Dry eyes

Posted by maryy @maryy, Jun 10, 2019

I have dry eyes due to sjogren’s syndrome. Does anyone else deal with dry eyes?

Liked by sue225

@peach414144

Dear Chris Trout, thank you for your suggestions. Yes Dr. McNair has told me to do the hot compresses and they do feel so very good. Especially the heat. I do wear strong sun glasses quite often. Here in Florida the humidity is pretty good. I still worry about the pus that comes out from the eye nearest the nose. Doctor says just continue to wash it away. Also the red blood lines in the eyes. To me it is not acceptable. Also, here is a big question. No one wants to address the issue of removing eye plugs from the eyes. So called permanent ones. My left eye has something within it that moves around and this is very painful and I think it is the eye plug pushed into the eye. Trying to smile somehow!

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@peach414144 Im so sorry your having the pus issue . My Opthamologist told me to rub from the corner of my eye to outside this releases the oil in the glands. Have you thought of changing to another Opthamologist? I don,t think that pus should be coming out of your eye that sounds like an infection. You can get eye antibiotics for this ,my girlfriend had this from a cataract surgery with drops it cleared up

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@lioness

@peach414144 Im so sorry your having the pus issue . My Opthamologist told me to rub from the corner of my eye to outside this releases the oil in the glands. Have you thought of changing to another Opthamologist? I don,t think that pus should be coming out of your eye that sounds like an infection. You can get eye antibiotics for this ,my girlfriend had this from a cataract surgery with drops it cleared up

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Tjanmk you for your concern. I have seen five opthamalagist's. All sort of shifty. They have their technologists take the tests, The MD will go over them but in the end they all say nothing can be done. They all say do not worry about the pus that is natural. ??? They are very, very secretive. When I win the lottery perhaps then I will truly find out. So sad, the depression takes over many times. This is a fight I work with over and again and then I find a way to spoil myself with as much love and care one can do for their selves. As the world turns. Will there be a full moon tonight? Perhaps I will howl!!!

Liked by lioness

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@peach414144

Tjanmk you for your concern. I have seen five opthamalagist's. All sort of shifty. They have their technologists take the tests, The MD will go over them but in the end they all say nothing can be done. They all say do not worry about the pus that is natural. ??? They are very, very secretive. When I win the lottery perhaps then I will truly find out. So sad, the depression takes over many times. This is a fight I work with over and again and then I find a way to spoil myself with as much love and care one can do for their selves. As the world turns. Will there be a full moon tonight? Perhaps I will howl!!!

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@peach414144 Im so happy to hear you are still keeping a sense of humor that is great . Im sorry to hear about your eyes You can howl all you want we deserve to do what ever we want except rob a bank lol It is what it is so just keep babying yourself with massages bubble baths and whatever your drink is . Life does go on maybe not as we wish it to be but it does . Sounds like your doing the best you can . take care have a good day . Theres always hope some days we cant see it but its there . ???

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@lioness

@peach414144 Im so happy to hear you are still keeping a sense of humor that is great . Im sorry to hear about your eyes You can howl all you want we deserve to do what ever we want except rob a bank lol It is what it is so just keep babying yourself with massages bubble baths and whatever your drink is . Life does go on maybe not as we wish it to be but it does . Sounds like your doing the best you can . take care have a good day . Theres always hope some days we cant see it but its there . ???

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Thank you. It is good to sometimes complain but then do the opposite, laugh, turn on the radio and dance, sing, drink an orangeade, laugh at nothing. Get your mind into a better place. Good for a while then get out the crayons and color something or play a crazy solitaire game on the internet or tablet. Then walk outside and talk to the sun or the rain while looking a the flowers. Or the birds. Be crazy for a while as the dog or cat watches you then talk to them.

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@peach414144

Thank you. It is good to sometimes complain but then do the opposite, laugh, turn on the radio and dance, sing, drink an orangeade, laugh at nothing. Get your mind into a better place. Good for a while then get out the crayons and color something or play a crazy solitaire game on the internet or tablet. Then walk outside and talk to the sun or the rain while looking a the flowers. Or the birds. Be crazy for a while as the dog or cat watches you then talk to them.

