Fibromyalgia..Is It an autoimmune disease?
Hi all! I have Fibro. I also have many autoimmune diseases. I am being challenged by my comment to a FB discussion on Fibromyalgia about whether or not it is an autoimmune diseases.. any info appreciated! Thank you and ..just keep swimming.. just keep swimming!
Darlia
Interested in more discussions like this? Go to the Fibromyalgia Support Group.
I truly understand...I have shed hundreds of thousands of tears...My family and kids and friends never believed how horrible the pain and migraines were...
They saw me...
Buy thought it was a made up disease?
No support was hard...I was diagnosed in 1989...
I recently was diagnosed with Sjogrens....I am pretty devastated...I already have heart disease and it's scary how sick I have been...
I just wanted to say You do what ever makes you feel better....Blessings 🦋🌈
I hear you! Diagnosed in 2002. No one believed I was sick. My son said I was just lazy. So much pain, confusion, anxiety. So, I cried, wanting to die. Tried to die. But, I kept going, little by little, I got more active. Then my wife had a stroke. Had to step up. Then in 2022, diagnosed with Lupus. Was it Lupus all along? Not sure. I am still in a lot of pain daily. I stretch, do P/t, take steroid shots a couple times each year. Have a rheumatologist. But I think the main thing that keeps me going is My stubbornness. I refuse to let it beat me.
Yes, some awful days. But, also some great days.
I send love and light to you❤️
I also have fibromyalgia. Can you offer more information on what vitamins and type of cannabis you use? My DNP suggested several supplements, but I haven't noticed they make a difference. I'm also in my state's medical marijuana program and use sleep gummies, which help a bit. But I haven't found any cannabis product to use during the day for pain. I welcome any suggestions. Thanks.
I take Manesium, CoQ10, vit D, vit b12, daily.
Macha &Green tea daily
Tylenol extra strength and/ or Ibuprofen when pain gets bad. Also, Baclofen- muscle relaxer
Moist heat pads
Rheumatologist gave me Hydroxyquaraquine(platquinal) sp? I am not sure it does much
Cannabis- sativa gummies for energy
I try not to smoke but I get better effects from smoking flower.
Indica gummies for sleep
Dosage is different for everyone. Experiment!
THC massage oil & voltaren gel on sensitive areas.
Exercise any way you can even for 5-10 min
I use a Exercise ball to stretch on
Massage therapy and other bodywork like energy healing
Keep going!💖
Physical therapy
Acupuncture
Wow. What are the other autoimmune issues
It is helpful to hear your stories - similar to mine, so it makes me feel a little bit less crazy! I have tried all the medications recommended, but at this point, there are NO pain medications I can tolerate or take because of interactions with meds for other health issues. one thing that has given me a little relief is Low Dose Naltrexone, It's hard to get a prescription for it, it's off-label use, and it has to be made at a pharmacy that will do compound meds. I take 6 mg, and it does provide some relief, particularly allowing me reduced pain for sleeping. It's certainly not a miracle cure - but anything that helps a little that I can take with no side effects is better than nothing. If you're not familiar with it, there has been some research done related to fibro. Search for Low Dose Naltrexone and fibromyalgia.
My doctor who is the head of the University of Washington pain clinic says the brain attacks the pain censors in the muscles. They are doing a lot of research in the UK and finding out it may be auto immune disease. But I said to him well if it's the body attacking itself It makes it autoimmune? He said basically just a little different.
I am so interested in this theory!
I have a number of diseases and fibermyalgia is the only one that isn't autoimmune. I have often wondered if it was. Please keep posting any information that you can. My rheumatologist loves learning and there is allot of research being done at U. B.C. and other Canadian universities. Maybe the UK and Canada could share info.