How do you deal with dry eyes?

Posted by maryy @maryy, Jun 10, 2019

I have dry eyes due to sjogren's syndrome. Does anyone else deal with dry eyes?

Interested in more discussions like this? Go to the Eye Conditions Support Group.

I also have dry eyes (keratitis sicca) with punctata (small dry dots on the cornea). This was probably caused by a corneal debridement procedure to get rid of map dot fingerprint dystrophy.

I live in the Netherlands so the brandnames I will mention might not be available or marketed under other brandnames somewhere else:

- for daytime: Liposic Gel and Hylo Night ointment (the latter will give you blurred vision for a couple of minutes but it is worth it, the first one is a gel and does not blur vision, but alone liposic will not be sufficient for the day)

- for the night: duratears. This will blur the vision for a longer period, but you will be asleep anyway.

These gels and ointments helped much better than artificial tears and drops.

I do keep Hylan eyedrops near me though, in case I need to have clear vision suddenly.

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Profile picture for wisfloj @wisfloj

My tip re: Bruder mask for MGD. I order a cheaper brand that they make from Amazon, it is only nine dollars and called Thermalon. I also cut off the straps so I can lay back and press/mold the beads right onto every bit of my eyelid. The last Eye Dr. I went to seemed quite impressed and agreed this was a good method and kind of implied she would be passing it on to her patients. When they put one on me at the office, strapping it to the back of my head, it seemed to mainly heat my cheekbones more than anything because the beads tend to settle downwards, I prefer to lay almost flat on my couch. I use this one to two times per day, but definitely not a cure all. Plus omega-3, plus drops, plus blink exercises…

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Can you share your blink routine?
I would do anything to help with the dry eyes!

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Profile picture for dunbun13 @dunbun13

Can you share your blink routine?
I would do anything to help with the dry eyes!

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Thank you @dunbun13. Would you please share a little more about the mask you get from Amazon? Thermalon....correct. I have such bad dry eyes, My ophthalmologist thinks the only thing that will really help me is to live in a rainforest

May you have comfort and ease.
Chris

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I use eye drops and ornament. Eyedrops during the day, and I meant at night. I’ve also had my tear ducts cauterized, and that has helped dramatically. I wish you the very best luck dealing with dry eyes. I also have dry mouth and I have found out it helps to swish water in my mouth before I swallow. I do think both of these are connected.

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Profile picture for minnesota10 @minnesota10

I use eye drops and ornament. Eyedrops during the day, and I meant at night. I’ve also had my tear ducts cauterized, and that has helped dramatically. I wish you the very best luck dealing with dry eyes. I also have dry mouth and I have found out it helps to swish water in my mouth before I swallow. I do think both of these are connected.

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Hello, dry mouth and dry eyes issues are not nice at all. The name for this disorder is Sjogren disease. Yiu need to have a bloodtest ANA.
Hope this helps. There are special eye drops and a toothpaste called biotene, as well as a mouthwash for at night with the same name.

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Profile picture for charlotte64 @charlotte64

Hello, dry mouth and dry eyes issues are not nice at all. The name for this disorder is Sjogren disease. Yiu need to have a bloodtest ANA.
Hope this helps. There are special eye drops and a toothpaste called biotene, as well as a mouthwash for at night with the same name.

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There’s another good toothpaste Salivea. For my eyes use Oasis eye drops. So far my eyes at night aren’t bad but I’ve been advised to use a gel ointment when they do bother me. All eye drops need to be preservative free.
I take oral hyaluronic acid and noticed when I skip it my eyes are drier. There is very little research on this though, just my personal experience.

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My drugist recommend to try preservative free drops called hydrasense and they are helping me more than the drops I was taking before

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Profile picture for laurasb @laurasb

I have dry eyes that result in filamentary keratitis in one eye. I have tried lots of things. Punctal plugs worked really well for me for quite a few years. But now, due to aging, they don’t stay in. What seems to be the most effective right now are the following things:

- using a preservative free eye ointment (like Systane Nighttime) before bed EVERY single night. Don’t ever skip a night

- warm compress twice a day for ten minutes (I use a fabric bag filled with flax seed. But you can buy them. Some people have suggested the Bruder mask I think )

- preservative free eye drops (Retaine MGD, Oasis Tears Plus, Refresh Optive Mega-3)through the day EVERY day (don’t slack off).

-Wrap around goggles when exposing eyes to dry and or moving air (in the car with the heater or air conditioning on, riding a bike, outside if it is windy or dusty ). I wear glasses so I got a pair of prescription wrap around goggles (Wiley x brand) from my optician.

So doing these few things HABITUALLY every single day has helped quite a bit.

Good luck and keep trying things !!

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I have very dry eyes and 2 bouts of filamentary keratitis-in both eyes both Xs. Both Xs I responded to mucomyst, or acetylcysteine
eye drops 4 Xs a day. It’s costly, and has to be obtained from a compounding Rx. It can run close to $100 a bottle, and is only good for 30 days. But it worked both times. Good luck. Eye pain is so hard to treat. About all that helps with that searing, burning pain are opioids, but health care providers are so afraid to recommend it. Sigh. FYI, I tried Restasis, but I got no relief from it.

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I take oral hyaluronic acid. You won’t find much research on it but if I miss a dose my eyes are drier than normal.

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Wearing a heated eye mask 2-3x daily for 10 min. Assists with gland moisture.

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