just diagnosed and scared
Interested in more discussions like this? Go to the Brain & Nervous System Support Group.
dr daylu at u of m sent me it a dementia a woman that says maybe basil dementia but want a spinal tap that I can't afford about 4 to 8k for a true diagnosis any trouts on what to do
does anyone know of a dementia support group in lower Michigan my loneliness is getting worse
Jump to this post
Hi @cathy514, so good to see that you were able to login again and post messages. Thanks for your patience.
You ask about in-person support groups in lower Michigan. I suggest you contact the Greater Michigan Alzheimer's Association to find something close to you.
You can call their 24/7 Helpline at 800.272.3900 or send an email at firstname.lastname@example.org
Your so smart to look for support to help reduce the loneliness. Dementia can be so isolating and sometimes talking with others online isn't enough. But for those in between times, we're here for you – any time.
I am in New York. I will call and check and see what's available in your area.
thank you, I am in belleville michigan
@cathy514 I’m so sorry for what you’re going thru. I, too, often feel the same way. I used to be so active, doing everything, riding my bike, hiking, etc. Now, I can only do things in short spurts because I get so tired. And when I’m walking in a store, I’m sure that everyone thinks I’m drunk because I can’t walk straight. Oh well.
Have you explained to your neighbors what’s going on? They might feel better knowing because then they can help. And, please, don’t be embarrassed! We all do the best we can. ( sounds like I’m giving myself a pep talk! I need it!). Becky
Thank you, I still can't find a support group all are over 20 miles away but I thank you all for your kindness and compassion
they are to far away, still very lonely thanks to all that helped I appreciate all of you
I can't get in az chat its me but no help I have tried several times
Hello, @cathy514 – I know you were feeling sad and scared after your diagnosis of dementia last month. Wondering how you are feeling and how things are going lately?
very scared and lonely
Can you or do you know what stage your at 1-7?
If not can you let us know what your able to do and not do?
Any visual problems
Do you read, watch tv
Do you have a caregiver
Any balance issues
Do you fix your own meals
If we knew more of your current status people may be better equipped to offer suggestions.
Hang in there,
I do not know stage, can dress shower clean house but not as well as before pca l can do laundry take short walks pay bills but I mess up and waste checks trying I can dress myself shower makes me uncomfortable don't know why but I shower daily I watch tv but not a lot no visual problems I have had glasses since I was 12 I am nearsighted I cook with my daughter can make my own food I can drive but don't drive far or daily daughter rides with me lose my glasses a lot in the house no balance issues trouble with math andspelling
thank you for asking no support in my area would love to come to mayo Florida your Drs and clinic and housing sounds great but not in my budget I am envious for those you treat at mayo
Connect with thousands of patients and caregivers for support and answers.
Already have an account? Sign In