Mayo Clinic Connect
I was diagnosed with complex regional pain syndrome a year ago. It has since spread and I am experiencing a decline in my health at an alarming rate. I am hoping to talk to others that may have found relief.
Liked by Jen, Alumna Mentor, Leonard, teetee7, rsnowflake ... see all
Thank you. I will look into that for sure. I tried to order a CBD oil, one that is legal and supposed to be safe. I got scammed. It was infuriating with all I'm going through. Have you ever tried one of those?
Jump to this post
@mam14I ordered the 2nd time from a different dealer wasn't any different so no more I,'ll keep what I know helps Right now I'm in P.T. for my lower back it is working for me New problem now my balance is off became close to calling a couple of times
@sandytoes Hi Jen so glad the F.M is helping you I never run out as I said been On it for years As for Melitonin I started on 3mg taking one about 30 minutes before bed I drink a little warm milk with cinnamon in it .Milk has tryptophan in it so helps to put you to sleep As the years passed and my pain became worse I increased to 5 mg of melatonin besides sleeping better my body relaxes better now finding the 3didn't have any side effects and for me I felt I needed more but still no side effects . Happy sleeping
Yes I've always worn glasses but since being diagnosed with crps , I failed my field test st my regular eye doctor 3 times. So I have an appointment 2 go to Kremer Eye center in March. It can effect almost any thing in your body where there are nerves!! I can talk any time, feel free to contact me anytime!
It's so nice to know that I have someone who can relate. I have felt so alone. This mess is crazy. Everyday brings something new, it seems. I just got over a virus and it seems to be back. I try so hard to avoid germs.
Liked by rsnowflake
It's the worst, I've had pneumonia twice since being diagnosed and have been in the hospital both times. I'm only 45 and feel 100 most days. I've started medical marijuana and it's helped so much. Gives me some sleep at night. I hope u r somewhere it's available to you. Feel free to write any time. My name is Renee.
Liked by Chris Trout, Volunteer Mentor
I am glad to know that you can get some relief. I don't know if it is legal yet in Alabama. I would definitely try it.
Renee, how did you end up with pneumonia? Was it after an illness? I have had a cough for a long time. Some mornings it gets really bad. My doctor changed one of my blood pressure meds but it hasn't helped. I feel like CRPS is attacking my entire body. Everything hurts and nothing seems to work right.
Yeah, I've always been sicker then most people, but since being diagnosed my health has deteriorated. But I push through it as much as I can . I was actually in the hospital again last night. With my asthma . It's a hard disorder it complicates tons of things because it's neurological, but they seem not to really know anything. I've found out from a lot a research on my own, trials, medical journals. But I think I'm going to have to find a doctor who's a specialist. Keep talking and u can ask me anything or talk whenever you need. Renee
That's really good to know that I have someone that understands and knows what is going on. I'm so sorry that you were back in the hospital. I hope that you are feeling better.
Liked by Kanaaz Pereira, Connect Moderator
May I ask what they feel caused the crps ?
It's usually caused by a break or sprain. I broke my ankle and I couldn't do physical therapy because my ankle swelled and turned odd colors, but my orthopedic surgeon said the break was totally fine. Basically it broke and then the brain never knows to turn off the pain signals, so it sends them other places.
I ruptured the fascia on the bottom of my foot. I had some small tears and bruising. I moved too fast and it snapped. It was immobilized for so long and was so painful. That is what caused it with me. I read that it can occur without injury also.
Renee, did you say that you had a spinal stimulator implanted?
I had an undiagnosed 3rd degree tear of my L calcaneal cuboid ligament (heel bone); so I walked around in severe pain, going from 1 specialist to another for 3 months before an orthopedist diagnosed both it and the CRPS ( then, 1995, more commonly known as RSD). Put me in a foot, ankle leg brace for 2-3 months, and put me on gabapentin.
Yes I have a spinal stimulator implant. It has helped my arms and hands tremendously. I had severe signs in my hand of crps and it jumped to my other arm. you are welcome to ask anything about it. Renee
Unfortunately I have several other problems " "illnesses " that I take a lot of medications for, the gabapentin didn't work for me at all.
version 220.127.116.11.3.2Page loaded in 0.663 seconds