Mayo Clinic Connect
Have any of you had an Electrophysiology Study before? Is there anything we should know before my husband agrees to having it done? Thank you in advance.
Hi @sistertwo. Noticed your concern about your husband's heart and wanted to give you something to work with in answer to your question. I have a personal interest as a person with hypertension and atrial fibrillation, but I guess my situation is not so uncertain that an Electrophysiology (EP) Study is necessary so far. I found a good basic article on the Mayo Clinic web site, and I thought you'd benefit from a little initial research: https://www.mayoclinic.org/tests-procedures/ep-study/about/pac-20384999. There is more on that web site if, when you are there, you search for "electrophysiology study." There also are some linked articles on the web site included here. How is your husband doing now (eight weeks after your earlier experience with his conditions)?
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Thank you, Martin. Sorry for the delay in thanking you.
My husband is doing quite well. Way better than before he got on meds! On Wednesday he goes in for a nuclear stress test. It seems to take a long time for each different appointment to take place, but that's how it goes. All is good. Thank you for asking. I hope you continue to do well, too.
Liked by Martin Jensen, Volunteer Mentor
Its been over a month since DH had a nuclear stress test that came back normal so they decided to do the Electrophysiology Study. He has lost weight, his blood pressure is good (with medications) and his oxygen levels have been very good now. He is waiting to get a Cpap, but when he had one years ago, he was allergic to the plastic and his VA provider is convinced he should be try the same kind again. He still has 120-135 bpm many times throughout the day while in resting mode. Do you think he should get a second opinion?
Hi @sistertwo. I'm always partial toward a second opinion, but it's important to be specific about the question you need answered. Are you and your significant other concerned about the Cpap the VA wants him to use? If so, the VA needs to be pressed on whether they have an alternative mask they can provide. It's possible they don't, so a second opinion would be necessary. If your main concern is also about his heart rate doubling from time during the day, is your medical advice now coming from a cardiologist or an electrophysiologist? If it's one OR the other, I'd think about consulting the other for the first time — for example, talk to the cardiologist about what the electrophysiologist has said and is recommending. Also take into consideration his other symptoms related to those times when his heart rate speeds up while at rest. Questions about that also need to be explored with your regular doctor as well as the other doctor giving you a first opinion or a new doctor providing a second opinion. Either way, be prepared when visiting another doctor to press for a full workup of his medical history and current symptoms so you are satisfied that the doctor has the full picture in view. Martin
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If there is a way to edit once posted, I wish I knew how. I made a mistake in my message when I said, "so they decided to do the Electrophysiology Study." They decided to NOT do the study. Big difference.
Your message made me realize I made a mistake, as it was decided he 'not' have the Electrophysiology Study.
I thank you very much for your insight. The VA started years ago getting him ready for some alternative mouth piece instead of a Cpap and he had dental work to prepare his mouth for it, but with different dentists, doctors, timing, etc it all went by the wayside and back to square one now. His only appt with the cardiologist was done over a video. She was in the Bronx and we are in MN. His heartrate is not been under 100 for over a week, and we check it several times each day. Since he doesn't have private insurance (only medicare) I don't think Mayo will take him, but I think we need a second opinion on meds and treatment and are willing to start from square one. Thank you for giving us food for thought as to what to prepare. Greatly appreciated.
@sistertwo you can edit after you post underneath onleft side is an editit button
Liked by Teresa, Volunteer Mentor
@sistertwo, I hope you'll call Mayo in Rochester and speak with them about getting advice, diagnosis, treatment, and acceptance of your health care insurance. You'll get top drawer treatment if you explain your husband's problem, your health insurance coverage, and how to take advantage of the Mayo Clinic facilities, including travel and housing options. Call Mayo Clinic in Minnesota, 507-538-3270, from
7 a.m. to 6 p.m. Central Standard Time, Monday through Friday. In preparation you may wish to explore Mayo web sites — for example https://www.mayoclinic.org/patient-visitor-guide/billing-insurance on what's accepted and how to schedule payments as well as https://tinyurl.com/mayofinassist for additional information on available assistance. Martin
Liked by Teresa, Volunteer Mentor, lioness, sistertwo
Martin, I did an online appointment request today and expect to hear from them within 3 business days or will follow up with a phone call. THANK YOU for the extra nudge we needed!
Liked by Teresa, Volunteer Mentor, Martin Jensen, Volunteer Mentor, lioness
Hello @sistertwo that is a good question about editing a post!
Yes, @lioness, is right. There is an edit button that will be there for 30 minutes after you post. So that is the time frame in which you can edit/correct any errors you see
Liked by lioness
Now that makes sense! I kept looking for the edit button and thought my vision was affected. LOL Thank you.
My DH heart rate started going higher so they upped his metroprolol and he's been doing well since. We postponed his mayo appt for 2019 allowing us time to get better insurance. In two weeks he'll be there for an EKG, Echocardiogram and Holter monitor. He's had the first two done before, but not the Holter. Is there anything we should know about it? Any Mayo tips are greatly appreciated. Thank you.
@sistertwo I have all those tests done yearly at Mayo in Rochester; I’ll be there next week. The Holter Monitor is an ekg that you wear for 24 hours. During this time you cannot shower or get the leads wet in any way. They give you a little portable monitor attached to the leads that you will need to carry around. They put it in a little pouch that you can carry either around your neck or shoulder. Then you just go about all your daily activities as usual. In 24 hours you take the leads off and return the monitor for evaluation. They do give you a small journal asking that you take notes on your activities and any symptoms you may feel. You turn that in with the monitor.
I have pretty sensitive skin and always develop an itchy red rash from the heart monitor patches so I always bring along hydrocortisone cream for that after the patches are removed.
Hopefully this is helpful to you. Feel free to ask any further questions. Best wishes for good results.
Hello Everyone I was informed today that I will need an Electrophysiology Test because an area in my Atrium is firing 150 bpm and my lower chamber is at 80 bpm thus causing complete heart block. I have been having constant palpitations. I was also told that the Ablation i had before was burned and that these episodes now are slower than atrial flutter. She also used the words AV Nodes and Symptomatic Atrial Tachycardia. They will try to find an area thats causing the short circuit and ablate. I am on Xarelto 20mg for DVT and the Rythmol 225 mg 3* daily is not working. Has anyone else experience this and can comment deeper on what and why this may be happening. Doc explained it but I felt so overwhelmed with all that info. I could maybe process it better reading some of the responses from you guys that can maybe relate to these issues. Feeling nervous and thanks for any feed back.
@ilnapenny Hello… I'm afraid I can't explain what is happening in your particular situation but I have been dealing with Afib and atrial flutter for decades and understand your nervousness and frustration. I think the heart's electrical system is really complicated for mere mortals like us and I have struggled as well to understand exactly what my EPs are telling me and what it all means. The best thing you can do is to do a little research online (I typed 'heart block' in google and very quickly got a basic understanding of what it is). I am sure I have type 1 heart block occasionally but it does not appear to be a problem. It sounds like they plan another ablation for you once they figure out exactly where to go and the test will certainly help them do that. I was on propafenone as well for many years until it stopped working — they tend to do that. I also have had two ablations and am considering a third one. I could potentially go for cardioversions every time I get a sustained episode since the other two options presented did not appeal to me. It is all very overwhelming and it is important that you take care of your overall health (diet, sleep, some exercise) and try and stay strong. It also helps to have someone to help you deal with all this. The only thing to watch for in researching all this is that it can get overwhelming and confusing in a hurry. A lot of the material online may not be specific to your situation and in language that is not very friendly. I hope this helps in some way. All the best. Mary
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