XALKORI (crizotinib)

Posted by 2onlow8 @2onlow8, Oct 19, 2019

I’m getting switched off of Keytruda and Alimta to targeted therapy Crizotinib. Does anyone have any experience with this? Side effects? Success/failure? I’m told I have few options available.

@2onlow8– Oh those are words none of us want to hear, "no further treatment suggestions". Do you think that you will seek more opinions?

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@ethanmcconkey

Hi @2onlow8 here is some more information on crizotinib (Xalkori) https://www.cancerresearchuk.org/about-cancer/cancer-in-general/treatment/cancer-drugs/drugs/crizotinib

What has your doctor told you about this?

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Regarding crizotinib (Zalkori), how much is this drug if your insurance is Medicare?

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I have Medicare and AARP UHC and it would have cost me an additional $9600/mo.

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@merpreb

@2onlow8– Oh those are words none of us want to hear, "no further treatment suggestions". Do you think that you will seek more opinions?

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@2onlow8–- Good morning. I am checking in to see how you are doing and if you have made any decisions about treatments given your last post!

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@merpreb

@2onlow8– Oh those are words none of us want to hear, "no further treatment suggestions". Do you think that you will seek more opinions?

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I have a 2nd opinion oncologist at MD Anderson, Jacksonville, who has been very supportive of me and my local oncologist's suggestions over the past 2 years of my treatments. I'm awaiting results of a PT scan I had on Friday and he will also get those scan results so I'm sure we'll have a conversation this week.

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@2onlow8

I have a 2nd opinion oncologist at MD Anderson, Jacksonville, who has been very supportive of me and my local oncologist's suggestions over the past 2 years of my treatments. I'm awaiting results of a PT scan I had on Friday and he will also get those scan results so I'm sure we'll have a conversation this week.

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@2onlow8– This is good to hear. Please keep us updated! Keep safe.

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You too — as well as all of us with this horrible 'underlying condition'.

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@merpreb

@2onlow8– Oh those are words none of us want to hear, "no further treatment suggestions". Do you think that you will seek more opinions?

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Very happy to report that last week’s PT scan showed remarkable improvements to my lungs after 3.5 months of Xalkori! But I am still very short of breath due to fluid build up and damage to my lungs. Thoracentisis being scheduled. So far so very very good 😷.

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