Dry eyes

Posted by maryy @maryy, Jun 10, 2019

I have dry eyes due to sjogren’s syndrome. Does anyone else deal with dry eyes?

Thank you @jeanmary, yes, I do the compresses. I will ask my Doctor about the Refresh Celluvisc and Theratears Nutrition? Very interesting. Have a day of joy. Chris.

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@peach414144

Hi there, Peach here. I also have macular, gloucoma and dry eyes plus Sjogrens. I have used Xiidra. Still do. But it really does not help me. I still continue to use it because I am grasping at straws to hopefully keep whatever sight I can because I am legally blind and continue to lose more sight as time goes bye. Just purchased a new keyboard with very large letters and enhanced with a white background and black lettering. It is a big difference so I am sharing this for all. (As well as changing the font to a higher degree). By the way I am on Lumigan, Alphagan, Xiidra or The other one (forget the name} as well as much much Systane and Systane Ultra. I guess my nickname should be hope. So there we are people continue the big fight. Love, love, love.

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She told me she cant use hers now just bought a new one , so thanks for sharing . My eyes arent that bad yet but I am going to ask Dr about xiidra see what she says. One thing I do is use a eye wash in morning and evening to wash the pollution, burning out of my eyes. Have a good day

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@artscaping

"Good evening" @peach414144, I feel genuinely saddened by your eye problems on top of your other significant medical challenges. My many years in dry climates with very low humidity led me to finally face the music and take care of my eyes. Years ago, Restasis was the first breakthrough medication other than drops and ointments.

Now there is Xiidra which has helped with everything but my pocketbook and that includes relief from dry eye syndrome in much less time than other options. Have you tried the hot eyelid compresses that you place on your eyes to keep the oil in the meibomian gland from hardening? These glands secrete oil onto the surface of the eyes with each blink to keep the corneas well lubricated.

Do you wear sunglasses for severe sensitivity? They sure help. And have you had lipiflow treatments? I think they kept those glands from drying up completely.

And finally, my Ophthalmologist told me that the only sure-fire way to remove dry eye threats was to live in a rain forest. So…here I am in a place where the humidity is at least in the double digits. I do notice that the ground is covered with white. Hmmmmmm?????

Chris

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@artscaping Hi the white is probably dew from the humidity. I had this always in Pa. As Peach I have M.D. Glucoma .Sjorgans the hot compresses also help and sunglasses . I have indoor and outdoor sunglasses .

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I was given xiidra samples, blurred my vision for an hour and a half so I didn’t stick with them. There is a good assistance program where you may be eligible to get them for free. I believe the incomes amount was $60,000 or less. That’s all they asked, not other financial information.

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@lioness

@artscaping Hi the white is probably dew from the humidity. I had this always in Pa. As Peach I have M.D. Glucoma .Sjorgans the hot compresses also help and sunglasses . I have indoor and outdoor sunglasses .

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I have Gloucoma, Macular and Sjogrens but I also have pus coming from the part nearest to the nose. The doctor says not to worry just keep washing it away. The hospitals here where I live have nothing to do with the Opthamologists. Is this the same elsewhere?

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@artscaping

"Good evening" @peach414144, I feel genuinely saddened by your eye problems on top of your other significant medical challenges. My many years in dry climates with very low humidity led me to finally face the music and take care of my eyes. Years ago, Restasis was the first breakthrough medication other than drops and ointments.

Now there is Xiidra which has helped with everything but my pocketbook and that includes relief from dry eye syndrome in much less time than other options. Have you tried the hot eyelid compresses that you place on your eyes to keep the oil in the meibomian gland from hardening? These glands secrete oil onto the surface of the eyes with each blink to keep the corneas well lubricated.

Do you wear sunglasses for severe sensitivity? They sure help. And have you had lipiflow treatments? I think they kept those glands from drying up completely.

And finally, my Ophthalmologist told me that the only sure-fire way to remove dry eye threats was to live in a rain forest. So…here I am in a place where the humidity is at least in the double digits. I do notice that the ground is covered with white. Hmmmmmm?????

Chris

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Dear Chris Trout, thank you for your suggestions. Yes Dr. McNair has told me to do the hot compresses and they do feel so very good. Especially the heat. I do wear strong sun glasses quite often. Here in Florida the humidity is pretty good. I still worry about the pus that comes out from the eye nearest the nose. Doctor says just continue to wash it away. Also the red blood lines in the eyes. To me it is not acceptable. Also, here is a big question. No one wants to address the issue of removing eye plugs from the eyes. So called permanent ones. My left eye has something within it that moves around and this is very painful and I think it is the eye plug pushed into the eye. Trying to smile somehow!

