Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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Profile picture for scotiagirl @scotiagirl

I too am not an anti-vaxxer, but I had a bad reaction to the Pfizer vaccine. It started with tremors in my hands and feet, then fasciculations throughout my body, extreme nausea, brain fog, exhaustion, and numbness in my feet. I'm yet to see a neurologist and I'm suffering every day. I hope you make some headway with the media but unless it's one of the accepted post-vaccine conditions you are likely to not get any attention. No one in legitimate media wants to touch this issue with a 10 foot pole. So the rest of us suffer in silence. I believe it will come out but many years from now when there is no longer any pressure to get people vaccinated. We will never be compensated unless we're recognized and we all signed that indemnity form before getting the jab. And, honestly, no amount of compensation could make up for what I'm going through and the mental anguish. I feel completely broken.

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I so empathize with you. I feel completely broken as well. I had to cut back to part time at work, and that might soon be going to total disability. Then I would apply to SSDI and inevitably get denied and have to get a lawyer to file an appeal.

Please see a neurologist and consider a punch skin biopsy to see if you have lost small fiber nerve density.

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Profile picture for cyp238ress @cyp238ress

I so empathize with you. I feel completely broken as well. I had to cut back to part time at work, and that might soon be going to total disability. Then I would apply to SSDI and inevitably get denied and have to get a lawyer to file an appeal.

Please see a neurologist and consider a punch skin biopsy to see if you have lost small fiber nerve density.

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That's a great suggestion. I have an appointment in a couple of weeks with a neurologist. I'm desperate fr some sort of answer.

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Has anyone suffered from numbness after the COVID 19 vaccine? I had both shots in April 2021. After the first my left hand was numb for a few days. After the second shot my left hand went numb again along with the left side of my face. I still suffer from numbness on the left side of my face and hand, which flares up significantly if I am under stress. I had a for work up of tests by a neurologist to rule out many issues + Lyme disease test. No issues identified. Doctors think it is a “vaccine injury”. Has anyone else had isssues like this? I am 50, have celiac disease, but am in otherwise great health.

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Profile picture for shahmj07 @shahmj07

Has anyone suffered from numbness after the COVID 19 vaccine? I had both shots in April 2021. After the first my left hand was numb for a few days. After the second shot my left hand went numb again along with the left side of my face. I still suffer from numbness on the left side of my face and hand, which flares up significantly if I am under stress. I had a for work up of tests by a neurologist to rule out many issues + Lyme disease test. No issues identified. Doctors think it is a “vaccine injury”. Has anyone else had isssues like this? I am 50, have celiac disease, but am in otherwise great health.

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Were your doctors willing to write it down as a vaccine injury or they just said it but won’t write it. There seems to be a fear of coming anywhere near that official diagnosis.

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Profile picture for shahmj07 @shahmj07

Has anyone suffered from numbness after the COVID 19 vaccine? I had both shots in April 2021. After the first my left hand was numb for a few days. After the second shot my left hand went numb again along with the left side of my face. I still suffer from numbness on the left side of my face and hand, which flares up significantly if I am under stress. I had a for work up of tests by a neurologist to rule out many issues + Lyme disease test. No issues identified. Doctors think it is a “vaccine injury”. Has anyone else had isssues like this? I am 50, have celiac disease, but am in otherwise great health.

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Good morning, this is what was recorded in the visit notes: "The etiology of X's episodic facial numbness is unclear, but X relates onset to X COVID vaccine. It is possible that X suffered a post-vaccine autoimmune nerve injury." I am now seeing a well-regarded Doctor of Osteopathy and after two treatments the numbness has subsided significantly. That doctor did record the issue as a vaccine injury.

X = my name and gender pronouns

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Profile picture for shahmj07 @shahmj07

Has anyone suffered from numbness after the COVID 19 vaccine? I had both shots in April 2021. After the first my left hand was numb for a few days. After the second shot my left hand went numb again along with the left side of my face. I still suffer from numbness on the left side of my face and hand, which flares up significantly if I am under stress. I had a for work up of tests by a neurologist to rule out many issues + Lyme disease test. No issues identified. Doctors think it is a “vaccine injury”. Has anyone else had isssues like this? I am 50, have celiac disease, but am in otherwise great health.

