COVID vaccines and neuropathy

Indeed miraculous especially since the mainstream medicine has said there is NO CURE for neuropathy or erythromelalgia and one must simply live with it and manage it with more side effect "disclaimer"drugs.
If only that miracle would be duplicated for ALL that suffer with neuropathy or tinnitus or any of the pre-existing neurological and quality of life damaging challenges.

I realize that this is a year too late to respond to your question but I wanted to report that I’ve actually had an improvement in my small fibre neuropathy after getting 3 Pfizer vaccinations.

My neurologist was suggesting I start gabapentin or other for pain, but a week after my first vaccination last year, my pain improved 70%. It continued to gradually improve until I had my 2nd vaccination. 1-2 weeks later, my pain disappeared. After my booster, I’m starting to get some return in sensation.

Neuropathy started 7 years ago after a “flu”.

Has anyone else noticed an improvement?

Welcome @claireharris, my small fiber peripheral neuropathy numbness has improved some since I had my 2 Pfizer vaccines and the booster but I attribute mine to eating healthier, exercising more and taking a specific protocol of vitamins and supplement for neuropathy. That is great news that you had a 70% improvement in your pain. It sounds like you never needed gabapentin for the pain with your neuropathy?

Yes! I just posted on this thread a few minutes ago. I’ve have a neuropathy for 7 years after a “flu-like” virus, decreased sensation and intermittent pain 1° In my feet. A little decreased sensation in my finger tips. My neurologist had started being firmer about wanting me to start gabapentin or other similar meds.

1-2 weeks after my first Pfizer, my pain was 70% less, and was completely gone after the second vaccine.

After my Pfizer booster at the end of December, I’ve now started getting sensation back, documented today by my neurologist appointment.

She had some non-specific thoughts about why this has happened and other than to say it was a coincidence, couldn’t explain the timing to my vaccinations.

I think it’s more common for people to post deterioration in symptoms than improvements… so I do wonder how many of us are out there?

My neurologist was mainly worried that the pain pathways could be more firmly set and was suggesting a low dose to stay on top of it.

I’d say it was mild heading towards moderate pain but still intermittent.

I’m on supplements as well, exercise and eat healthily, but those are long standing…supplements for almost 3 years.

I now have no pain, and have recovered more than half of the sensation in my feet.

I do believe my healthy eating, exercise and supplements set the stage for the mRNA vaccine to work whatever magic it did.

I am not intending to reopen this discussion. My point in that post was that neuropathy is far more common after Covid infection than after vaccine.
Those numbers still hold firmly, and aftereffects can and do happen to mild, moderate and severe cases of Covid alike. If you read through the long-Covid posts here, you see a small sample of the many people whose lives have been drastically affected by long lasting health problems.
Sue

I developed paresthesia After the second Moderna vaccine. Symptoms began with cold hands and feet, Progressed to numbing of the left side of my body including face. It is relatively mild, and has been mild for approximately eight months now. Symptoms are daily and slightly progressive. There is no pain, nor fatigue. Just a feeling of numbness, but I *do* have feeling. It has not impacted strength nor coordination. I have seen two neurologist and both are uncertain because the symptoms change daily. I have nothing to draw back on other than the vaccine, as I had no health issues prior. I continue to take this day by day.
The neurologists have not given me any significant testing because the symptoms are not impacting. Yet, I feel them every day. Linda

I too am not an anti-vaxxer, but I had a bad reaction to the Pfizer vaccine. It started with tremors in my hands and feet, then fasciculations throughout my body, extreme nausea, brain fog, exhaustion, and numbness in my feet. I'm yet to see a neurologist and I'm suffering every day. I hope you make some headway with the media but unless it's one of the accepted post-vaccine conditions you are likely to not get any attention. No one in legitimate media wants to touch this issue with a 10 foot pole. So the rest of us suffer in silence. I believe it will come out but many years from now when there is no longer any pressure to get people vaccinated. We will never be compensated unless we're recognized and we all signed that indemnity form before getting the jab. And, honestly, no amount of compensation could make up for what I'm going through and the mental anguish. I feel completely broken.

Yes I was diagnosed with PN in November 2014 within weeks of having a shingles vaccines. About three weeks after my second P vaccine my PN went to my other side and has been so much worse. No I won’t be having my booster