Want to talk with others. Have you found relief from CRPS?

Renee, how did you end up with pneumonia? Was it after an illness? I have had a cough for a long time. Some mornings it gets really bad. My doctor changed one of my blood pressure meds but it hasn't helped. I feel like CRPS is attacking my entire body. Everything hurts and nothing seems to work right.

Yeah, I've always been sicker then most people, but since being diagnosed my health has deteriorated. But I push through it as much as I can . I was actually in the hospital again last night. With my asthma . It's a hard disorder it complicates tons of things because it's neurological, but they seem not to really know anything. I've found out from a lot a research on my own, trials, medical journals. But I think I'm going to have to find a doctor who's a specialist. Keep talking and u can ask me anything or talk whenever you need. Renee
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That's really good to know that I have someone that understands and knows what is going on. I'm so sorry that you were back in the hospital. I hope that you are feeling better.

May I ask what they feel caused the crps ?

It's usually caused by a break or sprain. I broke my ankle and I couldn't do physical therapy because my ankle swelled and turned odd colors, but my orthopedic surgeon said the break was totally fine. Basically it broke and then the brain never knows to turn off the pain signals, so it sends them other places.

I ruptured the fascia on the bottom of my foot. I had some small tears and bruising. I moved too fast and it snapped. It was immobilized for so long and was so painful. That is what caused it with me. I read that it can occur without injury also.

Renee, did you say that you had a spinal stimulator implanted?

I had an undiagnosed 3rd degree tear of my L calcaneal cuboid ligament (heel bone); so I walked around in severe pain, going from 1 specialist to another for 3 months before an orthopedist diagnosed both it and the CRPS ( then, 1995, more commonly known as RSD). Put me in a foot, ankle leg brace for 2-3 months, and put me on gabapentin.

Yes I have a spinal stimulator implant. It has helped my arms and hands tremendously. I had severe signs in my hand of crps and it jumped to my other arm. you are welcome to ask anything about it. Renee

Unfortunately I have several other problems " "illnesses " that I take a lot of medications for, the gabapentin didn't work for me at all.