Mayo Clinic Connect
How high does creatinine get before dialysis is usually needed?
@transplant2017 Welcome to Mayo Connect! You ask a very important question. There are several values that are considered by your medical team related to kidney function and treatments. While your creatinine value is higher than normal, your eGFR of 24% is showing your kidneys continue to function. Dislysis is usually first discussed around 20%, and dialysis often starts when function drops to 10%. High creatinine can be caused by infection, or high protein intake, dehydration, or the fact your kidneys are not functioning optimally. Your medical team looks at trends in your lab results, not necessarily a single lab value. Have you discussed your concern with them, yet? What have they conveyed to you?
I notice your name indicates that perhaps you had a transplant in 2017? If so, what organ was transplanted? If it was a kidney, what was the cause of your native kidneys failing?
Please check back in and let me know a bit more of your story.
Liked by Lori, Volunteer Mentor
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I had a liver transplant and suffered an acute kidney injury during transplant. I was at a pretty steady EGFR 36 until the last few months when the EGFR started dropping and the creatinine started increasing. I have been told it is likely the numbers will continue to decline over the next year.
@transplant2017 Well, that sounds like quite the experience! I will not pry but hope there was some kind of reckoning when the injury came to light. I hope the injury was not to both kidneys. To ease the burden on your kidneys, you may ask your team about switching to a kidney-friendly diet [low protein, low potassium, low phosphorus] now. Some people have been able to help reverse a downward trend in kidney function, this way. @kamama94 who posts in this group, did a lot of research on food plans for kidney patients. By modifying his food plan and lifestyle, my husband was able to ward off dialysis for 5 years, so I'll bet you can tackle this, too!
I was diagnosed with ESRD nine years ago. My creatinine has been steadily between 3.5 and 4.5 for the past nine years. I have so far been able to avoid dialysis. I watch my diet very carefully. All the usual stuff: low protein, low potassium, low salt etc. I was taking a phosphorus binder initially but stopped that after my first year and that doesn't seem to be a problem. I fence competitively in national level tournaments so I do get a lot of exercise. I am 74 years old and have been very careful about COVID but finally will be able to get a vaccination in April. Vaccine appointments in New York City are hard to come by. I can't tell you exactly what I'm doing that has allowed me to avoid dialysis (likewise I've rejected transplant offers), but I can say that it can be done. Don't give up!
Liked by Ginger, Volunteer Mentor
Congratulations on your success in meeting your goal to stay off dialysis. I was extremely vigilant about my lifestyle choices and despite adhering to a nearly all vegetarian diet, exercising regularly and watching my labs I was powerless to change the course of my kidney disease. Through no fault of my own Polycystic Kidney Disease eventually overtook my kidney function, displaced nearly every major organ in my body and threatened to take my life. Your story certainly shows that a great deal can be achieved thought lifestyle choices but I imagine you'll agree not everyone's diseases will respond in the same way.
Again, congrats on your success!
Liked by Ginger, Volunteer Mentor, m1rmiller
Thanks for your kind words! Indeed, I was told that Polycystic is almost impossible to fight. I do have multiple cysts from the damage done by whatever it was that attacked my kidneys, but I have been told that it's definitely not Polycystic. I do have a friend who inherited Polycystic (two others in her family also had it) and had a kidney transplant. I guess there is always something that we can be thankful for. I try to focus on living each day as fully as I can.
Your overwhelming success keeping ESRD at bay through a disciplined lifestyle is a story worth sharing! People can learn a lot from your achievements. Your lifestyle offers hope to many who need it so I'm so happy you're sharing with everyone.
When determination and willpower aren't enough to combat kidney failure, dialysis or transplant can offer a long happy life to those who need it. Even post transplant patients like me need encouraging examples like yours!
I appreciate you lighting a fire in me today! I am going to put on a batch of homemade minestrone and jump on the treadmill in your honor today! 😄
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