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LOVE IT, LOVE IT LOVE IT, keep up the good words of encouragement,

Liked by lioness, Ellen

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@peach414144

Thank you. It is good to sometimes complain but then do the opposite, laugh, turn on the radio and dance, sing, drink an orangeade, laugh at nothing. Get your mind into a better place. Good for a while then get out the crayons and color something or play a crazy solitaire game on the internet or tablet. Then walk outside and talk to the sun or the rain while looking a the flowers. Or the birds. Be crazy for a while as the dog or cat watches you then talk to them.

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@peach414144 Sounds like a well adjusted person with all your problems and thats the right attitude love it and you for your inspiration for us all . Thanks peach

Liked by Lisa Lucier

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Yes. I have SS and severe dry eyes. I do serum eye drops

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@peach414144

Tjanmk you for your concern. I have seen five opthamalagist's. All sort of shifty. They have their technologists take the tests, The MD will go over them but in the end they all say nothing can be done. They all say do not worry about the pus that is natural. ??? They are very, very secretive. When I win the lottery perhaps then I will truly find out. So sad, the depression takes over many times. This is a fight I work with over and again and then I find a way to spoil myself with as much love and care one can do for their selves. As the world turns. Will there be a full moon tonight? Perhaps I will howl!!!

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Five ophthalmologists is a lot, @peach414144. So, at this point, the puss you talked about coming from your eye is not being treated?

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I’m using eye serum which is drawn and made at mayo Pharm in Scottsdale it is helping better than any over the counter drops.

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@lisalucier

Five ophthalmologists is a lot, @peach414144. So, at this point, the puss you talked about coming from your eye is not being treated?

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I@peach414144 tryanoyhrt opyhamalpgist pus isn't suppose to come out of your eyes

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@lioness

I@peach414144 tryanoyhrt opyhamalpgist pus isn't suppose to come out of your eyes

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Hi Lionness: I really do not think the doctors have the time to care especially because when I am waiting for my turn to be seen it becomes apparent: They are seeing about twenty or more patients an hour and in between this the interruptions, calls, etc. I might be wrong but my interpretation as to the quality of the doctors knowledge is only as good as their training (as well as their experience and attitude). And is their training as good as it should be? And is there any kind of enough experimental research going on in this area? What about the many persons who are slowly going blind. Also quite important: The hospitals here do not have an attending opthamalogists or on call. (Example: A patient arrives at the emergency room on a Saturday with a slashed eyeball in great pain and the hospital sends the patient away (without doing a thing for the patient) to see their opthamologist on Monday. (I know this is true as I was there). I wonder, is this the way it is handled all over the country? I meet with other elder's and as we talk together they talk of their problems with their eyes and not having the problems attended to. Waiting many months or more to remove cataracts, etc. I do care for myself and the other persons in need but when I see how really bad it is in other countries I sort of slow down and stop. Thinking of you, Peach

Liked by Lisa Lucier

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@peach414144

Hi Lionness: I really do not think the doctors have the time to care especially because when I am waiting for my turn to be seen it becomes apparent: They are seeing about twenty or more patients an hour and in between this the interruptions, calls, etc. I might be wrong but my interpretation as to the quality of the doctors knowledge is only as good as their training (as well as their experience and attitude). And is their training as good as it should be? And is there any kind of enough experimental research going on in this area? What about the many persons who are slowly going blind. Also quite important: The hospitals here do not have an attending opthamalogists or on call. (Example: A patient arrives at the emergency room on a Saturday with a slashed eyeball in great pain and the hospital sends the patient away (without doing a thing for the patient) to see their opthamologist on Monday. (I know this is true as I was there). I wonder, is this the way it is handled all over the country? I meet with other elder's and as we talk together they talk of their problems with their eyes and not having the problems attended to. Waiting many months or more to remove cataracts, etc. I do care for myself and the other persons in need but when I see how really bad it is in other countries I sort of slow down and stop. Thinking of you, Peach

