ALK mutation: Getting alectinib targeted therapy for stage 4 NSCLC
I am new to this site and wanted to get feedback from other people work ALK non-small cell lung cancer. In August 2019 I was diagnosed with a brain tumor and stage 4 lung cancer. In 2016 I was diagnosed with stage 1 lung cancer and had a left lower lobe Tony, since then negative chest CTs every 3-6 months until August. Only symptom I had was a slight headache for several weeks which lead us to discover the brain tumor which is a lung cancer met. We were shocked! I had just biked with my husband across Europe.
My doctor started me on Alectinib after the ALK mutation genome returned. I also had 5 days of target radiation to my surgery tumor site after my craniotomy. I am tolerating Alectinib well but experiencing fatigue and shortness of breath. Getting exercise is challenging. I am waiting for my first chest CT since starting Alectinib Dec 9 & Brain MRI Dec 19. I would like to hear from others on Alectinib and their experience.