Dry vagina and foamy urine: Internal bleeding?

Posted by dablues @dablues, Oct 7 8:02pm

I have a deviated septum which I’ve had for years and a lot of drainage coming out of one nostril. I had a cat scan of of my sinuses and all was ok. Dr. put me on two nose sprays Azelastine HCI 0.1% which was 0.3% but I had bloody nose once, and once blood coming from vagina.

So I went to my Urologist and he did a cat scan and said everything looked ok but did a cystoscopy and he saw a little blood and thought it was from my vagina being dry as the bladder was fine and wants me to use some estrogen cream. I never had bleeding there since my hysterectomy in 1986, After having a cat scan with contrast now my urine in bubbly or foamy and they said it was normal and should go away but so far it hasn’t. Had my cat scan about 5 days ago. I do not have a GYN here in GA so haven’t had a pap smear since I moved to GA in 1997; I didn’t think I needed one.

Question is what about this cream they want me to use, and what about a foamy urine. I don’t have burning when going to the bathroom. If this is in the wrong area could you tell me where to go to get some sort of an answer. I’m 79 years of age. Also I have AVM’s which bleed internally and sometimes need iron infusions. I never see the blood when I bleed internally and had a blood transfusion and iron infusions in 2017. I’m always tired but don’t know if it’s the meds or what. I’m confused as to what is going on.

Hi @dablues, I can imagine that you are confused about what is going on. Clearly you need to find some answers. Let's see how the community can help you know what questions to ask and which specialist to see. I'm tagging @avmcbellar @gingerw @baxtersmom @astaingegerdm and @cherelle in this discussion. I'm sure others will jump in too.

Dablues, it sounds to me like the source of the bleeding has not been found. Your doctor suspects vaginal dryness or vaginal atrophy. You can find out more information about vaginal atrophy and treatment in this article:
– Mayo Clinic Q and A: Managing the symptoms of vaginal atrophy: https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-managing-the-symptoms-of-vaginal-atrophy/

I have a few questions to consider:
Has internal bleeding from AVM been ruled out? Is your tiredness a new or worsening symptom? Has the foamy urine changed in the 5 days since the CT scan, i.e., gotten less or more?

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Hi @dablues sorry to hear of your health issues. I never had any blood in my urine. Are the AVMs the cause of your blood loss? Something is causing your blood supply to be low enough to warrant a transfusion. Anemia can be the cause of your tiredness. My husband had gone to a urologist because hidden blood was found in his urine. The search was on but all the test gave normal results. For him nothing was found and nothing further was done because it was a trace amount of blood loss. Since the urologist gave you a probable diagnosis perhaps seeing a gynecologist will help as a second opinion to rule out anything serious. I would question the doctor that gave you the blood transfusions. How often do you do blood tests and who orders them? Toni

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@dablues The nasal spray given to you is classed as an antihistamine. That said, an antihistamine will usually dry up mucus membranes in more than just your eyes/nasal cavity. They can dry out your mouth and vaginal areas also. Your vaginal blood may have been a side effect of the medication, but also a sign of atrophy of vaginal tissues, which is common as we age.

Typically, foamy urine with pain on urination, is a sign of excess protein in the urine. Are you eating a lot of protein? It will shed off in urine. As for the estrogen cream, I would question the wisdom of it, what they hope to accomplish by using that. It may be time to see a gynecologist or your primary for a complete well-woman checkup. As has been mentioned, what was the cause of needing blood transfusions 3 years ago?
Ginger

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@gingerw

@dablues The nasal spray given to you is classed as an antihistamine. That said, an antihistamine will usually dry up mucus membranes in more than just your eyes/nasal cavity. They can dry out your mouth and vaginal areas also. Your vaginal blood may have been a side effect of the medication, but also a sign of atrophy of vaginal tissues, which is common as we age.

Typically, foamy urine with pain on urination, is a sign of excess protein in the urine. Are you eating a lot of protein? It will shed off in urine. As for the estrogen cream, I would question the wisdom of it, what they hope to accomplish by using that. It may be time to see a gynecologist or your primary for a complete well-woman checkup. As has been mentioned, what was the cause of needing blood transfusions 3 years ago?
Ginger

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I eat the same things I always eat and am not a big eater. What I did add was flaxseed and chia seeds to my diet so I can get off of fiber pills. I don't have a GYN since I moved to GA. Will be calling my urologist back today after coming home from Atlanta. Last checkup on my cataract surgery. I only used the cream once so far. The blood transfusion and iron infusion I got was due to AVM's I have in my body and at that time did not know I was bleeding internally as I never saw blood so my CBC went way down and my primary doctor never did a CBC when he did my blood work and the ER doctor said that is the first thing a doctor should do when having blood work done. So now I see a hematologist every few months. I notice that my white blood cells and red blood cells tend to be low but not sure if it is all the meds I am on. I was told with the AVM's they could be anywhere in my body. I know I have them in my colon, and in my stomach and when the doctor told me about them I asked what to do and he said there is nothing you can do. They might bleed then stop. Evidently mine was bleeding slowly and I didn't know what was going on with me until I was having breathing problems and chest pains, so took myself to the ER and they admitted me.