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@shahmj07, welcome. I moved your message to this existing discussion about neuropathy and the COVID vaccine.
- COVID vaccines and neuropathy https://connect.mayoclinic.org/discussion/covid-vaccines-and-neuropathy/

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Profile picture for aerc25 @aerc25

Were your doctors willing to write it down as a vaccine injury or they just said it but won’t write it. There seems to be a fear of coming anywhere near that official diagnosis.

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No! My neurologist won’t acknowledge my new onset neuropathy that began after my second M shot is related in any way. I reported on the Moderna website.

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Profile picture for dhamil @dhamil

That’s great! It’s crazy how the vaccine has effected people so differently. Unfortunately I wasn’t so lucky. I always taken supplements too, would you mind sharing what you’ve been taking? You never know what may have made the difference.

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D3 2000 mg bid (twice daily)
Vit c 250-500 mg qd (once daily)
Ubiquinol 200 mg bid
N-acetyl-L-Cysteine 500 mg bid
High dose R-lipoic Acid 300 mg bid
Acetyl-L-Carnitine 1000 mg bid
B multivitamin alternating with women’s vitam
B-12 1200 mcg qd (I’m on pariet for reflux which interferes with B-12 absorption)

For depression and cognitive issues I also take
Resveratrol concentrate 250 mg qd
PQQ-10 200 mg

The other thing that I think helped was getting my cholesterol under control with exercise, diet and medication over the last two years. It wasn’t terribly high but of any of my blood work, my neurologist was the most concerned it. I’ve also lowered my alcohol intake, not that it was very high to begin with but very little bit helps.

Note: These have been recommended by a medically trained naturopath and my psychiatrist. I also did some research on mitochondrial dysfunction as my smart neurologist believes that they’ll eventually discover that is the underlying cause of post viral neuropathy.

I’m looking into glutamine right now but am not on it at this point.

All the best! Please research these and consult a doc or medically trained naturopath!

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Profile picture for claireharris @claireharris

D3 2000 mg bid (twice daily)
Vit c 250-500 mg qd (once daily)
Ubiquinol 200 mg bid
N-acetyl-L-Cysteine 500 mg bid
High dose R-lipoic Acid 300 mg bid
Acetyl-L-Carnitine 1000 mg bid
B multivitamin alternating with women’s vitam
B-12 1200 mcg qd (I’m on pariet for reflux which interferes with B-12 absorption)

For depression and cognitive issues I also take
Resveratrol concentrate 250 mg qd
PQQ-10 200 mg

The other thing that I think helped was getting my cholesterol under control with exercise, diet and medication over the last two years. It wasn’t terribly high but of any of my blood work, my neurologist was the most concerned it. I’ve also lowered my alcohol intake, not that it was very high to begin with but very little bit helps.

Note: These have been recommended by a medically trained naturopath and my psychiatrist. I also did some research on mitochondrial dysfunction as my smart neurologist believes that they’ll eventually discover that is the underlying cause of post viral neuropathy.

I’m looking into glutamine right now but am not on it at this point.

All the best! Please research these and consult a doc or medically trained naturopath!

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Sorry for typos.”every little bit helps”

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Profile picture for claireharris @claireharris

D3 2000 mg bid (twice daily)
Vit c 250-500 mg qd (once daily)
Ubiquinol 200 mg bid
N-acetyl-L-Cysteine 500 mg bid
High dose R-lipoic Acid 300 mg bid
Acetyl-L-Carnitine 1000 mg bid
B multivitamin alternating with women’s vitam
B-12 1200 mcg qd (I’m on pariet for reflux which interferes with B-12 absorption)

For depression and cognitive issues I also take
Resveratrol concentrate 250 mg qd
PQQ-10 200 mg

The other thing that I think helped was getting my cholesterol under control with exercise, diet and medication over the last two years. It wasn’t terribly high but of any of my blood work, my neurologist was the most concerned it. I’ve also lowered my alcohol intake, not that it was very high to begin with but very little bit helps.

Note: These have been recommended by a medically trained naturopath and my psychiatrist. I also did some research on mitochondrial dysfunction as my smart neurologist believes that they’ll eventually discover that is the underlying cause of post viral neuropathy.

I’m looking into glutamine right now but am not on it at this point.

All the best! Please research these and consult a doc or medically trained naturopath!

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Thanks for taking the time to reply. I’ve already been taking some of the same supplements. The others I’ve looked up and look like some may be helpful for me. Of course I will consult with my doctor about anything I add to my regimen. I have been looking for a medically trained naturopath. Seems harder then I thought it would be. Wishing you continued good health.

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