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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 14, 2023 | Replies (2164)

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@johnbishop

Hello @cosette1968, Welcome to Mayo Clinic Connect. I'm sorry to hear you had adverse side effects from the 1st Pfizer COVID vaccine. There is a way you can report an adverse side effect yourself. Here is the website where you can find out how - Report an Adverse Event to VAERS: https://vaers.hhs.gov/reportevent.html.

My wife and I both had the 1st and 2nd Pfizer vaccine but only had a sore arm from the first one and extreme fatigue the day after the second one. We also used the V-safe After Vaccination Health Checker where we registered after we received the shot and they send you a text message daily for a week to answer a few questions about any side effects and how you are doing. It's really easy to respond to the short survey via your cell phone and hopefully the data will help everyone.

V-safe After Vaccination Health Checker: https://www.cdc.gov/coronavirus/2019-ncov/vaccines/safety/vsafe.html

Can you ask your primary care doctor what they recommend when you have your appointment?

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Replies to "Hello @cosette1968, Welcome to Mayo Clinic Connect. I'm sorry to hear you had adverse side effects..."

Thank you for the welcome and the information. I used the V-safe text message to report my symptoms. All I got was automatic replies ( even though I indicated peripheral neuropathy) with the final one telling me it's time for my second shot. I think the VAERS would be more complete but I still need to take the time to do that. I will be asking my primary care doctor what her advice is - going today. I also have a chronic form of leukemia and have a long standing app't with my oncologist tomorrow so will ask him as well. My gut feeling is that this vaccine triggered some sort of autoimmune response. It's just a gut feeling but I'm 75 years old and I know my body pretty well. My question to the doctors I will see and anyone out there who has an idea is - is there anything that can be done to calm down/reverse/halt this overactive immune response?