Want to talk with others. Have you found relief from CRPS?
I was diagnosed with complex regional pain syndrome a year ago. It has since spread and I am experiencing a decline in my health at an alarming rate. I am hoping to talk to others that may have found relief.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
Trust me I know…..but I have a wonderful daughter who depends on me, but she's great with all the medical stuff. My husband's amazing I've made it through and I will continue to do so…nothing will make me give up trying something new.
Best luck on Monday. I hope you have a wonderful doctor to help and support you. Don't give up, just keep pushing on. It's horrible I know, but know your not alone!! And many others I've talked with feel the same way. Sometimes crazy, cause people don't believe you or sometimes u r even in 2 much pain to complain, I do that a lot! Keep a smile on your face. Renee
CBD Daily. It’s a cream that helps me.
I too have hives.
Do you know what they r from?
I also have trouble with my vision. I have had CRPS for just about 20 years. I have visual disturbances – see black and white lines in somewhat of a wavy pattern. Reading is also difficult but I also have corneal dystrophy and cataracts. The blurriness is most disturbing to me. I am taking CDB capsules called Green Mountain, made in Vermont. I stopped taking them for a while but have recently started up again. I was taking them at night but it seemed to hinder my sleep so now I am taking them twice during the day. I am looking forward to improvement.
I see a marvelous pain management doctor. He's been taking great care of me. This week I am having radio frequency ablation on my occipital nerve.The last one gave me great relief for almost six months. Once workers' comp approves I will have rfas on my low back. It's been two years since I had my last ones. That''s great relief. I had a second spinal cord stimulator implanted this past summer. The first was done in 2012 and the newer model is far more useful for me. I have CRPS in both feet, left knee, and left butt.
I'm sorry to hear this. I can't imagine 20 years of this. I'm glad that you have found help. Where do you live?
Could CRPS be related to Stiff Man(Person) Syndrome? Never heard of either until recently and my doctor said both could be possibilities re: my pain.
Sorry to hear about your health issues with CRPS, I too was diagnosed about 4 month ago. I had a TKR and developed CRPS in the knee area. I have had granular shots in the knee and use a cream and patch when nerves are active. This has helped very much. The concern for me is that I am starting to feel nerve pain on the opposite knee and breast. Did yours start in one place and spread?