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@dablues

I eat the same things I always eat and am not a big eater. What I did add was flaxseed and chia seeds to my diet so I can get off of fiber pills. I don't have a GYN since I moved to GA. Will be calling my urologist back today after coming home from Atlanta. Last checkup on my cataract surgery. I only used the cream once so far. The blood transfusion and iron infusion I got was due to AVM's I have in my body and at that time did not know I was bleeding internally as I never saw blood so my CBC went way down and my primary doctor never did a CBC when he did my blood work and the ER doctor said that is the first thing a doctor should do when having blood work done. So now I see a hematologist every few months. I notice that my white blood cells and red blood cells tend to be low but not sure if it is all the meds I am on. I was told with the AVM's they could be anywhere in my body. I know I have them in my colon, and in my stomach and when the doctor told me about them I asked what to do and he said there is nothing you can do. They might bleed then stop. Evidently mine was bleeding slowly and I didn't know what was going on with me until I was having breathing problems and chest pains, so took myself to the ER and they admitted me.

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@dablues I can’t believe this stuff happens. I am so sorry for your experience!

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@dablues

I eat the same things I always eat and am not a big eater. What I did add was flaxseed and chia seeds to my diet so I can get off of fiber pills. I don't have a GYN since I moved to GA. Will be calling my urologist back today after coming home from Atlanta. Last checkup on my cataract surgery. I only used the cream once so far. The blood transfusion and iron infusion I got was due to AVM's I have in my body and at that time did not know I was bleeding internally as I never saw blood so my CBC went way down and my primary doctor never did a CBC when he did my blood work and the ER doctor said that is the first thing a doctor should do when having blood work done. So now I see a hematologist every few months. I notice that my white blood cells and red blood cells tend to be low but not sure if it is all the meds I am on. I was told with the AVM's they could be anywhere in my body. I know I have them in my colon, and in my stomach and when the doctor told me about them I asked what to do and he said there is nothing you can do. They might bleed then stop. Evidently mine was bleeding slowly and I didn't know what was going on with me until I was having breathing problems and chest pains, so took myself to the ER and they admitted me.

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@dablues I don’t understand. ArterioVenousMalformations have a risk of rupturing and causing more harm. I have not heard of them leaking. You say you have many in your body? Are you sure they are properly diagnosed? If you have many the doctors should be concerned. A CBC(complete blood count) is a normal routine follow up for blood work. Your white blood cell count should remain low otherwise a high amount is indicative of a possible infection. If you are losing blood then you would have a low amount of red blood cells. Remember the red blood cells carry the oxygen so less would cause you to be tired. Your breathing problems may have resulted from the anemia. Hope this helps. Toni

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@dablues

I eat the same things I always eat and am not a big eater. What I did add was flaxseed and chia seeds to my diet so I can get off of fiber pills. I don't have a GYN since I moved to GA. Will be calling my urologist back today after coming home from Atlanta. Last checkup on my cataract surgery. I only used the cream once so far. The blood transfusion and iron infusion I got was due to AVM's I have in my body and at that time did not know I was bleeding internally as I never saw blood so my CBC went way down and my primary doctor never did a CBC when he did my blood work and the ER doctor said that is the first thing a doctor should do when having blood work done. So now I see a hematologist every few months. I notice that my white blood cells and red blood cells tend to be low but not sure if it is all the meds I am on. I was told with the AVM's they could be anywhere in my body. I know I have them in my colon, and in my stomach and when the doctor told me about them I asked what to do and he said there is nothing you can do. They might bleed then stop. Evidently mine was bleeding slowly and I didn't know what was going on with me until I was having breathing problems and chest pains, so took myself to the ER and they admitted me.

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Sorry @dablues, I wanted to ask how much flaxseed and chia seeds you consume daily? Have you discussed this with your doctor? Do you take a blood thinner pill daily? Flaxseeds and chia seeds can act as a blood thinner which will increase bleeding potential in your body. Toni

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@colleenyoung

Hi @dablues, I can imagine that you are confused about what is going on. Clearly you need to find some answers. Let's see how the community can help you know what questions to ask and which specialist to see. I'm tagging @avmcbellar @gingerw @baxtersmom @astaingegerdm and @cherelle in this discussion. I'm sure others will jump in too.

Dablues, it sounds to me like the source of the bleeding has not been found. Your doctor suspects vaginal dryness or vaginal atrophy. You can find out more information about vaginal atrophy and treatment in this article:
– Mayo Clinic Q and A: Managing the symptoms of vaginal atrophy: https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-q-and-a-managing-the-symptoms-of-vaginal-atrophy/

I have a few questions to consider:
Has internal bleeding from AVM been ruled out? Is your tiredness a new or worsening symptom? Has the foamy urine changed in the 5 days since the CT scan, i.e., gotten less or more?

