1. < Fibromyalgia

Fibromyalgia..Is It an autoimmune disease?

Posted by Darlia @darlia, Feb 13, 2018

Hi all! I have Fibro. I also have many autoimmune diseases. I am being challenged by my comment to a FB discussion on Fibromyalgia about whether or not it is an autoimmune diseases.. any info appreciated! Thank you and ..just keep swimming.. just keep swimming!
Darlia

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

faustinamarina | @faustinamarina | May 9 1:11pm
In reply to @oregongirl "It hurts way down deep when people don't believe me. I doubt Drs would give us..." + (show)
@oregongirl

It hurts way down deep when people don't believe me. I doubt Drs would give us chemicals unless they are sure we are ill. It is so hard to convince my son. My daughter just thinks I am weak and should drop all drugs and work it off with exercise and take fake drugs. Mind you I am 75 76 in two months. The drugs allow me to live. I have she'd a lot of tears

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I truly understand...I have shed hundreds of thousands of tears...My family and kids and friends never believed how horrible the pain and migraines were...
They saw me...
Buy thought it was a made up disease?
No support was hard...I was diagnosed in 1989...
I recently was diagnosed with Sjogrens....I am pretty devastated...I already have heart disease and it's scary how sick I have been...
I just wanted to say You do what ever makes you feel better....Blessings 🦋🌈

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1 reply
desi27 | @desi27 | May 11 12:02am
In reply to @faustinamarina "I truly understand...I have shed hundreds of thousands of tears...My family and kids and friends never..." + (show)
@faustinamarina

I truly understand...I have shed hundreds of thousands of tears...My family and kids and friends never believed how horrible the pain and migraines were...
They saw me...
Buy thought it was a made up disease?
No support was hard...I was diagnosed in 1989...
I recently was diagnosed with Sjogrens....I am pretty devastated...I already have heart disease and it's scary how sick I have been...
I just wanted to say You do what ever makes you feel better....Blessings 🦋🌈

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I hear you! Diagnosed in 2002. No one believed I was sick. My son said I was just lazy. So much pain, confusion, anxiety. So, I cried, wanting to die. Tried to die. But, I kept going, little by little, I got more active. Then my wife had a stroke. Had to step up. Then in 2022, diagnosed with Lupus. Was it Lupus all along? Not sure. I am still in a lot of pain daily. I stretch, do P/t, take steroid shots a couple times each year. Have a rheumatologist. But I think the main thing that keeps me going is My stubbornness. I refuse to let it beat me.
Yes, some awful days. But, also some great days.
I send love and light to you❤️

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ripley | @ripley | May 11 11:33am
In reply to @desi27 "Pain as an adolescent, they called it growing pains. 2003 diagnosed with Fibromyalgia but never tested..." + (show)
@desi27

Pain as an adolescent, they called it growing pains. 2003 diagnosed with Fibromyalgia but never tested me for anything else.
No one believed it was a real disorder then, now? Add in some Osteoarthritis and some other weird symptoms. In 2022, a rash on my face and body went crazy. Lupus they said . Have I had it all along? Maybe. My rheumatologist does believe in Fibromyalgia. Uses steroid injections in my hips which seem to help a little. Lupus not showing now, remission? Who knows. The pain never goes away. I just cope better now and use vitamins, cannabis, other to maintain my active lifestyle. ❤️

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I also have fibromyalgia. Can you offer more information on what vitamins and type of cannabis you use? My DNP suggested several supplements, but I haven't noticed they make a difference. I'm also in my state's medical marijuana program and use sleep gummies, which help a bit. But I haven't found any cannabis product to use during the day for pain. I welcome any suggestions. Thanks.

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1 reply
desi27 | @desi27 | 9 hours ago
In reply to @ripley "I also have fibromyalgia. Can you offer more information on what vitamins and type of cannabis..." + (show)
@ripley

I also have fibromyalgia. Can you offer more information on what vitamins and type of cannabis you use? My DNP suggested several supplements, but I haven't noticed they make a difference. I'm also in my state's medical marijuana program and use sleep gummies, which help a bit. But I haven't found any cannabis product to use during the day for pain. I welcome any suggestions. Thanks.

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I take Manesium, CoQ10, vit D, vit b12, daily.
Macha &Green tea daily
Tylenol extra strength and/ or Ibuprofen when pain gets bad. Also, Baclofen- muscle relaxer
Moist heat pads
Rheumatologist gave me Hydroxyquaraquine(platquinal) sp? I am not sure it does much
Cannabis- sativa gummies for energy
I try not to smoke but I get better effects from smoking flower.
Indica gummies for sleep
Dosage is different for everyone. Experiment!
THC massage oil & voltaren gel on sensitive areas.
Exercise any way you can even for 5-10 min
I use a Exercise ball to stretch on
Massage therapy and other bodywork like energy healing
Keep going!💖
Physical therapy
Acupuncture

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