mam14
@mam14
@mam14
Posts: 38
Joined: Feb 05, 2019
CRPS
I was diagnosed with complex regional pain syndrome a year ago. It has since spread and I am experiencing a decline in my health at an alarming rate. I am hoping to talk to others that may have found relief.
Liked by Jen, Volunteer Mentor, teetee7, rsnowflake, DanaS
mam14
@mam14
@mam14
Posts: 38
Joined: Feb 05, 2019
@rsnowflake Unfortunately I have several other problems " "illnesses " that I take a lot of medications for, the gabapentin didn't work for me at all.
I started on gabapentin a year ago. I didn't like it. I was told years ago that I had an autoimmune issue. My gallbladder quit functioning and I had it removed. I have high blood pressure and take thyroid meds. I feel like I take so much medicine.
mam14
@mam14
@mam14
Posts: 38
Joined: Feb 05, 2019
@struggler23 I had an undiagnosed 3rd degree tear of my L calcaneal cuboid ligament (heel bone); so I walked around in severe pain, going from 1 specialist to another for 3 months before an orthopedist diagnosed both it and the CRPS ( then, 1995, more commonly known as RSD). Put me in a foot, ankle leg brace for 2-3 months, and put me on gabapentin.
How are you now?
Liked by rsnowflake
rsnowflake
@rsnowflake
@rsnowflake
Posts: 53
Joined: Nov 13, 2018
rsnowflake
@rsnowflake
@rsnowflake
Posts: 53
Joined: Nov 13, 2018
@rsnowflake Hi things are up and down all the time, but I try to keep going, but sometimes my body just doesn't feel like it. I'm sure u understand how that is. I looking into going to a specialist maybe in new York, I live in Philadelphia, but there are only a few people who even know what crps is… and with my other issues I feel ove gone as far as I can here with doctors. Thanks for asking how I am, usually people r afraid to ask…lol. How are you?
rsnowflake
@rsnowflake
@rsnowflake
Posts: 53
Joined: Nov 13, 2018
@mam14 I started on gabapentin a year ago. I didn't like it. I was told years ago that I had an autoimmune issue. My gallbladder quit functioning and I had it removed. I have high blood pressure and take thyroid meds. I feel like I take so much medicine.
Just wrote u but I know the feeling. I have chronic hives, I am bipolar, and i have Hashimoto's disease, which is a autoimmune thyroid disorder. I take 14 prescriptions a day. And go in once a month for an infusion to keep the hives down. I'm a mess.
rsnowflake
@rsnowflake
@rsnowflake
Posts: 53
Joined: Nov 13, 2018
@mam14 One of my doctors advised the stimulator but I haven't agreed yet. My health issues began with a bladder sling. What was involved in putting that in?
Renee again, stimulator wasn't bad. But expensive!!! Got really lucky with a great doctor who helped me with the cost. It's a in and out surgery, one day. The leads go in your spine, depending on where u needs the stimulation. Arms or legs. Then there is a generator in your butt, lol… it sends the signals to your spine. U control it with a ipod. I'm almost at the year mark and u just get used to it. Sometimes I still get healing pains in my back, but I'm glad I did it!
mam14
@mam14
@mam14
Posts: 38
Joined: Feb 05, 2019
@rsnowflake Hi things are up and down all the time, but I try to keep going, but sometimes my body just doesn't feel like it. I'm sure u understand how that is. I looking into going to a specialist maybe in new York, I live in Philadelphia, but there are only a few people who even know what crps is… and with my other issues I feel ove gone as far as I can here with doctors. Thanks for asking how I am, usually people r afraid to ask…lol. How are you?
I am going to Birmingham this weekend for an appointment with my neurologist Monday. I hope that he has some suggestions. I'm drained. I feel like everyday I have to push myself so hard to get up and move. I will look up Hashimoto. I don't know anything about it.
mam14
@mam14
@mam14
Posts: 38
Joined: Feb 05, 2019
@rsnowflake Just wrote u but I know the feeling. I have chronic hives, I am bipolar, and i have Hashimoto's disease, which is a autoimmune thyroid disorder. I take 14 prescriptions a day. And go in once a month for an infusion to keep the hives down. I'm a mess.
That's a lot of medicine.
Liked by rsnowflake
Parus
@parus
@parus
Posts: 2239
Joined: Jul 14, 2017
@sandytoes14 I tried the Fibro Malic and had no change with it. I know @lioness is helped by taking it. Also ginger makes my pain worse. Interesting how we are all so different. I am glad to hear the FibroMalic has helped.
Liked by Teresa, Volunteer Mentor, lioness
rsnowflake
@rsnowflake
@rsnowflake
Posts: 53
Joined: Nov 13, 2018
@mam14 That's a lot of medicine.
Trust me I know…..but I have a wonderful daughter who depends on me, but she's great with all the medical stuff. My husband's amazing I've made it through and I will continue to do so…nothing will make me give up trying something new.
rsnowflake
@rsnowflake
@rsnowflake
Posts: 53
Joined: Nov 13, 2018
@mam14 I am going to Birmingham this weekend for an appointment with my neurologist Monday. I hope that he has some suggestions. I'm drained. I feel like everyday I have to push myself so hard to get up and move. I will look up Hashimoto. I don't know anything about it.
Best luck on Monday. I hope you have a wonderful doctor to help and support you. Don't give up, just keep pushing on. It's horrible I know, but know your not alone!! And many others I've talked with feel the same way. Sometimes crazy, cause people don't believe you or sometimes u r even in 2 much pain to complain, I do that a lot! Keep a smile on your face. Renee
@rsnowflake Just wrote u but I know the feeling. I have chronic hives, I am bipolar, and i have Hashimoto's disease, which is a autoimmune thyroid disorder. I take 14 prescriptions a day. And go in once a month for an infusion to keep the hives down. I'm a mess.
I too have hives.
rsnowflake
@rsnowflake
@rsnowflake
Posts: 53
Joined: Nov 13, 2018
@mam14
In reply to @rsnowflake
One of my doctors advised the stimulator but I haven't agreed yet. My health issues began with a bladder sling. What was involved in putting that in?