Diastolic heart failure want off meds

Posted by jules72 @jules72, Feb 21 11:03pm

I am 48 nearing 49 very soon have a 9 and 30 yr old sons and married to a manchild lol Yes that's not a typo lol prob why my heart is in bad shape having a child at 39. Wasn't suppose to be possible but he's here so on with it right! I have diastolic heart failure and I'm on coreg 12.5mgs 2×day he wants me taking 10 mgs of amlodapine as well but I don't. Also wants me on something for prediabetes can't remember name. I have never had a prob with sugsr until after being on coreg and one blood test came back out of range by 1 point. I know this sounds crazy prob but I don't wanna be on any of this medicine I think it does more harm other places. Has anyone tried to do this? Also my BP gets up to 200/100 at times without but I have noticed fish oil helps if I take it 3 times a day but still not normally range. Thank you

@jules72 That is a large gap in ages and I can hardly image your shock.

Welcome to Mayo Clinic Connect.

You have diastolic heart failure and you are taking medications for this condition but not all of the recommended medications. You also have prediabetes but you are not treating this condition at this time. Did I get that right?

Members like @predictable @kjnj23 @lioness @delatorre27421 @floridawilbur @mrsworm12 @chi @lisadib
@miracleman @crhp194 @garyn @c06784 @rrowner2 have recently discussed and may be able to offer support.

I would not say it sounds "crazy" that you don't want to take the medications. It makes me curious. You say that you feel the medications do more harm than good.

Have you considered looking for a wholistic provider? Maybe you could find ways to manage some of your illnesses with lifestyle and dietary changes. I suspect prediabetes would respond well but diastolic heart failure sounds serious. May I ask if you have discussed alternatives to your medications and/or considered getting a second opinion?

REPLY

@jules72 Hi and Welcome to connect. I can relate to a few things you said having a child in later life. I'm 62 next Month and my youngest just started College this year. But actually I think it kept me young at heart longer no pun intended.
Anyway a quick history of me Heart issues started 2008 due to a bad flu that affected my Heart and went thru lots of different meds including coreg which I knew as Carvedilol or basically a beta blocker. Took it for about 10 years until my heart finially gave out. 2018 Heart Transplant. Now I personally never had any issues with coreg and took about the same dose your on. I also have been pre diebetic supposably for ever and have never gotten high enough to need medication except right after the transplant for just 1 day i needed insulin which is pretty normal after transplant and I had to monitor my levels for about 6 months I think that was 3 years ago. So that's my experience with coreg and honestly I'm thankful for the 10 years I got to be able to have a pretty normal life finish raising my kids and got me close enough to retirement to be able to retire a bit early.

For the Heart issue tho besides diastolic heart failure if I could ask did they do any testing like echo cardiogram? Usually they rate you heart with an ef % which imdicates how well your heart pumps. Average i was told for me when I was 50ish is 55-60% a completely heathy heart like the one I have now (my donor took great care of it) is in the 70's. When I was diagnosed with heart failure i was at 5 % and did with medication get up to 45-50% after about 3 years and a couple of Ablasions. Plus there are different reasons for the diagnosis afib is usually the upper heart and VT for the lower heart.

I hope maybe i helped a bit and the one thing that always helped me is there are so many options these days. Please ask any questions you have.
One more thing the Blood Pressure does sound high and that should probably be looked at. I didn't have any issues there either so I don't think coreg caused that.
Have a Blessed Day
Dana

REPLY

@jules72 Hi Jules Back in 1996 I was having sweating pain in chest couldn't do anything without sweating as it turned out I had 3arteries clogged After my heart caths Dr felt I need a bypass surgery for the 3 clogged arteries before I had this Dr pit me on Coreg.I hallucinated with it could'nt sleep called Dr next day it said to discontinue as it was a allergic reaction .I. Had my triple by pass then since I have been checked every year I had a echocardiogram a couple of years ago and blood is pumping fine through my valves .That's my story. In my opinion a echocardiogram is worth having for peace of mind. You should get your blood pressure down this is hard on the heart to pump that blood through the body 🥺 Hope this helps

