Fibromyalgia..Is It an autoimmune disease?

Posted by Darlia @darlia, Feb 13, 2018

Hi all! I have Fibro. I also have many autoimmune diseases. I am being challenged by my comment to a FB discussion on Fibromyalgia about whether or not it is an autoimmune diseases.. any info appreciated! Thank you and ..just keep swimming.. just keep swimming!
Darlia

Interested in more discussions like this? Go to the Autoimmune Diseases group.

I believe you. It is very possible that you have strong food allergies. And the way to find out which ones if you were to take this on and still eliminate everything and add back one at a time

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@shellmats

I understand your frustration. My doctor told me that none of the rheumatologists in reno deal with fibromyalgia. Doctors act so perplexed when they do a procedure on me and they tell me it won’t hurt but it’s excruciating. For example yesterday, they removed my big toenail. The shots made me want to die it was so painful. Gabapentin is all they give me. Sometimes I don’t hurt much at all, usually when I don’t eat for days I feel better. But my mental state is a problem. Family members don’t understand and that’s hard for me.

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Are you also hypersensitive? Do you bruise easily? Does it take you a long time to heal? Unfortunately family and friends don't understand what you're going through. I guess it's a blessing and a curse that one of my other family members has it so now everyone knows that it's real, whatever it is. I'm the same way sometimes I'm in agony and sometimes I feel pretty normal.

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@johnbishop

Hello @shellmats, Welcome to Connect. It does make you wonder when the treatment sometimes brings more pain than the original problem. You mentioned that sometimes you don't hurt at all and it is usually when you don't eat for days that you feel better. I know that it can be hard when your family members don't understand what you are going through. That can definitely cause you more stress. Do you think some of your symptoms might be food related?

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I think sugar/refined carbs are my enemy. I’m also vaping nicotine which isn’t helping and I’m struggling to quit.

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I have autoimmune diseases and when I first became ill and even now I usually feel better when I don't eat too. I was so sick and very fatigued and who knew but I also had H Pylori. Once I got on antibiotics for it some of my fatigue and pain went away. My stomach is easily upset since I became ill. Hope you can figure it out. I take low dose naltrexone for pain and it really helps me.

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@shellmats

I think sugar/refined carbs are my enemy. I’m also vaping nicotine which isn’t helping and I’m struggling to quit.

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Hello @shellmats

As I read your post, I was thinking that you might find our discussion on Addiction and Recovery helpful to you. We have many discussions in this group, but the one that might be the most interesting is the one on smoking. Here is the link, https://connect.mayoclinic.org/discussion/wanting-to-quit-smoking/.

There is also a discussion group on Healthy Eating. Here is the link to that discussion, https://connect.mayoclinic.org/discussion/recipes-food-tips-healthy-eating-more/.

Do you know what triggers your desire to vape or eat foods that are not best for you?

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@grandmar

Hi Darlia

You are very welcome.

I believe this will continue to be an on-going debate until the medical community can make up its mind. Problem is, I really don\'t think they care. Just think, they have known about this condition for decades and they still haven\'t made up any test for confirmation. Diagnosis, as you know, is a matter of elimination and symptoms. In addition, as you research and read other posts, you see that the treatments vary, too.

For me, what I did all those years ago helped. Low dose anti-depressants to get into deep, restorative sleep, exercise, weight loss, therapeutic massage and chiropractics worked for me. Insurance companies told me it was auto-immune and would not insure me, that I would have to go to an insurance company that insures high risk customers and they charge a fortune.

By the way, it was women who first complained about this mysterious \'disease\' and they were told, as they have for other conditions, there was nothing wrong and it was all in their head.

So, in short, I believe we need to do what we can to relieve the symptoms and not exasperate them.

Good luck to you and us all!!!!
ronnie

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I was told Fibromyalgia before we could even use the term due to just lazy or crazy. I’ve gone to UC, DDD, RA, SS, REYNAUDS, COPD as it relates to chronic bronchitis but faith and family keep me going

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@lilymol

I have autoimmune diseases and when I first became ill and even now I usually feel better when I don't eat too. I was so sick and very fatigued and who knew but I also had H Pylori. Once I got on antibiotics for it some of my fatigue and pain went away. My stomach is easily upset since I became ill. Hope you can figure it out. I take low dose naltrexone for pain and it really helps me.

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@lilymol Just wondering if you’ve been back to your doctor for follow up now that the H pylori has cleared?

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@becsbuddy

@lilymol Just wondering if you’ve been back to your doctor for follow up now that the H pylori has cleared?

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Hello think I may have it again or something new…..more GERD, more burning, stomach pain, constipation….a whole host of new symptoms. I saw him last week and he ordered endo and colonscopy…..scheduled in a couple of months.

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@lilymol

Hello think I may have it again or something new…..more GERD, more burning, stomach pain, constipation….a whole host of new symptoms. I saw him last week and he ordered endo and colonscopy…..scheduled in a couple of months.

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@lilymol Gosh, a couple of months? That’s too long when you’re feeling awful! Are there any medical centers within 1-3 hours away? Or a university medical center? I ended up going to a university med center about 1 hour away. I got great care there.
Since you have autoimmune diseases already, I suggest that can call the rheumatologist who treats you. Can you do that?

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@lilymol

Hello think I may have it again or something new…..more GERD, more burning, stomach pain, constipation….a whole host of new symptoms. I saw him last week and he ordered endo and colonscopy…..scheduled in a couple of months.

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@lilymol i found this doctor that might be of help. She may, at least, be able to give you some names of doctors in your area.
https://www.centerformultisystemdisease.com/services/autoimmune-disease
Can you try calling her tomorrow?

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@becsbuddy

@lilymol i found this doctor that might be of help. She may, at least, be able to give you some names of doctors in your area.
https://www.centerformultisystemdisease.com/services/autoimmune-disease
Can you try calling her tomorrow?

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Thanks for the reference.

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@shellmats

I think sugar/refined carbs are my enemy. I’m also vaping nicotine which isn’t helping and I’m struggling to quit.

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Have you tried any of the smoking cessation classes?

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