Anyone had a problem with neuropathy after receiving the vaccine?
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
Interested in more discussions like this? Go to the Neuropathy Support Group.
Yes I was diagnosed when I started taking prednisone for the inflammation from the Lupus. I had the neuropathy before I became a diabetic. I have nerve damage from the Lupus my neurologists told me.
I'm so sorry to hear that. I never heard of cardiac autonomic neuropathy. What are the symptoms? Do they think it's from the vaccine and all the boosters?
I did have the new/latest COVID 19 vaccine from Moderna a month ago and so far, cannot pinpoint any issues from that!
BTW, I have long standing CPS & chronic pain and trying non-traditional treatments! Started taking ARA 290 Peptide shots, which has not been approved by FDA and is for research purposes only (has gone thru Phase 2 clinical trials), not recommended for Animal or Human consumption! Will be taking for 28 days once/day and have completed 3 days!
Following is my history :
A; Summary:
1. Diagnosed with Paroxysmal atrial fibrillation (AFIB) in May 2017
2. Incidence of an Ischemic CVA (Stroke) to left Thalamus region on July 19, 2019.
Continue to have persistent / all day chronic numbness, burning, uncomfortable cold, prickling, tingling, pins-and-needles, stabbing, shooting, lancinating, tight, swollen, and squeezing sensations that are distressing.
Often this condition makes it hard to bear severe pain and impacts my mobility and quality of life!
Pain level on a scale of 1 (low) to 10 (high) is @ 7 constantly and goes up to between 8 & 9.
Have been unable to diagnose, pinpoint the reason, a trigger or cause of the condition, despite consultations with numerous doctors, specialists, medications etc.
3. Performed TEE/Cardioversion on Nov 9th, 2022, for AFIB.
4. Diagnosed with High Grade B Cell Lymphoma during March 2023.
2 Cycles of RCHOP Chemotherapy: April – May 2023.
20 sessions of Radiation Oncology sessions (total of 36 GY): June – July 17, 2023
Chemo induced Neuropathy (CIPN) exacerbating previous Neuropathy due to CVA.
5. PETSCANs, latest on July 5, 2024 - results NO Pathologic Activity within abdomen, pelvis, or the neck soft tissues. Clear & no Lymphoma starting PETSCANs of May 23, August 25, December 26, 2023
6. Current Prescription Medications.
• Dabigatran (Generic Pradaxa) 150 mg, twice a day
• Spironolactone 25 mg, twice a day
• Atorvastatin 10 mg, one a day
7. Other treatments tried to date,
for Neuropathy - Doctors, diagnostic tests, medications, and other treatments, etc.
Over the last 4+ years (since my stroke), have seen several Neurologists (5), Pain Management doctors (6), Spine Neurosurgeon (1) and Chiropractors (2).
Have also continued to consult with my PCP, Cardiologists (5), Nephrologist (1), Pulmonologist (1), Integrative / functional medicine doctor (1)
Have also tried several Physical & Occupational therapists, Acupuncture (including Moxibustion), Yoga, Medical Massage etc.
Several Diagnostic Tests: X-rays, CT scans, PET Scans, MRIs of Brain, Lumbar & Cervical spines, EMG/Electrodiagnostic studies – Sensory Nerve & Motor Nerve Conduction tests etc.
Tried Several Medications: Gabapentin, Pregabalin, Naltrexone, BUTRONS (Opioid patch), Duloxetine, CBD oils & creams, medical marijuana etc.
8. Other treatments tried to date,
for Neuropathy - gadgets, creams, lotions, and home treatments, etc.
Tens 7 Pro therapy electrical impulses to reduce the pain signals going to the spinal cord and brain, which may help relieve pain and relax muscles. Also stimulate the production of endorphins, which are the body's natural painkillers.
Homedics Therapist Select Prime: High-intensity percussion massager to provide fast and effective self-myofascial release.
Voltaren Arthritis Pain Gel, a topical nonsteroidal anti-inflammatory (NSAID) gel for my arthritis pain. Blue-Emu Maximum Pain Relief Cream for Arthritis, Muscles & Joints, for my arthritis, muscles, and joints.
Ancient minerals magnesium lotion, which delivers magnesium, while encouraging healthy skin tissue and protecting the most sensitive of skin.
Medical marijuana gummies, creams
CBD Creams.
Lion’s mane mushroom extract
No mine they believe is autoimmune
It's so easy to blame the vaccine when most of the time it is merely a coincidence. It was big news when during clinical trials for Moderna a small percentage of participants developed Bell's Palsy. People got all excited. But it turned out that percentage was the same percentage as the general population developing Bell's. In other words, they were going to develop it anyways. Sometimes it's impossible to determine what exactly is the cause, and I believe that while the vaccines can have adverse side effects they are getting blamed with medical issues that were going to develop regardless.
I've had PN for years now. I have the numbness and tingling but zero pain. I had Covid when it first came out and I had the Moderna vaccine. I’ve been taking the Moderna boosters ever since and it’s been over two years since I had Covid. I have zero pain and never had any pain. I have balance issues but I still walk without a cain. I’m a 85 year old male.
Moderna had a negative effect x2 on my PN. I’m 62 and won’t do another Covid shot.
No I am not diabetic
I am 72 and was diagnosed with CIDP after my third Pfizer COVID-19 vaccine. There is very little information on the link between CIDP and the COVID-19 vaccine but I'm inclined to think they are related, I've had iViG and heavy doses of methylprednisone(steroids) and neither have helped. I am getting weaker and easily fatigued. Does anyone know of any other treatments that might help me? I am looking at VyVgart Hytrulo as a possibility, but it is $17,00 per dose.
Thank you,
John
So Sorry. What is CIPD? I never heard of it.
Best of luck to you. Think positive. Something will help eventually.