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Does keeping hot water in a thermos for 8-10 hours breed bacteria?
I recently found out that i also have Mycobacterium Avium and Nocardia farcinica. I now boil my water in my Instant Pot for 11 minutes but then put it in thermoses so I have warm water throughout the day to drin, a big part of my airway clearance regimen. Does having it in a thermos for sometimes eight hours breed bacteria if I am not drinking directly from the thermos? Many thanks for all the guidance here!
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@sueinmn
Sue, do you mean your shower is 130 to 135 Or is that the water heater?
Based on Dr. Falkinham that Sterilized water, prepared by boiling, ultraviolet irradiation or filtration can be stored indefinitely if placed in a sterile bottle or container.
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@kamarla I'm not sure of the temp at the water heater as the dial doesn't show the setting in degrees. But, after running 2-3 minutes to warm the pipes, the hot water at the tap is always 132-135 F. Of course, we turn it down to shower, or it would scald us.
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1 Reaction@sueinmn
Sue what do you use to check the water temp at the tap?
@irenea8 A digital thermometer in a cup of water.
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1 Reaction@pattyrobertson I am not Sue but like you I felt fine at diagnosis (BE/MAC) and my pulmonary function test was normal. I took myself to NJH and they recommended treatment based on the extent of damage on CT, my lack of symptoms and normal PFT notwithstanding. Keep in mind I was told by my local medical team that my disease was “stable” (for almost a year, 4 CTs) but NJH said nope, progressive cavitary disease. So, from my experience I would say 1) your CT has everything to do with the decision to watchful wait and 2) it’s imperative to have a true expert evaluate your CT. For me, that weighs in favor of a second opinion from a designated care center. Myself I found the travel to NJH burdensome and the poor communication with my NJH doctor frustrating so I tried a designated care center closer to home and had a better experience all around. Good luck!
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1 Reaction@pattyrobertson The reality is that it is a shot in the dark too often trying to find a good pulmonologist in any facility. Considering many factors for a doctor's basic day it is also a shot in the dark finding a doctor/pulmonologist who communicates as you would hope they would, and/or directly to you, verses their chosen nurse who often answers for them. In regard to my messages sent via my chart to my doctors/pulmonologist I have often asked if that is what the doctor actually said.
You may have noticed, and keep in mind what NJH helped bayarea58 understand per her post " Keep in mind I was told by my local medical team that my disease was “stable” (for almost a year, 4 CTs) but NJH said nope, progressive cavitary disease."
I went to NJH and many have as you probably have noticed. For me I was glad I went, however, I also searched for a pulmonologist closer to me. We do not have a center of excellence in OKC. After visiting seven different pulmonologists (Denver, Tyler, TX, Dallas, OKC etc.) since being diagnosed in 2022 and giving each a chance to show me if I was with the right pulmonologist, I am now seeing one here in OKC that another pulmonologist I was seeing suggest I see. I am pleased with this decision so far. The new pulmonologist was the first to suggest and refer me to a 'fantastic' speech therapist that is helping me. He, the new pulmonologist, also is the first pulmonologist that wanted me to visit with the facilities Infectious Disease Doctor. That visit isn't until mid summer.
We have to figure out what is best for us, what we can do in all ways that have to be considered and be sure we make a decision that we won't regret in the long run.
Barbara