Jump to this post

You may have genital lichens sclerosis. It's still not real common. I was diagnosed 20 years ago when menopause began. I was originally give a testosterone cream to apply to labia and vulvar. I will bleed after intercourse it can go dormant but no cure. It's also more common in menopause/post menopausal women. ust
Just a thought…….

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I have never heard of that. I called my urology this afternoon but no one got back to me on the problem.

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@avmcbellar

Sorry @dablues, I wanted to ask how much flaxseed and chia seeds you consume daily? Have you discussed this with your doctor? Do you take a blood thinner pill daily? Flaxseeds and chia seeds can act as a blood thinner which will increase bleeding potential in your body. Toni

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I did not know that. I can't take blood thinners or celebrex for my arthritis due to AVM's. I don't measure how much I eat. I made a pudding with the chia seeds, and I ate 4 oz. I also made flaxseed and chia bread, but haven't had that too much. I never measured. Now I probably can't have that either and will have to go back to fiber pills.

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@avmcbellar

@dablues I don’t understand. ArterioVenousMalformations have a risk of rupturing and causing more harm. I have not heard of them leaking. You say you have many in your body? Are you sure they are properly diagnosed? If you have many the doctors should be concerned. A CBC(complete blood count) is a normal routine follow up for blood work. Your white blood cell count should remain low otherwise a high amount is indicative of a possible infection. If you are losing blood then you would have a low amount of red blood cells. Remember the red blood cells carry the oxygen so less would cause you to be tired. Your breathing problems may have resulted from the anemia. Hope this helps. Toni

Jump to this post

According to my Gastro dr. he found one in my colon, and one someplace else. He said they can do a slow leak and so did my hematologist. They both are good doctors and the hematologist checks my often. I have a appointment next week for labs and then the week after to see him, unless it's more urgent then they will call me in and do an iron infusion. All this is getting to be too much with all the testing and getting no where. The cat scan the urologist did showed nothing, and when he did the cysto of the bladder that was clear but he did see some blood in the vagina and put me on estrogen cream which now I hear isn't good to take. So don't know if I should take it or not with all the side effects it shows. I only took one dose, and then the itching started and when urinating it hurt, not like a burning hurt when you have a UTI. I called them today but no one got back to me. I never had foamy urine until they did the cystoscopy and that is when that started, and he also said the urine showed blood microscopic that is why he did the cat scan. It seems like I'm going in circles.

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@dablues

I did not know that. I can't take blood thinners or celebrex for my arthritis due to AVM's. I don't measure how much I eat. I made a pudding with the chia seeds, and I ate 4 oz. I also made flaxseed and chia bread, but haven't had that too much. I never measured. Now I probably can't have that either and will have to go back to fiber pills.

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@dablues you may not need to go back to the fiber pills if you eat foods with fiber in your diet. A diet with fruits and vegetables will contain fiber. Look at the nutrition labels of foods you buy. Legumes also contain lots of fiber. My mother is 90 years old with diabetes which she manages through food and exercise. She does fine with her foods. Does not take any fiber pills or stool softeners. Yes, any products containing aspirins or supplements like fish oils or vitamin E oil you need to be careful because they can act like blood thinners.

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@dablues

According to my Gastro dr. he found one in my colon, and one someplace else. He said they can do a slow leak and so did my hematologist. They both are good doctors and the hematologist checks my often. I have a appointment next week for labs and then the week after to see him, unless it's more urgent then they will call me in and do an iron infusion. All this is getting to be too much with all the testing and getting no where. The cat scan the urologist did showed nothing, and when he did the cysto of the bladder that was clear but he did see some blood in the vagina and put me on estrogen cream which now I hear isn't good to take. So don't know if I should take it or not with all the side effects it shows. I only took one dose, and then the itching started and when urinating it hurt, not like a burning hurt when you have a UTI. I called them today but no one got back to me. I never had foamy urine until they did the cystoscopy and that is when that started, and he also said the urine showed blood microscopic that is why he did the cat scan. It seems like I'm going in circles.

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@dablues I am glad you have good doctors you can rely on for follow up. Looks like most importantly the location of the AVMs matter for the type of harm they can do. Did your doctor(s) tell you of foods or supplements to stay away from? This is besides the blood thinners and Celebrex.

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No, they didn't. They are good doctors but they don't discuss meds, or food with me. Sometimes I don't know if they just don't know about those things or don't have the time.

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@dablues – Since you had a hysterectomy 1986, you don’t have to worry about blood coming from the uterus. However, you still have a vagina and probably should have continued with PAP smears.
It is true that you can have small bleeding from the now thin and dry vaginal lining.
To settle the vagina bleeding you should get examined by a Gynecologist or experienced Family Physican.
Estrogen cream is commonly used to strengthen the vaginal wall. It is not for everyone.

Liked by avmcbellar

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