Employment/Dating with Autoimmune Disorders (POTS, SFN, etc.)
I went to college going for dual majors in Doctorate of Pharmacy and B.S. in Biological Sciences, and was in a near fatal car accident six weeks before finishing my classes (March 2011) and ended up having to return home and have not been able to finish. I've worked in pharmacy since I was 16 (for 13 years). My symptoms got so bad, my last job was a clerk at a gas station at the end of my street, and I had to quit as I was unable to stand or stock the cooler without ending up in severe pain and struggling to walk after my 4-5 hour shifts. I've asked pharmacies if they could make a reasonable accommodation under the ADA, allowing me a chair since I have POTS and it's very taxing. I was told no by just about every company you can think of (the reasoning being that I would need to move around to different stations. I understand that, and don't know why I couldn't move a stool with me… It wouldn't get in the way of anyone else. I was even told that pharmacy isn't the field for me anymore… I'm heartbroken and extremely discouraged!). Has anyone experienced this same inability to find a job that can accommodate our disorders and needs? I've tried everything from pharmacies to ocean stare job lot, and no one is able to accommodate. I currently am signed up with every job recruiting website I can find as well as Google alerts for jobs. I found the perfect remote job close to me (I live between Albany, NY and the MA/NY border), but it requires that I live in MA and am licensed as a pharmacy technician in MA.
Does anyone have suggestions of ways to get an income? I've been denied SSDI (I need to apply again as my health has declined). What does everyone do for a job, or how do you make ends meet being unemployed? I just turned 35 and I'm living with my parents and completely reliant on them financially and often for support in doing daily tasks. All I want is to have a studio apartment, a job (any job) so I don't feel so useless (not to mention living the same day over and over again without any sense that things are going to change is awful! My depression and anxiety are peaking… I feel like I've lost my self-identity, my confidence, any pride or hope. Dating isn't really an option when one has nine cents in their bank account, lives with their parents, and can't do the active things/hobbies one used to [I have severe gastroparesis and am so worried if I ever do go on a date again, I'll end up having to excuse myself from dinner and get sick in the bathroom, unable to eat. As a second part, does anyone have any dating tips for those of us who are physically limited or have their condition exacerbated by just doing normal everyday things?]).
I thought after the two years of severe COVID-19 and the availability of vaccines (I've had all four shots), that I'd be able to get out there and work and date, but it didn't work out like that. I can't even imagine how I can work a job and go to all the doctor's appointments I have with specialists and all the tests I have to go in for. It's already like a job. Before COVID-19 when I had a home infusion nurse and all my specialists were arranged, I had weeks where I would have three different appointments in a day, and on multiple days in the same week. It's crazy!
Am I stuck with my parents, or does anyone have any suggestions? I'd really appreciate any ideas!
I hope you all are doing well and hanging in there and feeling the best possible!