Dilated ascending aorta and Aortic root

Posted by concern @concern, May 17 6:15pm

It's been a while since l have posted but l hope everyone dealing with this condition is doing well. Can someone please tell me what you can and can't do. My measurements for both are 4.1 cm. My cardiologist has me scared to do much of anything. No lifting more than 25+30 lbs. No strenuous exercising that gets my heart rate over 130 bpm. Keep my blood pressure below 130/80. I'm 64 and I've always exercised and lifted weights all my adult life. Sometimes I wish l wouldn't have found out about this condition. I feel mentally paralyzed and afraid to do anything. I think my heart might rupture at anytime. I picked up my grandson the other day not think he probably weights 50-60 lbs. Also, l live on the Gulf Coast and l love the location. But if l ever have to get operated on there is no where around here that l could go. I want say exactly where l lived but the health care and hospitals are terrible. If l did need emergency surgery l wouldn't survive having it here. I doubt there is anyone who could even perform the surgery needed to save my life. So for the people living close to a good facility be greatful. Comments welcomed.
Take care

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@patientzero I fully and suddenly dissected in San Diego in 2015. Pure h*ll. Two open heart surgeries with a dacron graft. Weeks in a coma. About 2.5 years before I felt normal again. I was 50 years old. Planned open heart surgery has much better outcomes. I'm not going to lie, ascending aortic dissection and emergency open heart surgery is as serious as it gets. BUT: I am here, I am healthy, and I am thankful for everyday I have on this earth. Here's me golfing last weekend with my 92-year old father.

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Profile picture for moonboy @moonboy

@patientzero I fully and suddenly dissected in San Diego in 2015. Pure h*ll. Two open heart surgeries with a dacron graft. Weeks in a coma. About 2.5 years before I felt normal again. I was 50 years old. Planned open heart surgery has much better outcomes. I'm not going to lie, ascending aortic dissection and emergency open heart surgery is as serious as it gets. BUT: I am here, I am healthy, and I am thankful for everyday I have on this earth. Here's me golfing last weekend with my 92-year old father.

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@moonboy
Your story is amazing and unbelievable. God certainly wasn't ready to call you home yet.
You're are fortunate that you were somewhere that had good emergency care. Your are definitely bless.

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