at all…but most days were devoted to what I called “my whole right side was shot down”… A few years later I started in taking MSM with Glucosamine (couldn’t deal with the chondroitin) … and it really and truly helped ease all the symptoms… I am now to the point (in spite of being a senion) where it is UNusual for me to have a fibro attack or any symptoms… Regular OTC pain relievers never touched it…might as well have been drinking water.
Do what YOU know works for you… just know it takes awhile for supplements to really kick in and start working for you. But at least it is a CURE not just a pain cover up. Drs probably won’t agree…With Fibro…there are NO ‘instant cures’….
Good luck to you!
Bettyann
I want to thank everyone for their suggestions on the meds. My rheumatologist did call back and started me on Neurotin, I guess that is how you spell it. It is in capsule form that I can break. I take it in the evening 1 x per day in evening, I can increase up to 3 x a day if needed. I am doing Ok w/ it. My body is trying to get used to it. Feeling fatigue, dizzy, and causes weight gain, which I have noticed. I am noticing that I am very moody as well.
How long does it take for a new med to get into your system and get used to it!!
Thank again for your concerns and comments!
I will keep you updated!
trouse
piglit
@piglit
@piglit
Posts: 1492
Joined: Jan 04, 2012
Hi Trouse,
Here is a note of encouragement, I hope! Do not let ANYONE tell you that fibromyalgia is something you will have the rest of your life! That is NOT necessarily true.
My fibro started almost 15 years ago and at that time it didn’t even have a NAME… I refused just pain meds…too easy to get hooked on them. At the advice of a nurse friend I started in taking Magnesium Malate… it helped most definately… Not saying it ‘made it go away’…
I had days when it didn’t bother me at all…but most days were devoted to what I called “my whole right side was shot down”… A few years later I started in taking MSM with Glucosamine (couldn’t deal with the chondroitin) … and it really and truly helped ease all the symptoms… I am now to the point (in spite of being a senion) where it is UNusual for me to have a fibro attack or any symptoms… Regular OTC pain relievers never touched it…might as well have been drinking water.
Do what YOU know works for you… just know it takes awhile for supplements to really kick in and start working for you. But at least it is a CURE not just a pain cover up. Drs probably won’t agree…With Fibro…there are NO ‘instant cures’….
Good luck to you!
Bettyann
Hi trouse so pleased that you have started on your new medication and it seems to be starting to work for you. I’m not sure how long it takes for your system to get used to the new medication ask you specialist. All new medications will take a little while to get used to I would think to readjust You take care and keep in touch Piglit
Hi Trouse,
Here is a note of encouragement, I hope! Do not let ANYONE tell you that fibromyalgia is something you will have the rest of your life! That is NOT necessarily true.
My fibro started almost 15 years ago and at that time it didn’t even have a NAME… I refused just pain meds…too easy to get hooked on them. At the advice of a nurse friend I started in taking Magnesium Malate… it helped most definately… Not saying it ‘made it go away’…
I had days when it didn’t bother me at all…but most days were devoted to what I called “my whole right side was shot down”… A few years later I started in taking MSM with Glucosamine (couldn’t deal with the chondroitin) … and it really and truly helped ease all the symptoms… I am now to the point (in spite of being a senion) where it is UNusual for me to have a fibro attack or any symptoms… Regular OTC pain relievers never touched it…might as well have been drinking water.
Do what YOU know works for you… just know it takes awhile for supplements to really kick in and start working for you. But at least it is a CURE not just a pain cover up. Drs probably won’t agree…With Fibro…there are NO ‘instant cures’….
Good luck to you!
Bettyann
It has been almost a week on the new med Neurotin, I have noticed that I get very moody, I have been crying off and on, very nervous like, shaky,headaches, etc. I am only taking 100 mg per day in evening. Has anyone had this reaction before? I also have noticed some coughing, sinus issues and cramping! Does anyone have any sugesstions for me?
piglit
@piglit
@piglit
Posts: 1492
Joined: Jan 04, 2012
Hi Trouse,
Here is a note of encouragement, I hope! Do not let ANYONE tell you that fibromyalgia is something you will have the rest of your life! That is NOT necessarily true.
My fibro started almost 15 years ago and at that time it didn’t even have a NAME… I refused just pain meds…too easy to get hooked on them. At the advice of a nurse friend I started in taking Magnesium Malate… it helped most definately… Not saying it ‘made it go away’…
I had days when it didn’t bother me at all…but most days were devoted to what I called “my whole right side was shot down”… A few years later I started in taking MSM with Glucosamine (couldn’t deal with the chondroitin) … and it really and truly helped ease all the symptoms… I am now to the point (in spite of being a senion) where it is UNusual for me to have a fibro attack or any symptoms… Regular OTC pain relievers never touched it…might as well have been drinking water.
Do what YOU know works for you… just know it takes awhile for supplements to really kick in and start working for you. But at least it is a CURE not just a pain cover up. Drs probably won’t agree…With Fibro…there are NO ‘instant cures’….
Good luck to you!
Bettyann
Hi sorry that your not feeling the best,not sure about the side effects or reactions so defineltly check with your dr and see what he suggests Take care Let me know how you get along you’ll be in my thoughts
Hi Trouse,
Here is a note of encouragement, I hope! Do not let ANYONE tell you that fibromyalgia is something you will have the rest of your life! That is NOT necessarily true.
My fibro started almost 15 years ago and at that time it didn’t even have a NAME… I refused just pain meds…too easy to get hooked on them. At the advice of a nurse friend I started in taking Magnesium Malate… it helped most definately… Not saying it ‘made it go away’…
I had days when it didn’t bother me at all…but most days were devoted to what I called “my whole right side was shot down”… A few years later I started in taking MSM with Glucosamine (couldn’t deal with the chondroitin) … and it really and truly helped ease all the symptoms… I am now to the point (in spite of being a senion) where it is UNusual for me to have a fibro attack or any symptoms… Regular OTC pain relievers never touched it…might as well have been drinking water.
Do what YOU know works for you… just know it takes awhile for supplements to really kick in and start working for you. But at least it is a CURE not just a pain cover up. Drs probably won’t agree…With Fibro…there are NO ‘instant cures’….
Good luck to you!
Bettyann
I spoke w/ the rheumatologist yesterday. he stopped my med, and wants to wait till I see him in may. He said my side effects do not match the side effects of the med. i looked up the med, and I do not know what else it could be. i am seeing my primary doctor on Mon, I am to ask him!! The rheumatologist doctor said that this med i stopped could be in my system up to 7 days. Can this be true? I have noticed a small difference since I stopped, of course my body aches and pains are coming back, but having a little diarrhea now!
trouse
@piglit
That’s such good news let us know how you get along take care always here anytime Piglit