Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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Yes in November I had the Pfizer booster and the following day could barely walk . I am now suffering from numbness with my right arm and both feet .

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I think there is a definite connection. Actually the neurology began for me when I had Covid-19. Then when I got a booster shot some time later I had the reaction where I couldn’t walk for several hours.

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Profile picture for shahmj07 @shahmj07

Good morning, this is what was recorded in the visit notes: "The etiology of X's episodic facial numbness is unclear, but X relates onset to X COVID vaccine. It is possible that X suffered a post-vaccine autoimmune nerve injury." I am now seeing a well-regarded Doctor of Osteopathy and after two treatments the numbness has subsided significantly. That doctor did record the issue as a vaccine injury.

X = my name and gender pronouns

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Thanks for sharing. What kind of treatment has helped, if I may ask .
Thank you

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Profile picture for capsaicin @capsaicin

That's so great! Would that were the case for each person's unique biology. The only way to know for sure is take your chances.

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That sounds like great news. If someone were actually tracking these reactions, so many people might not be suffering.

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Both my doctors, PCP and neurologist, have attributed the numbness and tingling to a "vaccine injury" after my 4th covid shot. The neurologist said it could have triggered a latent issue, which I didn't know I had any. I am due for an EMG and a C spine MRI. She wants to rue out a demyelination disease and a spine inflammation. She is thinking small fiber neuropathy or maybe even a mild Guillan Barre. After seeing her and being validated however, my anxiety went through the roof. It will take weeks to get anything scheduled here and then what? There doesn't seem to be any solutions. Hopefully time cures all. I certainly can't turn the clock back and not get that shot even though I wish to heavens I didn't do it. I am an RN working with the Native American population and have many friends and colleagues who have died before the vaccine was available. I am high risk myself. So, I thought I was doing a good thing. Sigh. She did say stop taking multi B vitamins and try Alpha Lipoic Acid, which I have already been doing. So far, one month of non stop tingling, numbness and muscles twitches. It's driving me crazy.

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Profile picture for selene53 @selene53

Both my doctors, PCP and neurologist, have attributed the numbness and tingling to a "vaccine injury" after my 4th covid shot. The neurologist said it could have triggered a latent issue, which I didn't know I had any. I am due for an EMG and a C spine MRI. She wants to rue out a demyelination disease and a spine inflammation. She is thinking small fiber neuropathy or maybe even a mild Guillan Barre. After seeing her and being validated however, my anxiety went through the roof. It will take weeks to get anything scheduled here and then what? There doesn't seem to be any solutions. Hopefully time cures all. I certainly can't turn the clock back and not get that shot even though I wish to heavens I didn't do it. I am an RN working with the Native American population and have many friends and colleagues who have died before the vaccine was available. I am high risk myself. So, I thought I was doing a good thing. Sigh. She did say stop taking multi B vitamins and try Alpha Lipoic Acid, which I have already been doing. So far, one month of non stop tingling, numbness and muscles twitches. It's driving me crazy.

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I have had family members with these
Same symptoms . They were told to avoid things / Foods that cause inflammation( gluten , alcohol …) after 6 to 9 months they no longer have symptoms . Hang in there!!! I hope this helped !

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Profile picture for selene53 @selene53

Both my doctors, PCP and neurologist, have attributed the numbness and tingling to a "vaccine injury" after my 4th covid shot. The neurologist said it could have triggered a latent issue, which I didn't know I had any. I am due for an EMG and a C spine MRI. She wants to rue out a demyelination disease and a spine inflammation. She is thinking small fiber neuropathy or maybe even a mild Guillan Barre. After seeing her and being validated however, my anxiety went through the roof. It will take weeks to get anything scheduled here and then what? There doesn't seem to be any solutions. Hopefully time cures all. I certainly can't turn the clock back and not get that shot even though I wish to heavens I didn't do it. I am an RN working with the Native American population and have many friends and colleagues who have died before the vaccine was available. I am high risk myself. So, I thought I was doing a good thing. Sigh. She did say stop taking multi B vitamins and try Alpha Lipoic Acid, which I have already been doing. So far, one month of non stop tingling, numbness and muscles twitches. It's driving me crazy.

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I’m curious as to why your neurologist recommends stopping the B vitamins. Mine said the exact opposite. However I don’t have much faith in my neuro. Everything I have figured out in this fiasco has mainly been on my own with him just along for the ride. I do take alpha lipoic acid and you will find many others here who do as well. I don’t have much of an opinion as to whether it’s helping me or not. And BTW our stories are very similar except that my symptoms started immediately after the first shot. I have now had a total of 3 so obviously I am not an anti-vaxxer either.

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Profile picture for lk61 @lk61

I’m curious as to why your neurologist recommends stopping the B vitamins. Mine said the exact opposite. However I don’t have much faith in my neuro. Everything I have figured out in this fiasco has mainly been on my own with him just along for the ride. I do take alpha lipoic acid and you will find many others here who do as well. I don’t have much of an opinion as to whether it’s helping me or not. And BTW our stories are very similar except that my symptoms started immediately after the first shot. I have now had a total of 3 so obviously I am not an anti-vaxxer either.

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My doctor told me to continue the B12, though my levels are normal and I don't think that's the issue. She said some B vitamins, I think it was B6, can actually increase tingling. So, I just stopped taking the multi B and continued with the B12. So, we'll see.

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My SFN has definitely gotten worse after the vaccines (Moderna) and the booster (Pfizer).

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Hi everyone.
I am hoping some of you lovely people might be able to help.
My Mum has to have open heart surgery next week, and the hospital has a strict policy around visitors being double vaccinated.
I cancelled my vaccination appointment because of my fears that my SFN would get worse. As a consequence, I am not permitted to visit Mum.
I am applying for a temporary exemption to be filed with the Australian government.
I am seeking communication with people who have had the link between worsening of neuropathy symptoms and vaccination confirmed if not suspected with their treating doctor.
The criteria for formal exemption in Australia are very narrow, so I have to put up a persuasive argument around balance of probabilities re this link. Because all of this is new, there is no substantial body of evidence that definitively shows a causal connection.
I can leave my email here but am not sure what the protocol is regarding that.
I appreciate any feedback.
Thanks,
Regards,
Sasha

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