Anyone had a problem with neuropathy after receiving the vaccine?
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
Interested in more discussions like this? Go to the Neuropathy Support Group.
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Thank you Lacy!
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1 ReactionPost-Vaccination Neurological Event. “MODERNA”
I am now on Day (6) of a post-vaccination neurological event. Hours after the 1st shot, I experienced numbness in my left shin and foot. Did have random pricking and skin sensations in the seat of my pants.
Now, it has spread to the right leg and moving up to the waist. I have neurological itching in my nostrils and face. I thought it was an allergy, but antihistamines were ineffective. Gabapentin was effective pointing to a Neurological origin. I do have pinpricks in my fingers, feet, and lower Trunk (random). ED evaluated me and advised if I begin to lose balance, bladder or Bowel control to return to the emergency department without delay. I see the Neurologist at Jefferson Hospital this Friday. They are hoping this will resolve but will keep close surveillance on the issue just in case it morphs into a more insidious issue.
Will keep you posted
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4 ReactionsThank's very much. The doctor told me he had no information on covid vaccine side effects for neuropathy. It may cause a problem for some, not for others. Was told to drink lots of water and take Tylenol before vaccine.
Please keep me posted with your post-covid neurological side effects. I'm on day (7), and 4 hours ago, I experienced weakness in my left leg and left arm. The back of my left arm was sensitive and felt heavy. Strength returned in both limbs one hour before this posting, but random burning and pinpricks remain, especially in the feet. GBS Syndrome and TM are on my doctor's radar, among other neurological syndromes. We are all hoping that this spontaneously resolves.
About 11 years ago I had symptoms that were never diagnosed but definitely seem like sensory peripheral neuropathy. They went away spontaneously in about 3 or 4 months. After the 1st Covid 19 shot ( Pfizer), it all came back. It's been almost 3 weeks and nothing has changed, maybe a bit worse. I have an app't with my primary care but dread the response as it appears any association with the vaccine is being discounted. I can't see getting the 2nd shot with symptoms still going on but feel so unsure where that leaves me as far as the vaccine requirement is concerned. I'm hoping things will calm down but I'm not sure where to go from here. I'm thinking of trying ALA and Vitamin B12.
Hello @cosette1968, Welcome to Mayo Clinic Connect. I'm sorry to hear you had adverse side effects from the 1st Pfizer COVID vaccine. There is a way you can report an adverse side effect yourself. Here is the website where you can find out how - Report an Adverse Event to VAERS: https://vaers.hhs.gov/reportevent.html.
My wife and I both had the 1st and 2nd Pfizer vaccine but only had a sore arm from the first one and extreme fatigue the day after the second one. We also used the V-safe After Vaccination Health Checker where we registered after we received the shot and they send you a text message daily for a week to answer a few questions about any side effects and how you are doing. It's really easy to respond to the short survey via your cell phone and hopefully the data will help everyone.
V-safe After Vaccination Health Checker: https://www.cdc.gov/coronavirus/2019-ncov/vaccines/safety/vsafe.html
Can you ask your primary care doctor what they recommend when you have your appointment?
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3 ReactionsI have idiopathic small fiber neuropathy with burning, numbness, and lots of pain in my feet and legs. After I got my 2nd Moderna vaccine I had a slight headache and increased pain in my legs the next day (yesterday). So far today I think my leg pain has subsided to it's normal level (still not good but better than yesterday). Hopefully the vaccine has not had any lasting affect on my neuropathy. I am looking forward to not worrying about Covid-19 now. My neurologist approved me getting the vaccine.
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2 ReactionsHello @lucyrennell, Welcome to Connect. Thank you for sharing your experience with the Moderna COVID vaccine. I too am looking forward to not having to worry about COVID-19 and all the fear that comes with it. Hoping the vaccine doesn't have any long term affect on your neuropathy also. I was fortunate with my small fiber neuropathy in that the COVID vaccine I took (Pfizer) had no affect other than the minor reported ones. Have you thought about reporting your side affect?
– Report an Adverse Event to VAERS: https://vaers.hhs.gov/reportevent.html.
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2 ReactionsI'm not sure if the side affect was more neuropathic pain or muscular pain mixed with my neuropathy that just made my legs ache more.
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2 ReactionsThank you for the welcome and the information. I used the V-safe text message to report my symptoms. All I got was automatic replies ( even though I indicated peripheral neuropathy) with the final one telling me it's time for my second shot. I think the VAERS would be more complete but I still need to take the time to do that. I will be asking my primary care doctor what her advice is - going today. I also have a chronic form of leukemia and have a long standing app't with my oncologist tomorrow so will ask him as well. My gut feeling is that this vaccine triggered some sort of autoimmune response. It's just a gut feeling but I'm 75 years old and I know my body pretty well. My question to the doctors I will see and anyone out there who has an idea is - is there anything that can be done to calm down/reverse/halt this overactive immune response?
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