Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Three years ago I developed chemo induced neuropathy in my hands and feet. In 2021 I participated in a clinical trial which confirmed my diagnosis through a skin biopsy, skin ultrasound and other sensory tests performed by a neurologist. I don't think the trial is completed so I can't give any results. I can say that I've had four Pfizer vaccine shots and noticed no worsening of symptoms. However, last week I tested positive for covid (mild symptoms and I took Paxlovid), and the neuropathy worsened in my hands and feet. So for me, I will continue to get the shots. As to nutrition, etc., I've got nothing. The trial wax testing a supplement containing some form of nicotinamide.

REPLY
Profile picture for cue @cue

My neurologist didn't request a skin biopsy. My SFN is caused by antibodies and was diagnosed through extensive blood tests at UCLA. IVIG treatments would probably help me but I'm unable to tolerate them. Although I am better than when I first had neuropathy symptoms so maybe the few doses I had helped.
My SFN is not from the vaccines it is pre-covid. I never had the mRNA vaccines. I had the other vaccines.
I'm the person who started this discussion a few years ago and I hope everyone who has shared their experiences is doing better now.
Take care. Joy

Jump to this post

Oh, the previous vaccines we've had many years ago, can cause neuropathy years later. Such as hepatitis vaccines , and flu vaccines I unfortunately had on my doctor recommendation when travelling.
Even flu vaccines some years before covid were mRNA already .

REPLY

Way too many
My foot neuropathy started within a month of the shingles vaccine
Second Pfizer worsened it terribly. Stopped there and would never have another one

REPLY

Anyone diagnosed with multi neuropathy associated with POEMS?

REPLY
Profile picture for shona @shona

Way too many
My foot neuropathy started within a month of the shingles vaccine
Second Pfizer worsened it terribly. Stopped there and would never have another one

Jump to this post

Same thing happened to me. Developed neuropathy 24hrs after I got Shingrex. But it only lasted 2days. I got the second shot and it came back again but cleared after a month. My neurologist said it was just inflammation from the vaccine and it shouldn’t be permanent. Then had my first Pfizer vaccine and it caused so much neuropathy pain and this time it didn’t go away. My neurologist urged me to get my second covid shot but knowing what the 1st one did to me I never got another one. Scared to even get the flu vaccine at this point. Wish I had never gotten Shingrex! If I hadn’t maybe the covid vaccine wouldn’t have caused this on going neuropathy and I’d be living a normal life in more ways than one. But I’ll never know. Wish you well.

REPLY

My heart goes out to you, I'm done with vaccines also and no more flu shots even.

Wishing you only the best.

REPLY

New covid vaccine comments that may belong in this discussion group. A lot of information came out of this group that may help new people with vaccine problems.
Thanks.
Joy

REPLY

The ramifications from Covid, Flu, Pneumonia, Hepatitis, RSV and Shingles could be severe. I personally will not give up on vaccines.

REPLY

After I got the 3rd. moderna vaccine I had a pancreatitis attack and I started small fiber from the vaccine. Prior I had neuropothy in my feet a little. Now, after the 3rd. vaccine I have small fiber neuropathy and other neuropathies. I get 2 days a month the IVIG infusion. It has helped. However my hands are always numb. The infusion helps with the hypersensitivity and calms the pain for about 3 1/2 weeks. I. personally, will not get the vaccine anymore because of what the last vaccine did to me. I still have not had covid. Just the vaccine that made me sick and permanently ill.

REPLY

You poor thing. I feel your pain. I agree, I believe the boosters did me in. I may have had covid, but not sure since I wasn't tested. My problems came upon me a little at time. Piece by piece I feel. Trouble is all this is hard to prove to the medical field.

Best luck to you.

REPLY
Please sign in or register to post a reply.