Is stem cell treatment (from bone marrow) a viable option for end stage COPD.
Interested in more discussions like this? Go to the COPD: Chronic obstructive pulmonary disease group.
I had stem cells from bone marrow in my knees 3 years ago and swear it helped me tremendously…within about 30-60 days there was a noticable difference and as long as I keep on the bike 10 minutes a day to keep the blood flowing thru them, I can walk easily with little pain.
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@cchristoph That is great, pain free is good. I just want to mention that stem cell therapy for knees and lungs are two very different things. There are a number of good proven FDA stem cell therapies available for different medical conditions. Unfortunately, lungs are much more complicated.
@justapril– Hello and welcome to Connect. I'm sorry that I missed your original question. I do not monitor the group that you first posted on. I know that it can be confusing because there are so many groups on Connect. We try to help so many people!
I have had NSCLC for the past 21+ years. What kind of lung cancer do you have? Will you tell me more about your lung cancer history? What treatments have you had?
Having a constant nose drip must be extremely taxing. Have you consulted with an EMT? If your nose is irritated than rubbing some aloe on it is a good idea or even white Vaseline.
Hello Merry@merpreb I am happy to hear you are still here fighting 21 yrs later. I was diagnosed with NSCLC squamous cell stage 3 in July of 2017. Went through 7 weeks of radiation 5 days a week and Chemo weekly. After the radiation and chemo I was put on Imfinzi Immunotherapy. 6 months into the treatment I developed a reaction and had to stop treatments. On my next scan I was told I am in remission that was in August 2018. I had mild COPD diagnosed in 2014 right before quitting smoking. Since stopping treatments my breathing has gotten much worse. I had a spell where I stopped breathing and was rushed to the hospital where they diagnosed severe COPD, a-fib and Congestive heart failure. I was given Xarelto 20 mg for the a-fib and 200 mg Amiodarone HCL 4 times a day which the Cardiologist stopped after 2 weeks as it was making me ill. Also I read it could cause lung cancer. I have been having some days now when the oxygen does not cause my nose to drip constantly. I switched my cannulas to Salter Labs 16000 series both 4ft and 7 feet and it has been amazingly helpful. As I stated in my last post I am really looking for information on Umbilical cord stem cell therapies. I am still doing as much research as I can as we raise money for me to have the procedures God Willing!!! Any information to that end would be greatly appreciated.
@justapril– Good morning. I'm so sorry that you are having so many problems. I don't think that we can count on the old adage of groups of three anymore! You have certainly had your fill. I know that Colleen sent you several links. I found this one. However It might not have the answers that you need.
You might also look to Europe to see what they have, or Israel.
I can feel your frustrations and it's horrible at a time when all you want to is to feel good and be healthy. I'm sorry for all of us . So many people have joined the "get rich quick scheme." It doesn't make for a very helpful and beneficial health system.
PS- Please come jin us at the Lung Cancer group! I'm so glad that you are in remission!
It's a scam.
My talk with the clinic a year or so ago gave me that impression. I wonder if Mayo has new information.
Hi @marczappa, you may have noticed I moved your post to this existing Stem Cell and COPD discussion. I did this so all information on this topic would be in one place. Simply click VIEW & REPLY in your email notification to get to your post.
As for stem cell research at Mayo Clinic, any new information would be found at this link: http://mayocl.in/2ieWfYH
So are there new trials in the works? I think I was put on a list when I spoke to your consultant last year.
I have been traveling back and forth from Oregon to the Mayo Clinic in Jacksonville for a lung transplant evaluation, spent 3 weeks there 2 weeks ago and am returning tomorrow for another week of tests. With all the tests and consultations with the pulmonary lung transplant team of 20 the only mention of stem cells for COPD was that it is being researched and is some time off in the future. Current wait list for lungs is 6 months to 18 months. I suspect that I'll have a better chance with a TX over stem cells.
Those that are advertising on TV are one group that has clinics around the country, several States Attorneys have filed suit against them and several people have past away after doing there treatments and spending over $10,000.00 for something that does not work. It is a scam.
@djallan – Good morning and welcome to Mayo Connect. My son lives in Portland. I love Oregon! Just a gorgeous gorgeous state. You have really hung in there will all of your travels for testing. That's a whole lot of tension with what you are going through.
I think that you might enjoy the Transplant Group. https://connect.mayoclinic.org/group/transplants/
I bet that this is terrifying for you. How are you doing handling this?
Thank you, we love living in Oregon!
Before my first trip 3 week ago I was scared to death, traveling 2400 mile with a power wheelchair and a portable oxygen concentrator and not knowing that much about the evaluation process or the Mayo Clinic. It was the most amazing experience I have ever had. I'm in the Portland airport waiting on my flight and looking forward to the trip.
Hopefully l will make it to selection this trip and onto the waitlist.
@djallan– Best of luck. I've been in Portland Airport many times. If you can wend your way around that you have the rest in the palm of your hand! I hope that you get back to us and let us know all about Mayo and the tests and results. You are one brave lady.
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