Denial is not just for Egyptians

Posted by murkywaters @murkywaters, Dec 2, 2025

Newbie here. I have so many questions my mind is swirling. My husband has MCI and refuses to get evaluated by a neurologist. He gets angry if I even mention it. How am I supposed to just stand by and watch him get worse (which he is)!

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Profile picture for murkywaters @murkywaters

@lkbous Does his family know of his diagnosis?

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@murkywaters yes, they do.
No one brought up the situation to me later, tho. His sister, who is a nurse invited him on a shoreline drive one afternoon, as he says ‘for an intervention’. She never spoke with me about it at all, so I let it be their time.

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Profile picture for murkywaters @murkywaters

@lkbous I think I need to find a therapist. Any suggestions?

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@murkywaters I have been going to mine for a few years, pre, pre diagnosis. He has helped me sort my feelings and responses, but there are caregiver therapists that really understand the dynamics. I have that search on my to do list. DH is in the UCLA alz/dem program and they can recommend some names, but, there’s just so much involved with every step, it’s hard to get to everything. It IS so overwhelming from every direction!!!

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Profile picture for murkywaters @murkywaters

@cakbob Thank you. I am thinking I need to find a therapist for support.

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@murkywaters That can be helpful and they can help you think about ways to approach him.

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Profile picture for judimahoney @judimahoney

Hello and welcome.
Any question you have type in a key word on the Caregiver Dementia main page, and it will bring up any discussion thread that may interest you.
I found keeping anecdotal notes helps to record my husband's 'off' behavior. I summarize them annually for our trip to Neuro Doc.
Since your husband is not cooperating you may just have to focus on you: educating yourself, checking into local respite care locations when you need You time, setting up your home to facilitate his new normal, etc.
Sometimes I would just have to get to the meltdown stage before my husband would listen to me (e.g., when it was time for him to stop driving; when I had to take his debit/credit cards away to protect us from his misuse).
We'll be here for you. Time to build your support team. 🫂

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@judimahoney Yes, "focusing on myself" is now what I'm doing. He refuses to get a proper neurological evaluation, and his doctor isn't pushing it, so why should I.

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Would a family intervention work?
Would an AI summary of the benefits only of drugs work? Would turning it around to your issues work? For example: a simplified daily journal of "mistakes" made by you and of course also him or make an appointment to see if I'm the one with the problem but you come too.

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The advice shared in ye comments are all spot on. I have a few to add.

You would benefit greatly from a support group - encouragement, connections, tips, all invaluable. It may be difficult at first as there will be others around the table whose loved ones are further along and their situations may be hard to hear. Still, a support group for you is really essential, if you are willing.

Also, I listen to a podcast called “Dementia Untangled”, a program of the Banner Alzheimer’s Institute in Arizona. Excellent program. I listen on Spotify but know it’s on other platforms too.

Also, the book “My Two Elaines” by Martin Schreiber might provide some helpful insights. Marty’s wife, Elaine, a journalist, developed AD and chronicled the journey. The book is Martin’s story as her caregiver, but because it includes excerpts from her voice, it provides a perspective that is very insightful.

There is also a mental health diagnosis (?) for folks who cannot recognize/perceive what is happening to them. I’ve forgotten the name - hard to pronounce and harder to spell. I’ll look it up and comment back. I’m not suggesting that’s what’s happening. Just sharing that it is not always denial (“oh he's just in denial…”) but rather complete lack of self-awareness over which the person has no control.

Peace to you on this Sabbath day.

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Here’s the term I couldn’t remember in my previous comment - Anosognosia.

And from the Cleveland Clinic:
“Anosognosia is a condition where your brain can’t recognize one or more other health conditions you have. It’s extremely common with mental health conditions like schizophrenia and Alzheimer’s disease. This condition isn’t dangerous on its own, but people with it are much more likely to avoid or resist treatment for their other health conditions.”

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Profile picture for gilkesl @gilkesl

Would a family intervention work?
Would an AI summary of the benefits only of drugs work? Would turning it around to your issues work? For example: a simplified daily journal of "mistakes" made by you and of course also him or make an appointment to see if I'm the one with the problem but you come too.

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@gilkesl
No. He pushes everything back.

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Profile picture for gilkesl @gilkesl

Would a family intervention work?
Would an AI summary of the benefits only of drugs work? Would turning it around to your issues work? For example: a simplified daily journal of "mistakes" made by you and of course also him or make an appointment to see if I'm the one with the problem but you come too.

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@gilkesl His family doesn't want to deal with it. Ostriches like him.

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Profile picture for agh @agh

Here’s the term I couldn’t remember in my previous comment - Anosognosia.

And from the Cleveland Clinic:
“Anosognosia is a condition where your brain can’t recognize one or more other health conditions you have. It’s extremely common with mental health conditions like schizophrenia and Alzheimer’s disease. This condition isn’t dangerous on its own, but people with it are much more likely to avoid or resist treatment for their other health conditions.”

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@agh I agree with the anosognosia being common in alzheimers. My husband, a retired physician who has been managing his own diabetes for over 20 years, now, doesn't understand why I had to poke him with needles to deliver the insulin that he needs. ( He has an insulin pump now, thank God) "well, it's just ridiculous" he says. He can no longer grasp his diagnosis of diabetes and its care requirements.
So if someone seems to be in "denial" I think we should bear in mind what the person is still capable of understanding and what they cannot. Things that are logical to us make no sense to them. I think our effort would be better spent finding out where they are in their dementia journey. What skills, abilities do they still have? Engage them where they are at. Also learn as much as you can about the various stages in Dementia so you can determine what is still there and what is not. If it's not there then you can stop trying to go there and cut down on the frustration of not getting them to do something they can't. Bless you all.

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