I suffer from full body edema . Doctors can’t find a reason and have no way of treating this. Does anyone know something about this?
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Hello Joseph @granpsjoe, Welcome to Connect. I have lymphedema in my legs with the right leg the worst and have to wear compression socks daily to help. I can't imagine having edema in my whole body and how difficult it must be for you. I did find some information on the condition that may help you learn more.
"Can edema affect the whole body?
It often affects the hands, arms, feet, ankles, and legs, but it can occur in any part of the body. In some cases, edema can be severe and affect the whole body. When that happens, the skin and its underlying tissues will retain salt and water, causing swelling all over the body."
— Anasarca: Causes, Edema, and Treatment: https://www.healthline.com/health/anasarca
If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.
Have you considered seeking help at a major teaching hospital or health facility like Mayo Clinic?
Thank you so much for your response. I have edema in the feet for fifteen years. I wear compression stockings daily, three years ago I underwent a total knee replacement and I believe that started the ball rolling. I have gained about seventy pounds. My family doctor sent me for a series of tests. I was checked by a cardiologist, urologist, nephrologist and a vascular surgeon. In summary they said that my blood tests are excellent, my heart is normal and lungs are clear. Liver and kidney functions normal. That apologized and said they are sorry but they seeno reason for the edema. I will have to live with it (and I suppose keep buying larger clothes if it continues. I have tried diuretics to no avail.
If I would know that the Mayo clinic could help me i would make all efforts to come. I live in Israel and planning such a trip requires much preparation and money. There is no purpose going through it all just to hear them say we’re sorry but we can’t help you.
At least I now know the medical term for it. The hardest part is bending over for my socks ad shoes. When George Burns turned ninety he was asked if he felt different and he said when I bend over to tie my shoes I think what else can I do while I’m down here already……..
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I know it's probably even harder to deal with the edema when you've had a large weight gain. I finally was able to get my weight under control this past year and half using intermittent fasting and a low carb healthy fat diet. If you think it's something you might want to know more about there is a discussion on Connect — Low-carb healthy fat living. Intermittent fasting. What’s your why?: https://connect.mayoclinic.org/discussion/low-carb-healthy-fat-living-intermittent-fasting-whats-your-why/
Here's a link that shows the other discussions available in the LCHF Living & Intermittent Fasting group — https://connect.mayoclinic.org/group/lchf-living-intermittent-fasting/
Thank you again
I went to the head dietician of our health fund. I wrote down everything that went into my mouth for the whole week before my appointment. She said you’re doing great, only 1950 calories a day so you can eat 300 more. I pointed to my body and asked what is all of this so she answered that it is not from good rather a medical condition. It seems dieting will not help
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