What Covid treatments can transplant patients take?

@hello1234 According to the CDC there are 3 available antivirals which can be administered for at-risk patients, as well as the possible use of Convalescent Plasma.

https://www.cdc.gov/coronavirus/2019-ncov/your-health/treatments-for-severe-illness.html
Of course, being a transplant patient…you know the drill. Your team will be the first call you make with the confirmation of a positive covid test. ☺️

Hi @loribmt 😊
I always love hearing from you!! Thank you so much for the link to the current CDC information.... I really appreciate it!
If anyone has any experience with Remdesivir or the plasma, please share. (I know Paxloid is not really an option for us).
I like to be armed with knowledge before I need it just in case I come in contact with covid.
When I got covid last time, I was sent to my local hospital for a monoclonal antibodies infusion that worked like a miracle. So I mentally want a new plan in my head should I run into covid again. Of course calling my nurse coordinator will be first on my list. 😊

@hello1234 I had Covid in November and was given Remdesivir, IV infusion for 3 consecutive days. I had no negative reaction. I don’t know if my case would have been mild without it, but it was just like a bad cold and no long Covid symptoms. Was sick about a week. It took about an hour a day for the infusions, outpatient. This was right after they found the monoclonals to be of no help. Hope you don’t have to find out how it works!

Good morning @mollyv 😊
Thank you so much for sharing your Remdesivir experience! I was hoping to hear a successful story like your story! I also super appreciate knowing the details that Remdesivir is a three day outpatient IV infusion and that you had no side effects.
Your experience with Remdesivir has calmed my nerves a bit. I definitely don't want covid again and I am mega careful. But I was incredibly careful before and got it. I live in a resort town in Florida so even with very strong precautions, it's easy to accidentally come in contact with someone sick. I am thrilled to hear about your Remdesivir story. Thank you so much for jumping into the conversation @mollyv 😊

@hello1234 I live in a town in Florida in the winter to escape the harsh Minnesota winters! So far so good here. I feel very free here. We’ll pray that none of us get this disease and won’t need a remedy.

Amen.

I tested positive for Covid two weeks ago. The first recommendation was to get the 3 days hour long infusions. I was also given the choice of taking 5 days of Molnupiravir. Because going to the cities for 3 days, an hour away, was pretty impossible while being a caregiver for my husband who has dementia, I chose taking the oral medication. I was doing pretty well, until I had to call an ambulance for my husband who also got Covid. The following days were stressful and having to run to the hospital daily me down and I have a constant nasal drip in the back of my throat along with a nasty cough.

Hi @cmael
It is wonderful to hear from you.
I am so sorry to hear that you and your husband had to go through such a terrible time with covid! I am sure you were you very frightened when you had covid and then you had to call an ambulance for your husband. What a horrible experience for you both. It sounds like you are both improving, but you are still not fully recovered after two weeks.
I am surprised to learn that your local hospital could not provide the Remdesivir infusions?.
Is Remdesivir the type of treatment that is only available to us through the transplant centers?
It sounds like the oral Molnivipiravir was helpful as a second choice.
Sending a BIG HUG 🥰 and I am hopeful that you are both able to continue to rest and recover now that hubby is back home.
PS. My BK virus is now negative in the blood!

I have done my normal vaxes and when I was in the hospital for my regular consultations etc. was also given a special vax for immune compromised persons. It is done on a different part of the body- two shots to be specific.
I am not sure about the efficacy of the Covid vax since the post liver transplant patients do not have any type of immune system in their body due to the medications they have to take. This is done very specifically so, the body does not reject the transplanted organ. For some obscure reason the Hospital somehow push the vax etc. to the patients for no reason.
The safest way to stay out of trouble like catching a cold or cough, just stay out of crowded places and wash hands every time you get a chance. Keep some hand cleaner handy.
That is life for the Post liver transplant patient.

Hi @jamesduaiswamy 😊
It's nice to meet you! The "two shot" monoclonal antibodies used for high risk immune suppressed patients is called Evusheld. Unfortunately, due to variant mutations, the protection is no longer effective. So now we go to Plan B.
You are correct that our best defense against all respiratory viruses is to wear a mask, wash hands, stay out of crowds, etc.
But it's also comforting to know that a few of our Mayo Connect friends have shared successful treatment outcomes that helped to keep their covid experience from escalating into something worse.
When did you receive your liver transplant? How are you feeling?