Crazy high calcium score of 3,000+

Posted by heycal @heycal, Jun 17, 2024

61 male with COPD which doesn't keep me from exercising regularly. No symptoms of anything unusual lately. Diet is not great, but not overweight in the least. Had a Stent put in for carotid artery 18 months ago. Been on atorvastin and ramipril for BP and high cholesterol for a few years now. Cholesterol numbers now look pretty good I think.

Just had a CT ordered for calcium score after "severe coronary calcifications" noted on routine lung CT scan. My score was just over 4000, though with 'accuracy comprised by motion detection or something', though I'm guessing it's at least somewhat roughly accurate. I was stunned by this number when I saw it today in my health app (I was prepared to freak if I saw 400!), and haven't heard back from my doctor yet. Found this group in the meantime, which made me slow my catastrophic thoughts somewhat as I imagined myself undergoing emgergency heart surgery this evening....

As I await further word, perhaps you folks can tell me what these numbers mean in the report, and what I can expect going forward?

LM: 0 LAD: 658 LCx: 329 RCA: 3062

Thank you,

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Profile picture for aldo2 @aldo2

..by the way, because it was so depressing to learn of an ultra-high CAC score, and what that means mortality-wise, I'm glad I did the CTA - for my own mental health. As it turned out, the two worst-affected arteries for me (LAD and RCA) were 40 and 50% stenosis in two small parts and 10-20% in two small other areas. So could be worse, though there obviously could be worse stenosis in other areas not seen. I'm doing TCD doppler scans now to check blood flow in my head and neck. If that's bad, I'll do another CTA for head and neck. I know the doctors don't recommend these due to the affect contrast dye can have on kindeys, but mine seem stronger than usual for my age. So it's a roll of the dice. To each his own I guess.

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@aldo2 I might ask for the CTA next time myself. Though I do wonder if pushing for it just ends up giving me knowledge I don't want -- like, perhaps, discovering some amount of stenosis, as in your case. Right now, no doctor is telling me I need it, and I can still fantasize that all is perfectly well inside, so a part of me feels like "don't go looking for trouble".

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Profile picture for Janell, Volunteer Mentor @jlharsh

Yes, a lot to think about @kswartz! You are doing everything you can by staying active, watching what you eat, and working with a cardiologist who is on top of your unique situations. Your husband’s 5000+ calcium score sounds shocking and I imagine you joining him by addressing your own heart health encourages him tremendously.

I am tagging members that may have helpful information/updates to share. @heycal created this discussion after a routine CT. @robmtk and @njx58 have mentioned an extremely high calcium score and/or treating LDL.

Like your husband, my LDL goal is 50. Getting close to that the last year or so has required a knowledgeable care team and multiple medications that seem to have synergy working together. I also get relief from Flonase and antihistamine eye drops, in addition to a super consistent high level of exercise, strict diet and weight training.

You mention walking daily and improving your diet. What kind of changes have you made?

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@jlharsh I'm doing the heart healthy diet with my husband and this is a huge change for both of us. I’m active as can be doing daily exercises, but I also have MS so walking isn’t my forte! I belong to an online physio program called the MS Gym with Trevor Wicken who is a MS specialist in physiotherapy. I also have joined some MS exercises on the MS Link with a MS specialist physical therapist ( Dr Gretchen Hawley, PT). I’ve always exercised even prior to MS but now I’m more limited since 2007. I also got scared enough to give in and start rosuvastatin. Thanks for your input!

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Profile picture for Janell, Volunteer Mentor @jlharsh

I am so, so sorry you are scared, @sdbonniea123.

The exercise these cardiologists went through had the goal of figuring out if they could guess where heart attacks would happen. The hypothesis they started with was that problems start at the place where the blockages are the greatest, where the most calcification, or hard plaque is located. So, following this upfront guess, you would think an 80% blockage would cause more problems than say, a 35% blockage. This is NOT what they found.

I found this explanation:
“ Unfortunately, as we age, plaque accumulates in our arteries. This starts as soft, cholesterol-laden plaque that eventually calcifies and hardens. Even though the process effectively begins at birth, most people do not have clinically significant blockages in their arteries until they are well into middle age.

Interestingly, and somewhat counterintuitively, calcified plaque is probably the less dangerous of the two. When a heart attack happens it is due to the sudden rupture of a soft, unstable plaque that might be obstructing only 10 or 20 per cent of the artery. Longstanding, calcified 90-per-cent blockages don’t cause heart attacks. They may cause angina — chest pain on exertion — but a stable plaque won’t suddenly rupture and provoke a myocardial infarction.”

I don’t remember you saying you are having angina symptoms, or chest pain. I am guessing that when your cardiologist told you they are more concerned about your cholesterol than your 400 calcium score, they are saying the concern is your softer plaque, and that is something you can do something about. I am not a medical person, just someone on this same path as you.

Why did you have your initial calcium testing done, were you having symptoms? Did your cardiologist do bloodwork?

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@jlharsh just an update for you. My angio got approved (and for those who are scared I was too - but I remember NOTHING about it and it was painless and uneventful!) The result was better than I expected: “Mild unobstructive coronary artery disease with mLAD 30%” So no blockage but narrowing, The Dr. who did the procedure told my husband that the calcium is on the outside of the arteries. Not sure if that’s right but I was in recovery so I’m relying on what he’s saying. Anyway, I have an appointment with my regular cardiologist to follow up on the test in a couple months and I’m sure she’ll explain everything. I am just grateful that it’s nothing urgent!!! With my calcium number and family history I thought it would be much worse. So I’m feeling very grateful and relieved. I think the lesson here is that a high calcium score doesn’t always equal a death sentence. When I got the results of the calcium score that I had a 400 in the LAD I googled and it pretty much told me I was on death’s door. Another good lesson: don’t Google! Also pre-procedure bloodwork showed my cholesterol is down to literally half of what it was since I started taking statins about a month ago. I don’t remember the last time I total cholesterol was in the 100s and now it is! The statins mad pe me feel kind of funky for a while, but I think I’ve gotten through the worst of it. So this is all really positive, and hopefully the appointment with my cardiologist will just affirm everything that I am feeling about the results. Thanks for your support - it meant so much to have that compassion and empathy! 🙏

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