REPLY

Thank you for for reply. I know my BP is awful, has been many yrs I avoided meds like the plague until one day my new Dr at the time said you realize you have diastolic heart failure right? I had no clue the hosp records showed it but nothing was ever said to me. I stated swelling in the lower legs mainly left one about a yr ago that's what made me start taking the coreg and at the time lasix 40 mgs. I stopped the lasix cause it stopped working. I have found no sugar helps keep swelling down too so cut that about 90% out.
I haven't been checked for any blockages afraid to but they haven't brought it up yet. Glad to hear yours went good. My health really went down after having my last son but I still love him lol I just hate taking medicine vitamins and herbs no prob. I've also found taking Xanax and coreg together causes swelling so stopped those as well. Don't sleep too well was talking the Xanax for bed but the swelling gets terribly bad. I've had plenty of echo cardiograms but I could ask him to do one cause he hasn't ordered one just went off hosp records. Thank you

REPLY

@jules72 I'm glad to hear you will ask Dr to order one This will help him and you to find out what's up .Ask forbl.pressure meds why hasn't your Dr suggested it As I said high nl.ptrssure is not good for your heart ❤️ it has to pump harder to get the blood out to your body

REPLY
@erikas

@jules72 That is a large gap in ages and I can hardly image your shock.

Welcome to Mayo Clinic Connect.

You have diastolic heart failure and you are taking medications for this condition but not all of the recommended medications. You also have prediabetes but you are not treating this condition at this time. Did I get that right?

Members like @predictable @kjnj23 @lioness @delatorre27421 @floridawilbur @mrsworm12 @chi @lisadib
@miracleman @crhp194 @garyn @c06784 @rrowner2 have recently discussed and may be able to offer support.

I would not say it sounds "crazy" that you don't want to take the medications. It makes me curious. You say that you feel the medications do more harm than good.

Have you considered looking for a wholistic provider? Maybe you could find ways to manage some of your illnesses with lifestyle and dietary changes. I suspect prediabetes would respond well but diastolic heart failure sounds serious. May I ask if you have discussed alternatives to your medications and/or considered getting a second opinion?

Jump to this post

Yes large gap 21 yrs actually lol. Yes you have it right. I take the coreg 12.5 2×day and I'm suppose to take 10mgs of norvasc daily and metformin is the drug for prediabetes he wants me taking. I never had sugar issues at all until after being on the coreg about 3 months or so and BP has always been high early 30s till present. The coreg helps a bit to a range around 145/90ish. Better Than 200/100 yes but to bring on diabetes idk. I can't find a homeopathic holistic Dr of any kind around my area just a health in hand shop with a knowledgeable owner lol I need to do much more to help myself like more exercise but I feel so worn out most the time especially after taking the coreg. I could def eat better stop smoking completely cause I do smoke about half a pk a day was over a pk. I realize I've brought this on myself. Abused my body in my 20s from prescription pain killers(hence why I hate meds) to crashing dirt bikes etc. We always wait till it's really bad or at least most I know have. Thank you for for reply ❤

REPLY

@jules72
I didn’t want to take seizure meds and especially not 30 a day but it was better than the alternative. Your gambling with your life. There are many complications associated with heart failure and high blood pressure. Perhaps not taking medication is more important than your life. Maybe you don’t mind risking kidney failure. Heart attacks, strokes and the list goes on may not concern you. Every potential complication may well be accelerated when you stop your meds. Your much more courageous than I am. If your treatment plan isn’t working for you talk to your doctor or change doctors. Have you considered going to the Cleveland Clinic or Mayo Clinic or other highly rated facility? I think it would be a wise move if you did prior to stopping your medication.
Good luck, sounds like you’re going to need it,
Jake

REPLY
@jules72

Yes large gap 21 yrs actually lol. Yes you have it right. I take the coreg 12.5 2×day and I'm suppose to take 10mgs of norvasc daily and metformin is the drug for prediabetes he wants me taking. I never had sugar issues at all until after being on the coreg about 3 months or so and BP has always been high early 30s till present. The coreg helps a bit to a range around 145/90ish. Better Than 200/100 yes but to bring on diabetes idk. I can't find a homeopathic holistic Dr of any kind around my area just a health in hand shop with a knowledgeable owner lol I need to do much more to help myself like more exercise but I feel so worn out most the time especially after taking the coreg. I could def eat better stop smoking completely cause I do smoke about half a pk a day was over a pk. I realize I've brought this on myself. Abused my body in my 20s from prescription pain killers(hence why I hate meds) to crashing dirt bikes etc. We always wait till it's really bad or at least most I know have. Thank you for for reply ❤

