blepharospasms and Blepharitis

Posted by emer101 @emer101, Aug 26, 2011

I have had blepharospasms since 2004; the last two years I have had major vision problems with no answers except botox injections that do not completely stop the spasms; recently I’ve had a terrible time with my eyes and just found out today I have a condition called blepharitis. I am happy about it because it is the first time I’ve been given a name, reason, etc that is the blepharitis. I’d like to converse with other people who suffer with these conditions. Thank you.
Emer101

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I started having eye issues about 2 years ago. I went to several doctors before I felt I found one that I felt understood my conditions. The first doctor said I had “dry eye”. The 2nd said I had “Blephoratis”. The 3rd diagnosed by condition as Blephorspams and suggested I see a Neurological Movement Disorder Specialist. He diagnosed me has having “cervical dystonia” and dystonia of the eye which caused the Blephrospasms. I have had 3 visits with him (every 3 months) in which he injects Botox into my neck and eyelids. The treament has helped, but only provides partial relief and only for a few weeks. I am currently considering a 2nd opinion to see if another Neurological Movement Disorder Specialist woud suggest the same thing or to see if other treatments are available. I am trying to get into one of the Mayo clinics to get their opinion. What treatments are you receiving?

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I have generalized dystonia and blepharospasms plus, I have had the face surgery twice, this second time they put liters in my lids so I can open and close them, less shots too.

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@cowgirl

I started having eye issues about 2 years ago. I went to several doctors before I felt I found one that I felt understood my conditions. The first doctor said I had “dry eye”. The 2nd said I had “Blephoratis”. The 3rd diagnosed by condition as Blephorspams and suggested I see a Neurological Movement Disorder Specialist. He diagnosed me has having “cervical dystonia” and dystonia of the eye which caused the Blephrospasms. I have had 3 visits with him (every 3 months) in which he injects Botox into my neck and eyelids. The treament has helped, but only provides partial relief and only for a few weeks. I am currently considering a 2nd opinion to see if another Neurological Movement Disorder Specialist woud suggest the same thing or to see if other treatments are available. I am trying to get into one of the Mayo clinics to get their opinion. What treatments are you receiving?

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I TOO HAVE SEVERE EYE PROBLEMS MANY OF WHICH IS BLEPHERITIS, DRY EYE, AND EYELID INFECTION. I HAVE BEEN OPERATED ON TWICE IN 4 MONTHS TO NO AVAIL. I AM N CONTANT PAIN 24/7 AND MY CATARACTS WON’T BE REMOVED BECAUSE THE DRS WANT MY EYES IN BETTER CONDITION BUT HAVE NO WAY OF GETTING THEM THERE. DO ANY OF YOU HAVE ANY IDEAS. I WILL STAY IN JAX FOR AWHILE IF I CAN BE TREATED BUT NOT IN THE SAME WAY AS I HAVE BEEN TREATED IN GA. DROPS DROPS HOT CLOTHS, COLD CLOTHS. BEGINNING TO THIN AND KNOW WHY GA IN THE ON THE BOTTOM OF THE MEDICAL WORLD. THANK YOU-PEPPER.

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