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Darlia (@darlia)

Fibromyalgia..Is It an autoimmune disease?

Autoimmune Diseases | Last Active: May 5 4:33pm | Replies (38)

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@shellmats

I understand your frustration. My doctor told me that none of the rheumatologists in reno deal with fibromyalgia. Doctors act so perplexed when they do a procedure on me and they tell me it won’t hurt but it’s excruciating. For example yesterday, they removed my big toenail. The shots made me want to die it was so painful. Gabapentin is all they give me. Sometimes I don’t hurt much at all, usually when I don’t eat for days I feel better. But my mental state is a problem. Family members don’t understand and that’s hard for me.

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Replies to "I understand your frustration. My doctor told me that none of the rheumatologists in reno deal..."

Hello @shellmats, Welcome to Connect. It does make you wonder when the treatment sometimes brings more pain than the original problem. You mentioned that sometimes you don't hurt at all and it is usually when you don't eat for days that you feel better. I know that it can be hard when your family members don't understand what you are going through. That can definitely cause you more stress. Do you think some of your symptoms might be food related?

Are you also hypersensitive? Do you bruise easily? Does it take you a long time to heal? Unfortunately family and friends don't understand what you're going through. I guess it's a blessing and a curse that one of my other family members has it so now everyone knows that it's real, whatever it is. I'm the same way sometimes I'm in agony and sometimes I feel pretty normal.

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