Mayo Clinic Connect
I was diagnosed with complex regional pain syndrome a year ago. It has since spread and I am experiencing a decline in my health at an alarming rate. I am hoping to talk to others that may have found relief.
Liked by Jen, Alumna Mentor, Leonard, teetee7, rsnowflake ... see all
Yes I have a spinal stimulator implant. It has helped my arms and hands tremendously. I had severe signs in my hand of crps and it jumped to my other arm. you are welcome to ask anything about it. Renee
Jump to this post
One of my doctors advised the stimulator but I haven't agreed yet. My health issues began with a bladder sling. What was involved in putting that in?
Unfortunately I have several other problems " "illnesses " that I take a lot of medications for, the gabapentin didn't work for me at all.
I started on gabapentin a year ago. I didn't like it. I was told years ago that I had an autoimmune issue. My gallbladder quit functioning and I had it removed. I have high blood pressure and take thyroid meds. I feel like I take so much medicine.
I had an undiagnosed 3rd degree tear of my L calcaneal cuboid ligament (heel bone); so I walked around in severe pain, going from 1 specialist to another for 3 months before an orthopedist diagnosed both it and the CRPS ( then, 1995, more commonly known as RSD). Put me in a foot, ankle leg brace for 2-3 months, and put me on gabapentin.
How are you now?
Liked by rsnowflake
Hi things are up and down all the time, but I try to keep going, but sometimes my body just doesn't feel like it. I'm sure u understand how that is. I looking into going to a specialist maybe in new York, I live in Philadelphia, but there are only a few people who even know what crps is… and with my other issues I feel ove gone as far as I can here with doctors. Thanks for asking how I am, usually people r afraid to ask…lol. How are you?
Just wrote u but I know the feeling. I have chronic hives, I am bipolar, and i have Hashimoto's disease, which is a autoimmune thyroid disorder. I take 14 prescriptions a day. And go in once a month for an infusion to keep the hives down. I'm a mess.
Renee again, stimulator wasn't bad. But expensive!!! Got really lucky with a great doctor who helped me with the cost. It's a in and out surgery, one day. The leads go in your spine, depending on where u needs the stimulation. Arms or legs. Then there is a generator in your butt, lol… it sends the signals to your spine. U control it with a ipod. I'm almost at the year mark and u just get used to it. Sometimes I still get healing pains in my back, but I'm glad I did it!
I am going to Birmingham this weekend for an appointment with my neurologist Monday. I hope that he has some suggestions. I'm drained. I feel like everyday I have to push myself so hard to get up and move. I will look up Hashimoto. I don't know anything about it.
That's a lot of medicine.
@sandytoes14 I tried the Fibro Malic and had no change with it. I know @lioness is helped by taking it. Also ginger makes my pain worse. Interesting how we are all so different. I am glad to hear the FibroMalic has helped.
Liked by Teresa, Volunteer Mentor, lioness
Trust me I know…..but I have a wonderful daughter who depends on me, but she's great with all the medical stuff. My husband's amazing I've made it through and I will continue to do so…nothing will make me give up trying something new.
Best luck on Monday. I hope you have a wonderful doctor to help and support you. Don't give up, just keep pushing on. It's horrible I know, but know your not alone!! And many others I've talked with feel the same way. Sometimes crazy, cause people don't believe you or sometimes u r even in 2 much pain to complain, I do that a lot! Keep a smile on your face. Renee
CBD Daily. It’s a cream that helps me.
I too have hives.
Do you know what they r from?
version 18.104.22.168.2.3Page loaded in 4.501 seconds