Want to talk with others. Have you found relief from CRPS?

Posted by mam14 @mam14, Feb 4, 2019

I was diagnosed with complex regional pain syndrome a year ago. It has since spread and I am experiencing a decline in my health at an alarming rate. I am hoping to talk to others that may have found relief.

@struggler23

May I ask what they feel caused the crps ?

Jump to this post

It's usually caused by a break or sprain. I broke my ankle and I couldn't do physical therapy because my ankle swelled and turned odd colors, but my orthopedic surgeon said the break was totally fine. Basically it broke and then the brain never knows to turn off the pain signals, so it sends them other places.

REPLY
@struggler23

May I ask what they feel caused the crps ?

Jump to this post

I ruptured the fascia on the bottom of my foot. I had some small tears and bruising. I moved too fast and it snapped. It was immobilized for so long and was so painful. That is what caused it with me. I read that it can occur without injury also.

REPLY
@rsnowflake

It's usually caused by a break or sprain. I broke my ankle and I couldn't do physical therapy because my ankle swelled and turned odd colors, but my orthopedic surgeon said the break was totally fine. Basically it broke and then the brain never knows to turn off the pain signals, so it sends them other places.

Jump to this post

Renee, did you say that you had a spinal stimulator implanted?

REPLY
@mam14

I ruptured the fascia on the bottom of my foot. I had some small tears and bruising. I moved too fast and it snapped. It was immobilized for so long and was so painful. That is what caused it with me. I read that it can occur without injury also.

Jump to this post

I had an undiagnosed 3rd degree tear of my L calcaneal cuboid ligament (heel bone); so I walked around in severe pain, going from 1 specialist to another for 3 months before an orthopedist diagnosed both it and the CRPS ( then, 1995, more commonly known as RSD). Put me in a foot, ankle leg brace for 2-3 months, and put me on gabapentin.

REPLY
@mam14

Renee, did you say that you had a spinal stimulator implanted?

Jump to this post

Yes I have a spinal stimulator implant. It has helped my arms and hands tremendously. I had severe signs in my hand of crps and it jumped to my other arm. you are welcome to ask anything about it. Renee

REPLY
@struggler23

I had an undiagnosed 3rd degree tear of my L calcaneal cuboid ligament (heel bone); so I walked around in severe pain, going from 1 specialist to another for 3 months before an orthopedist diagnosed both it and the CRPS ( then, 1995, more commonly known as RSD). Put me in a foot, ankle leg brace for 2-3 months, and put me on gabapentin.

Jump to this post

Unfortunately I have several other problems " "illnesses " that I take a lot of medications for, the gabapentin didn't work for me at all.

REPLY
@rsnowflake

Yes I have a spinal stimulator implant. It has helped my arms and hands tremendously. I had severe signs in my hand of crps and it jumped to my other arm. you are welcome to ask anything about it. Renee

Jump to this post

One of my doctors advised the stimulator but I haven't agreed yet. My health issues began with a bladder sling. What was involved in putting that in?

REPLY
@rsnowflake

Unfortunately I have several other problems " "illnesses " that I take a lot of medications for, the gabapentin didn't work for me at all.

Jump to this post

I started on gabapentin a year ago. I didn't like it. I was told years ago that I had an autoimmune issue. My gallbladder quit functioning and I had it removed. I have high blood pressure and take thyroid meds. I feel like I take so much medicine.

REPLY
@struggler23

I had an undiagnosed 3rd degree tear of my L calcaneal cuboid ligament (heel bone); so I walked around in severe pain, going from 1 specialist to another for 3 months before an orthopedist diagnosed both it and the CRPS ( then, 1995, more commonly known as RSD). Put me in a foot, ankle leg brace for 2-3 months, and put me on gabapentin.

Jump to this post

How are you now?

REPLY
In reply to @rsnowflake "@mam14" + (show)

Hi things are up and down all the time, but I try to keep going, but sometimes my body just doesn't feel like it. I'm sure u understand how that is. I looking into going to a specialist maybe in new York, I live in Philadelphia, but there are only a few people who even know what crps is… and with my other issues I feel ove gone as far as I can here with doctors. Thanks for asking how I am, usually people r afraid to ask…lol. How are you?

REPLY
@mam14

I started on gabapentin a year ago. I didn't like it. I was told years ago that I had an autoimmune issue. My gallbladder quit functioning and I had it removed. I have high blood pressure and take thyroid meds. I feel like I take so much medicine.

Jump to this post

Just wrote u but I know the feeling. I have chronic hives, I am bipolar, and i have Hashimoto's disease, which is a autoimmune thyroid disorder. I take 14 prescriptions a day. And go in once a month for an infusion to keep the hives down. I'm a mess.

REPLY
Please sign in or register to post a reply.