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@peach414144

Dear Chris Trout, thank you for your suggestions. Yes Dr. McNair has told me to do the hot compresses and they do feel so very good. Especially the heat. I do wear strong sun glasses quite often. Here in Florida the humidity is pretty good. I still worry about the pus that comes out from the eye nearest the nose. Doctor says just continue to wash it away. Also the red blood lines in the eyes. To me it is not acceptable. Also, here is a big question. No one wants to address the issue of removing eye plugs from the eyes. So called permanent ones. My left eye has something within it that moves around and this is very painful and I think it is the eye plug pushed into the eye. Trying to smile somehow!

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@peach414144 Im so sorry your having the pus issue . My Opthamologist told me to rub from the corner of my eye to outside this releases the oil in the glands. Have you thought of changing to another Opthamologist? I don,t think that pus should be coming out of your eye that sounds like an infection. You can get eye antibiotics for this ,my girlfriend had this from a cataract surgery with drops it cleared up

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@lioness

@peach414144 Im so sorry your having the pus issue . My Opthamologist told me to rub from the corner of my eye to outside this releases the oil in the glands. Have you thought of changing to another Opthamologist? I don,t think that pus should be coming out of your eye that sounds like an infection. You can get eye antibiotics for this ,my girlfriend had this from a cataract surgery with drops it cleared up

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Tjanmk you for your concern. I have seen five opthamalagist's. All sort of shifty. They have their technologists take the tests, The MD will go over them but in the end they all say nothing can be done. They all say do not worry about the pus that is natural. ??? They are very, very secretive. When I win the lottery perhaps then I will truly find out. So sad, the depression takes over many times. This is a fight I work with over and again and then I find a way to spoil myself with as much love and care one can do for their selves. As the world turns. Will there be a full moon tonight? Perhaps I will howl!!!

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@peach414144

Tjanmk you for your concern. I have seen five opthamalagist's. All sort of shifty. They have their technologists take the tests, The MD will go over them but in the end they all say nothing can be done. They all say do not worry about the pus that is natural. ??? They are very, very secretive. When I win the lottery perhaps then I will truly find out. So sad, the depression takes over many times. This is a fight I work with over and again and then I find a way to spoil myself with as much love and care one can do for their selves. As the world turns. Will there be a full moon tonight? Perhaps I will howl!!!

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@peach414144 Im so happy to hear you are still keeping a sense of humor that is great . Im sorry to hear about your eyes You can howl all you want we deserve to do what ever we want except rob a bank lol It is what it is so just keep babying yourself with massages bubble baths and whatever your drink is . Life does go on maybe not as we wish it to be but it does . Sounds like your doing the best you can . take care have a good day . Theres always hope some days we cant see it but its there . ???

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@lioness

@peach414144 Im so happy to hear you are still keeping a sense of humor that is great . Im sorry to hear about your eyes You can howl all you want we deserve to do what ever we want except rob a bank lol It is what it is so just keep babying yourself with massages bubble baths and whatever your drink is . Life does go on maybe not as we wish it to be but it does . Sounds like your doing the best you can . take care have a good day . Theres always hope some days we cant see it but its there . ???

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Thank you. It is good to sometimes complain but then do the opposite, laugh, turn on the radio and dance, sing, drink an orangeade, laugh at nothing. Get your mind into a better place. Good for a while then get out the crayons and color something or play a crazy solitaire game on the internet or tablet. Then walk outside and talk to the sun or the rain while looking a the flowers. Or the birds. Be crazy for a while as the dog or cat watches you then talk to them.

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@peach414144

Thank you. It is good to sometimes complain but then do the opposite, laugh, turn on the radio and dance, sing, drink an orangeade, laugh at nothing. Get your mind into a better place. Good for a while then get out the crayons and color something or play a crazy solitaire game on the internet or tablet. Then walk outside and talk to the sun or the rain while looking a the flowers. Or the birds. Be crazy for a while as the dog or cat watches you then talk to them.

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LOVE IT, LOVE IT LOVE IT, keep up the good words of encouragement,

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@peach414144

Thank you. It is good to sometimes complain but then do the opposite, laugh, turn on the radio and dance, sing, drink an orangeade, laugh at nothing. Get your mind into a better place. Good for a while then get out the crayons and color something or play a crazy solitaire game on the internet or tablet. Then walk outside and talk to the sun or the rain while looking a the flowers. Or the birds. Be crazy for a while as the dog or cat watches you then talk to them.

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@peach414144 Sounds like a well adjusted person with all your problems and thats the right attitude love it and you for your inspiration for us all . Thanks peach

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