COPD and Emphysema: Want to connect with others

Posted by redsox @redsox, May 29, 2018

Confused by PFT so much to absorb ! What are the treatments for Mild, Moderate and Severe .

Thank you for the insight Colleen young you just saved me $6,000 dollars I love you from mike mller

REPLY

There are some thoughts that need to be said in this thread, in my opinion. I have severe COPD (Emphysema), Alpha-1 carrier and am a patient at Mayo, Rochester. My Care team is Dr Niven and me and my wife. I mention that because if you look at your Dr as one provider alone you are making a huge mistake, after all Mayo is staffed and run on a team concept. It is a two way street, not one way. Your friends and family and fellow patients and COPD Foundation can also aid in your mental aspect of this condition…. how you handle it mentally is just as important as the physical aspects. Another thing to keep in mind is clinical trials, after all discovering new treatments and cures start with data and research.

REPLY

Let's 🙏 for an end for copd

REPLY
@waterboy

There are some thoughts that need to be said in this thread, in my opinion. I have severe COPD (Emphysema), Alpha-1 carrier and am a patient at Mayo, Rochester. My Care team is Dr Niven and me and my wife. I mention that because if you look at your Dr as one provider alone you are making a huge mistake, after all Mayo is staffed and run on a team concept. It is a two way street, not one way. Your friends and family and fellow patients and COPD Foundation can also aid in your mental aspect of this condition…. how you handle it mentally is just as important as the physical aspects. Another thing to keep in mind is clinical trials, after all discovering new treatments and cures start with data and research.

Jump to this post

Got it thank you

REPLY

I hadn't had bronchitis for over 10 years. In July I got bronchitis and I didn't go to the doctor for it and once I did my doctor thought I had pneumonia. He had me go to the hospital from his office. Once they found out I smoked they immediately determined I had COPD even though my lungs were perfectly clear in the X-ray. I made an appointment with a Pulmonologist to get their opinion but I'm concerned that I was mis-diagnosed simply because I smoke. Does that happen very often?

REPLY
@mamawnebel

I hadn't had bronchitis for over 10 years. In July I got bronchitis and I didn't go to the doctor for it and once I did my doctor thought I had pneumonia. He had me go to the hospital from his office. Once they found out I smoked they immediately determined I had COPD even though my lungs were perfectly clear in the X-ray. I made an appointment with a Pulmonologist to get their opinion but I'm concerned that I was mis-diagnosed simply because I smoke. Does that happen very often?

Jump to this post

It doesn’t hurt to get the diagnosis confirmed or ruled out by a pulmonologist in my opinion.

REPLY
@colleenyoung

It doesn’t hurt to get the diagnosis confirmed or ruled out by a pulmonologist in my opinion.

Jump to this post

I agree, Colleen. Thank you for confirming my feelings.

REPLY
Please sign in or register to post a reply.