Eyelids stuck to eyeball at night

Posted by kathleenintexas @kathleenintexas, Mar 14, 2023

Woke up in the night five years ago and could not open my eyes without extreme pain. I massaged the eyes and that seemed to help. I would grope my way to the bathroom and splash water on them and that also would help so I could open them. Saw an ophthalmologist who prescribed eye drops. Began using saline drops before bedtime, but would still wake up with the eyes 'glued' shut. It is the eyelid sticking to the eyeball. The closest thing I could find when researching was corneal erosion. The massaging does not help anymore, so I keep the eye drops close to the bed and when I wake up in the night I use them so I can open my eyes. So, I am managing it, but still wondering what is going on and if anyone else has this condition.

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@SusanEllen66

@covidstinks2023 no. It’s way more than dry eyes. When the doctor looked under my upper lid he knew right away what the problem was. My corneas, under my lids are very red, inflamed and sore. He explained that the inflammation caused my eyelids to become swollen and tight across my eyeball. So, every blink caused my lid to scratch my cornea. It was painful when it was flared up. He gave me non prescription contacts as “bandages”. When I wore them it gave me relief because they prevented the lids from touching the corneas when I blinked.
Now, years later I have dry eyes like everyone else. I understand the eye disease I had has gone away for now, however it can reappear at anytime.

Inflammation is the main problem I have in my entire body. It affects me in many ways and I’m sure this is just part of my problem.

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I am so sorry. I too have inflammation in my entire body and yes I believe that plays a big part with our eye issues. God bless and I pray you get some relief.

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You need to see an Opthamologist who specializes in diseases of the cornea, or outer layer of the eye. There are also hereditary diseases which can cause this problem, due to blistering of the outermost layer of the cornea. There are certain treatments, medications, and surgeries which can help if this is the cause. Two of these conditions are Fuchs corneal dystrophy and map dot corneal dystrophy. Hope you can find out the cause!

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@covidstinks2023

I am so sorry. I too have inflammation in my entire body and yes I believe that plays a big part with our eye issues. God bless and I pray you get some relief.

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@covidstinks2023 thank you. I am blessed.
I’m praying for your complete recovery from every illness you have in Jesus mighty name!

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@SusanEllen66

@covidstinks2023 thank you. I am blessed.
I’m praying for your complete recovery from every illness you have in Jesus mighty name!

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The same to you precious lady! Blessings & Prayers////Eph. 3:20

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I have dry eye issue as well. You should see an ophthalmologist for that. It can cause severe problems. I use hot compresses on my eyes for 15 minutes twice a day and they also make eyelid wipes to help cleanse the eyelids. There are little glands at the base of each eyelash and they put out an oil that lubricates the eyes. They can get clogged and then the oil turns thick and won’t lubricate that’s why they say really warm compresses helps to melt it and unclog the pores. I also use a thicker no preservative eye drip at night. Just a tiny bit helps but then rinse the eyelids well in the morning to remove the residue.
They also make a prescription stop for dryeyes that really works well.

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@johnbishop

Hello @kathleenintexas, There is an older discussion that sounds much like the symptoms that you describe.

--- blepharospasms and Blepharitis: https://connect.mayoclinic.org/discussion/blepharospasms-and-blepharitis/

Also, Mayo Clinic has some information on the condition that might be helpful:
"Blepharitis is an inflammation along the edges of the eyelids. The eyelids can become irritated and itchy, and appear greasy and crusted with scales that cling to the lashes. People with blepharitis sometimes wake with their eyelids stuck together."
--- Blepharitis - Symptoms and causes - Mayo Clinic:
https://www.mayoclinic.org/diseases-conditions/blepharitis/symptoms-causes/syc-20370141
Does this seem to fit your symptoms?

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I don't have any crusting of the eyelashes or edges of eyelids. It is the center of the eyelid that sticks to the eyeball. I have an appointment with an ophthalmologist this week and hope he can diagnose the problem. I recently learned about demodex mites in the eyelids and am wondering if they can affect the glands in the eye which produce oil that lubricates the eye.

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@kathleenintexas

I don't have any crusting of the eyelashes or edges of eyelids. It is the center of the eyelid that sticks to the eyeball. I have an appointment with an ophthalmologist this week and hope he can diagnose the problem. I recently learned about demodex mites in the eyelids and am wondering if they can affect the glands in the eye which produce oil that lubricates the eye.

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@kathleenintexas I started having episodes of extreme dry eye years ago. It got so bad that I literally had to pull my eyelid off of my eyeball too, but this was during the day. I went to an ophthalmologist and he couldn’t understand why because when he checked the moisture in my eyes they were fine.
I told him to imagine that dry feeling you get when you get water in your eyes in the shower, then multiply that by 100. That’s how my eyes felt.
He referred me to a cornea specialist who diagnosed me with a rare condition named Superior Limbic Keratoconjunctivitis or SLK. It’s an inflammatory disease.

I hope you get the treatment you need.

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God Bless You!. Sounds like you have extreme dry eyes. I had a similar thing back in 2014 and was put on (both are prescription) Lotamax and Restastis and (over the counter) Systane Ultra (Systane Complete was not out at the time and works better). The prescription Lotamax was for inflammation. My allergies were at an all time high and that also triggered some of this. I recently had punctum plugs put in my eyes for extreme dryness after cataract surgery, still use Restasis twice a day and Systane Complete x2 a day. This is has been wonderful! I was using Systane up to 6 times a day prior to the plugs and also the Systane ointment at night. Dry eyes are painful, scratchy and blurring. There is a mask for your dry eye on Amazon that works beautifully for called Bruder Moist Heat Eye Compress. Hugs & Prayers....

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In reply to Kathleen in Texas:
I had the exact condition that you are describing, many years ago. It was very strange and frightening. My eyelids were stuck to my eyeballs, and it was painful to open my eyes in the morning.
It was diagnosed by an ophthalmologist as something called Map Dot Fingerprint Dystrophy with Corneal Erosions. He prescribed an ointment called Muro 128 5% Solution, which if I remember correctly was to be applied to the inner rim of the lower eyelid, twice a day. I’m not sure how long it took, but it healed the problem. At the point that the doctor said that the Corneal Erosions had healed, I was able to discontinue the ointment. I believe that he told me to continue the Muro 128 5% solution in the form of an eye drop, for a while after that.
I’m pretty sure that these medications were available over the counter, but were kept behind the pharmacy counter. Sometimes they had to order the ointment for me.
Definitely check this out with your Ophthalmologist- but it did work for me.
Please update us as to what your doctor says.

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@SusanEllen66

@covidstinks2023 no. It’s way more than dry eyes. When the doctor looked under my upper lid he knew right away what the problem was. My corneas, under my lids are very red, inflamed and sore. He explained that the inflammation caused my eyelids to become swollen and tight across my eyeball. So, every blink caused my lid to scratch my cornea. It was painful when it was flared up. He gave me non prescription contacts as “bandages”. When I wore them it gave me relief because they prevented the lids from touching the corneas when I blinked.
Now, years later I have dry eyes like everyone else. I understand the eye disease I had has gone away for now, however it can reappear at anytime.

Inflammation is the main problem I have in my entire body. It affects me in many ways and I’m sure this is just part of my problem.

Jump to this post

Have you seen a rheumatologist? I have Sjogren's and have experienced the problem you describe.

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