Dry eyes

Posted by maryy @maryy, Jun 10, 2019

I have dry eyes due to sjogren’s syndrome. Does anyone else deal with dry eyes?

Very interesting to hear assorted methods: warm teabags; warm washcloths; eyepads in microwave. 🙂

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Warm washcloth doesn’t hold heat long enough. Microwaves vary but using mine requires 26 seconds to heat my Thermalon mask, I initially start with a folded handkerchief between my eyelids and the mask and then when I feel I can remove the handkerchief I do so quickly and get the mask right back on my lids. About 6 to 8 minutes later I feel it is room temperature so I remove it. Afterwards I do Eye blinks – I was told to squeeze my eyelids tight for five seconds open and repeat till you get to 10. I recently discovered Dr.eyehealth on YouTube -he’s a very young and energetic guy and has a video regarding at home dry eye treatments.

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To clarify my previous post. Bruder makes the Thermalon mask, says so on the attached label! 'Bruder Healthcare Company'

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Interesting. Do you heat the mask in microwave on high? or lower?
14 seconds is enough for my Bruder. Also, do you use drops or other methods? I will look at your reference of Dr. eyehealth, but would prefer if I did not need drops as they used to sting a lot. Now I just use the tiniest drop. But, sometimes, out of nowhere, I need them and have to apply quickly. As you know, sometimes a breeze or air conditioner in auto can be problematic.

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My microwave set on high, which is why I use a cloth under it until it cools down, (directions say up to 30 seconds)
Definitely drops, various brands over the years, no cure that’s for sure! But feels good for 60 seconds! LOL

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@tennisgolf

Yes, Bruder seems a bit pricey, but seems to work. Also, when I gently washed it as directed, somehow the properties seemed to change a little, so I always test the heat carefully before applying. Dr. also suggested "OCuSOFT Lid Scrub plus Platinum" eyelid cleanser. But I believe it is because he said I had some blepheritis (which was a surprise to me). However, whenever I used it, it stung my eyes, so I discontinued it. (BTW, is it OK to use brand names? or should we not do so?).

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@tennisgolf I use just baby soap on my eyelids it makes them feel a lot better . I dip a swab in the soap and clean them then rinse makes a difference . I'm going to look for the Thermalon for the eyes . I know a warm washcloth feels good . Thanks

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I have severe dry and two optic nueritis incidents. The dry eye I treat with serum eye drops and lots of preservative-free eye drops continually. I also have Sjogrens…

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What are "serum" eye drops?

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Oh I’ve wondered about serum drops effectiveness, I have meibomium gland dysfunction, MGD, type of dry eye. Pricey I bet!

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@lioness

@ashby1947 I have dry eyes,glucoma and macular degeneration. The eye Dr. gave me samples of Systein compltere its the newest one in Systien it really works and I have cut down on the number of drops from 6 a day to only 3 .

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Hi there, Peach here. I also have macular, gloucoma and dry eyes plus Sjogrens. I have used Xiidra. Still do. But it really does not help me. I still continue to use it because I am grasping at straws to hopefully keep whatever sight I can because I am legally blind and continue to lose more sight as time goes bye. Just purchased a new keyboard with very large letters and enhanced with a white background and black lettering. It is a big difference so I am sharing this for all. (As well as changing the font to a higher degree). By the way I am on Lumigan, Alphagan, Xiidra or The other one (forget the name} as well as much much Systane and Systane Ultra. I guess my nickname should be hope. So there we are people continue the big fight. Love, love, love.

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@peach414144

Hi there, Peach here. I also have macular, gloucoma and dry eyes plus Sjogrens. I have used Xiidra. Still do. But it really does not help me. I still continue to use it because I am grasping at straws to hopefully keep whatever sight I can because I am legally blind and continue to lose more sight as time goes bye. Just purchased a new keyboard with very large letters and enhanced with a white background and black lettering. It is a big difference so I am sharing this for all. (As well as changing the font to a higher degree). By the way I am on Lumigan, Alphagan, Xiidra or The other one (forget the name} as well as much much Systane and Systane Ultra. I guess my nickname should be hope. So there we are people continue the big fight. Love, love, love.

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"Good evening" @peach414144, I feel genuinely saddened by your eye problems on top of your other significant medical challenges. My many years in dry climates with very low humidity led me to finally face the music and take care of my eyes. Years ago, Restasis was the first breakthrough medication other than drops and ointments.

Now there is Xiidra which has helped with everything but my pocketbook and that includes relief from dry eye syndrome in much less time than other options. Have you tried the hot eyelid compresses that you place on your eyes to keep the oil in the meibomian gland from hardening? These glands secrete oil onto the surface of the eyes with each blink to keep the corneas well lubricated.

Do you wear sunglasses for severe sensitivity? They sure help. And have you had lipiflow treatments? I think they kept those glands from drying up completely.

And finally, my Ophthalmologist told me that the only sure-fire way to remove dry eye threats was to live in a rain forest. So…here I am in a place where the humidity is at least in the double digits. I do notice that the ground is covered with white. Hmmmmmm?????

Chris

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Something you might add to your regime is Refresh Celluvisc, which my Mayo ompthomologist recommended, along with Theratears Nutrition and the warm moist compresses. I tried both Restasis and Xiidra and the Celluvisc has worked just as well, maybe better, for a fraction of the price.

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