Jump to this post

Hi @jules72. My experience might be useful since your medication is similar to mine. I have been on Coreg for 7 years as an antihypertensive beta blocker that helps stabilize my pulse, which is not quite rhythmic due to atrial fibrillation (A-fib). Has your medical team told you why Coreg was their choice to confront your blood pressure? I had a brief use of Norvasc (Amlodipine), but was taken off of it, because it caused significant swelling of the feet and ankles. During all those years, no physician or specialist warned me about Coreg causing diabetes. Have you discussed that idea with your doctor? Does your use of Metformin suggest that your tendency for diabetes is a problem for your metabolism and personal life style? Just two days ago, I had a lab test to determine my HGBa1C, and it came back at 5.7% — just one-tenth of a percent above the acceptable "standard range." My PCP responded saying this "indicates increased RISK of developing diabetes" and recommended that I "follow a low sugar low fat diet, make sure you are exercising at least 30 minutes most days of the week, and strive to stay at a healthy weight." My Coreg dosage was cut to 12.5 x 2 daily just last week because it was slowing my heart rate a little too much, causing a bit of the fatigue that you mentioned. Have you had the benefit of diagnosis and treatment by specialists in Nephrology and Cardiology? I have benefited from both in recent years. I hope your medical team will honor your wish to work with them in dealing with your problem so you don't have to make important medical decision alone. Martin

REPLY

Hello Everyone I had an ablation for AFIB in 2013 and last week had an AFIB event for about an hour that woke me up from sleeping. My EP doc that did the ablation moved away to Columbus and I have been stuck with who ever is left from that practice of which I have not seen the doctor but the PA for the last two years. Now that I had this attack they want to monitor me for 30 days and wanted me to take Coreg which is making me sick and I don't care to feel like that. Is it really necessary for the Coreg if I only had one event? I did not take it tonight it lowers my pulse to 50 and today I had chills and overslept for church along with having to take naps to get through the day. You would think that I would have gotten an appointment to talk to the doctor but I feel like I am in the dark and if after this monitoring is over I may travel to Columbus to see the one who did the ablation.

REPLY

Hi @davisphoh2, welcome to Mayo Clinic Connect. I wanted to connect you with other people who have been on the medication, Coreg, so you will see I moved your post to a discussion regarding a-fib, heart and Coreg. I think it's interesting that you are willing to travel to Columbus to see your doctor that did the ablation.

Have you talked to your current PA on what they recommend for follow up?

REPLY
@amandaburnett

Hi @davisphoh2, welcome to Mayo Clinic Connect. I wanted to connect you with other people who have been on the medication, Coreg, so you will see I moved your post to a discussion regarding a-fib, heart and Coreg. I think it's interesting that you are willing to travel to Columbus to see your doctor that did the ablation.

Have you talked to your current PA on what they recommend for follow up?

Jump to this post

I plan on talking to them in the morning but I have had some issues even getting an appointment with this Covid stuff going on. They don't want to see people like it used to be before Covid. The doctor that I was given was ill or something and everytime I called for a follow-up visit prior to this episode was met with delay. Dr. Gemma was good with what he practiced and he listened unlike the people that are giving my service at the moment.

REPLY
@davisphoh2

I plan on talking to them in the morning but I have had some issues even getting an appointment with this Covid stuff going on. They don't want to see people like it used to be before Covid. The doctor that I was given was ill or something and everytime I called for a follow-up visit prior to this episode was met with delay. Dr. Gemma was good with what he practiced and he listened unlike the people that are giving my service at the moment.

Jump to this post

Hi @davisphoh2 Hi and welcome yes thought times with this covid issues. I did take coreg for many years and it helped me along with other meds with my issue of Ventricular Tachycardia or VT for short but it’s a lot different than AFIB in it’s affect on the Heart. But one positive not is the ablation you had worked well for many years so it sounds like that doctor that did it is a keeper. I had more that a few ablations and was lucky to get 2-3 year’s out of them before needing another.
As for coreg I went on that so long ago when my issues started I don’t remember if they gave me problems at first but over the years and many different meds I would usually get used to them. So maybe see if you can reach a doctor by phone or telemed if that’s an option. Maybe a ramp up to the dose your on may help or another beta blocker med may work better. Just some thoughts.
I prey you have success possibly to reach you doctors office and if I can help please ask.
Have a Blessed Day
Dana

REPLY
Please sign in or register to post a reply.