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@peach414144 The Dr. should be able to give you an antibiotic for this pus or infection. I think just a GP can but even a optemitrist can is there anyway you can even ask you insurance to recommend someone for you? I hate to hear about your problem with pus when it can be taken care of . Better days ahead fingers crossed for you

Liked by Lisa Lucier

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@wisfloj

My tip re: Bruder mask for MGD. I order a cheaper brand that they make from Amazon, it is only nine dollars and called Thermalon. I also cut off the straps so I can lay back and press/mold the beads right onto every bit of my eyelid. The last Eye Dr. I went to seemed quite impressed and agreed this was a good method and kind of implied she would be passing it on to her patients. When they put one on me at the office, strapping it to the back of my head, it seemed to mainly heat my cheekbones more than anything because the beads tend to settle downwards, I prefer to lay almost flat on my couch. I use this one to two times per day, but definitely not a cure all. Plus omega-3, plus drops, plus blink exercises…

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Thanks for mentioning eye blink exercises. Sometimes when I do not have dry eye med with me and I get a "dry eye" attack (?) I resort to eye blinks and feel they help when in a jam (excessive tearing). It can take up to 5/ 10 minutes before I can open/use my eyes again. Dr. said I need to take drops EVERY DAY – SEVERAL TIMES PERHAPS to prevent this excessive tearing. My approach w/ meds is usually 'less is more' – but I think I am wrong about that. My situation is improved since I use drops (no preservatives) daily now. But if I use too many drops they sting and it takes several minutes to clear up. Lots of management with dry eye. QUESTION: DR. SAYS USE AS MANY DROPS AS I WANT. WOULDN'T THIS SOMEHOW CAUSE PERMANENT DAMAGE TO EYES? DO THE EYES BECOME DEPENDENT ON DROPS?

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@tennisgolf

Thanks for mentioning eye blink exercises. Sometimes when I do not have dry eye med with me and I get a "dry eye" attack (?) I resort to eye blinks and feel they help when in a jam (excessive tearing). It can take up to 5/ 10 minutes before I can open/use my eyes again. Dr. said I need to take drops EVERY DAY – SEVERAL TIMES PERHAPS to prevent this excessive tearing. My approach w/ meds is usually 'less is more' – but I think I am wrong about that. My situation is improved since I use drops (no preservatives) daily now. But if I use too many drops they sting and it takes several minutes to clear up. Lots of management with dry eye. QUESTION: DR. SAYS USE AS MANY DROPS AS I WANT. WOULDN'T THIS SOMEHOW CAUSE PERMANENT DAMAGE TO EYES? DO THE EYES BECOME DEPENDENT ON DROPS?

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@tennisgolf As someone with dry eyes I really enjoyed your posts. Yes, my eye doctor says the same thing, use as many drops as you need. I doubt that there is any dependence on them but you could ask your doctor about that. Dry eyes are the most painful, irritating problems. I use the new lid wipes as well as the no-preservative drops as well.

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@sue225

Yes, I have been dealing with dry eyes for 40 years! I use Allergan's Refresh Celluvisc preservative free eye drops (artificial tears) many times during the day and night time ointment at night. Years ago, I tried Restasis which I discontinued because of severe stinging and burning. Just had an appointment with my over 80 now retiring ophthalmologist who recommended trying Xiidra (lifitegrast ophthalmic solution) which recently became available in Canada. Was just about to start a discussion group to get feedback on Xiidra.

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Good afternoon @sue225, I know this is an older post. However, I did not see it because I wasn't monitoring eyes at that time. I have now been on Xiidra for over a year. I guess I will find out how effective it has been…..I go today for my annual check-up. I do find that keeping these products in the refrigerator helps eliminate the stinging and burning upon application. I am also checking in on the Osteoporosis group discussion. Thanks for your participation. It is so important.

May you have happiness and the causes of happiness.

Chris

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