Want to talk with others. Have you found relief from CRPS?

Posted by mam14 @mam14, Feb 4, 2019

I was diagnosed with complex regional pain syndrome a year ago. It has since spread and I am experiencing a decline in my health at an alarming rate. I am hoping to talk to others that may have found relief.

I have it on auto send. Here is address and phone number. 17113 Miramax Pkwy. Suite 201, Miramar Florida. 43027. 858 656 2771

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@mam14

Thank you Renee. I am Mary Ann. I am about to walk into an optometrists office. I wear glasses but my vision is so bad sometimes. Do you have trouble with your eyes? It is painful to cry and sometimes my vision is so blurry. Some days I have a lot of trouble reading.

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Yes I've always worn glasses but since being diagnosed with crps , I failed my field test st my regular eye doctor 3 times. So I have an appointment 2 go to Kremer Eye center in March. It can effect almost any thing in your body where there are nerves!! I can talk any time, feel free to contact me anytime!

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@lioness

@nam14 Hi I'm Lioness I have fibromyalgia and other back problems I was on all those meds and had either side effects or allergic to Norco in particular . I do a lot of holistic stuff and one thing I found for chronic pain with my fibro. is a product called Fibro Malic from Vitacost Ive been on it for years and its better then the Rx from Dr,s In the 90,s when I was first diagnosed then didn't know what caused it and still don't so I found this product Ive used along with Tramadol and Meloxicam I'm comfortable At night I always take my Tramadol and a Melatonin this usually works of course it depends on is you let your mind rest .

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@lioness Well I took the plunge and ordered the Fibro Malic. I looked at the ingredients and knew there was nothing listed that was going to be a 'flash in the pan snake oil' type of "cure". Magnesium controls so much in your body. Anyhow, I'm happy to say Fibro Malic works for me! Since taking it I have noticed significantly less muscle pain and most notably, less muscle spasms. My doctor has prescribed Baclofen 10 mg 2x day as needed. I have not had to take it as often! Along with fibromyalgia, I have nerve and chronic neck pain. When I saw my doctor last, we decided it was time for me to have RFA- Radio Frequency Ablation- on my lumbar spine.The last time I had it done was nearly 8 years ago.
Since having gastric bypass done in 2007 I know I absorb nutrients significantly lower. I've been faithful taking my vitamin/mineral supplements. Trazodone has been prescribed for me for sleep, however I find that the Oxycodone I need for pain interferes with it. I get weird dreams and therefor do not get a restful nights sleep @lioness .I see that you take Melatonin. Will you share with me how to get started taking it?

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@mam14

Thank you. I will look into that for sure. I tried to order a CBD oil, one that is legal and supposed to be safe. I got scammed. It was infuriating with all I'm going through. Have you ever tried one of those?

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@mam14I ordered the 2nd time from a different dealer wasn't any different so no more I,'ll keep what I know helps Right now I'm in P.T. for my lower back it is working for me New problem now my balance is off became close to calling a couple of times

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@sandytoes Hi Jen so glad the F.M is helping you I never run out as I said been On it for years As for Melitonin I started on 3mg taking one about 30 minutes before bed I drink a little warm milk with cinnamon in it .Milk has tryptophan in it so helps to put you to sleep As the years passed and my pain became worse I increased to 5 mg of melatonin besides sleeping better my body relaxes better now finding the 3didn't have any side effects and for me I felt I needed more but still no side effects . Happy sleeping

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@rsnowflake

Yes I've always worn glasses but since being diagnosed with crps , I failed my field test st my regular eye doctor 3 times. So I have an appointment 2 go to Kremer Eye center in March. It can effect almost any thing in your body where there are nerves!! I can talk any time, feel free to contact me anytime!

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It's so nice to know that I have someone who can relate. I have felt so alone. This mess is crazy. Everyday brings something new, it seems. I just got over a virus and it seems to be back. I try so hard to avoid germs.

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@mam14

It's so nice to know that I have someone who can relate. I have felt so alone. This mess is crazy. Everyday brings something new, it seems. I just got over a virus and it seems to be back. I try so hard to avoid germs.

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It's the worst, I've had pneumonia twice since being diagnosed and have been in the hospital both times. I'm only 45 and feel 100 most days. I've started medical marijuana and it's helped so much. Gives me some sleep at night. I hope u r somewhere it's available to you. Feel free to write any time. My name is Renee.

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@rsnowflake

It's the worst, I've had pneumonia twice since being diagnosed and have been in the hospital both times. I'm only 45 and feel 100 most days. I've started medical marijuana and it's helped so much. Gives me some sleep at night. I hope u r somewhere it's available to you. Feel free to write any time. My name is Renee.

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I am glad to know that you can get some relief. I don't know if it is legal yet in Alabama. I would definitely try it.

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@rsnowflake

It's the worst, I've had pneumonia twice since being diagnosed and have been in the hospital both times. I'm only 45 and feel 100 most days. I've started medical marijuana and it's helped so much. Gives me some sleep at night. I hope u r somewhere it's available to you. Feel free to write any time. My name is Renee.

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Renee, how did you end up with pneumonia? Was it after an illness? I have had a cough for a long time. Some mornings it gets really bad. My doctor changed one of my blood pressure meds but it hasn't helped. I feel like CRPS is attacking my entire body. Everything hurts and nothing seems to work right.

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@mam14

Renee, how did you end up with pneumonia? Was it after an illness? I have had a cough for a long time. Some mornings it gets really bad. My doctor changed one of my blood pressure meds but it hasn't helped. I feel like CRPS is attacking my entire body. Everything hurts and nothing seems to work right.

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Yeah, I've always been sicker then most people, but since being diagnosed my health has deteriorated. But I push through it as much as I can . I was actually in the hospital again last night. With my asthma . It's a hard disorder it complicates tons of things because it's neurological, but they seem not to really know anything. I've found out from a lot a research on my own, trials, medical journals. But I think I'm going to have to find a doctor who's a specialist. Keep talking and u can ask me anything or talk whenever you need. Renee
.

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@rsnowflake

Yeah, I've always been sicker then most people, but since being diagnosed my health has deteriorated. But I push through it as much as I can . I was actually in the hospital again last night. With my asthma . It's a hard disorder it complicates tons of things because it's neurological, but they seem not to really know anything. I've found out from a lot a research on my own, trials, medical journals. But I think I'm going to have to find a doctor who's a specialist. Keep talking and u can ask me anything or talk whenever you need. Renee
.

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That's really good to know that I have someone that understands and knows what is going on. I'm so sorry that you were back in the hospital. I hope that you are feeling better.

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May I ask what they feel caused the crps ?

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