Learn how to use Mayo Clinic Connect
Request an Appointment
← Return to COPD and Emphysema: Want to connect with others
COPD and Emphysema: Want to connect with others
Where are my COPD people? Are you here?
Jump to this post
Hi @janrn1, you'll notice that I moved your message to an active discussion where you'll meet others living with COPD like @catcatanzaro60 @fracturedd @marczappa @bb729 @jgpolachek @mrbill @sews and more.
Jan, tell us more about you. How long have you been living with COPD? Are you currently on oxygen? What does life look like for you these days?
@janrn1– Good morning Jan. I also have COPD and emphysema caused by smoking. Unfortunately, I also have stage 4 lung cancer from it. I hear that you are feeling pretty lousy. I know that it takes a while for some bacteria to grow. Have any of your doctors suggested how you can feel better while you wait?
Been living with COPD for past 10 years. Last January ended up in ER unable to breath. Spent few days in hospital. After back home for a couple days and back to ER, then ICU. Found out I had Pneumonia and flu along with the COPD. Make a long story short I was between rehab and hospital several times. Didn't get back home for 3 1/2 months. On oxygen when I came home. We went for a ride up in the NY dutch country (about 20 miles) I took my portable tank with me, but did not wear it. For four hours my oximeter reading stayed between 92 – 97. Used oxygen off and on back home and at night. O2 readings still good. Finally a few weeks ago I did not use any oxygen and reading between 92 – 98. I guess for someone with severe COPD I can count my blessings. I don't know if they tested me for COVID, but I would like to find out. I know when I woke up in ICU i was intubated and my hands tied down. Tried to communicate with wife and three daughters by pointing to letters on special card. Not a chance.
I just am grateful to be home and improving. Oh ya, throw in two plural effusions. Each time removing a large family soda bottle of liquid. Then toss in a GI bleed and 4 bags of blood because I was not getting food with prednisone. The had to go in and weld that leak shut. Time to stop complaining. Thought it might help others going thru similar issues.
Create an account to connect with other patients and caregivers like you.Ask questions, get answers, and give and get support.Also follow blogs from Mayo Clinic experts.
Already have an account? Sign In