COPD and stem cell treatment

Posted by outback53 @outback53, Dec 26, 2016

Is stem cell treatment (from bone marrow) a viable option for end stage COPD.

@djallan

It's a scam.

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My talk with the clinic a year or so ago gave me that impression. I wonder if Mayo has new information.

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A friend called with incomplete information. She said she heard on TV that new stem Cell trials for COPD were in the works.
Does Mayo clinic know what she is referring to ?
Has there been new research that is promising ?

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Hi @marczappa, you may have noticed I moved your post to this existing Stem Cell and COPD discussion. I did this so all information on this topic would be in one place. Simply click VIEW & REPLY in your email notification to get to your post.

As for stem cell research at Mayo Clinic, any new information would be found at this link: http://mayocl.in/2ieWfYH

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Thank you.
So are there new trials in the works? I think I was put on a list when I spoke to your consultant last year.

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@marczappa

My talk with the clinic a year or so ago gave me that impression. I wonder if Mayo has new information.

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I have been traveling back and forth from Oregon to the Mayo Clinic in Jacksonville for a lung transplant evaluation, spent 3 weeks there 2 weeks ago and am returning tomorrow for another week of tests. With all the tests and consultations with the pulmonary lung transplant team of 20 the only mention of stem cells for COPD was that it is being researched and is some time off in the future. Current wait list for lungs is 6 months to 18 months. I suspect that I'll have a better chance with a TX over stem cells.
Those that are advertising on TV are one group that has clinics around the country, several States Attorneys have filed suit against them and several people have past away after doing there treatments and spending over $10,000.00 for something that does not work. It is a scam.

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@djallan – Good morning and welcome to Mayo Connect. My son lives in Portland. I love Oregon! Just a gorgeous gorgeous state. You have really hung in there will all of your travels for testing. That's a whole lot of tension with what you are going through.
I think that you might enjoy the Transplant Group. https://connect.mayoclinic.org/group/transplants/
I bet that this is terrifying for you. How are you doing handling this?

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@merpreb

@djallan – Good morning and welcome to Mayo Connect. My son lives in Portland. I love Oregon! Just a gorgeous gorgeous state. You have really hung in there will all of your travels for testing. That's a whole lot of tension with what you are going through.
I think that you might enjoy the Transplant Group. https://connect.mayoclinic.org/group/transplants/
I bet that this is terrifying for you. How are you doing handling this?

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Thank you, we love living in Oregon!
Before my first trip 3 week ago I was scared to death, traveling 2400 mile with a power wheelchair and a portable oxygen concentrator and not knowing that much about the evaluation process or the Mayo Clinic. It was the most amazing experience I have ever had. I'm in the Portland airport waiting on my flight and looking forward to the trip.
Hopefully l will make it to selection this trip and onto the waitlist.

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@djallan– Best of luck. I've been in Portland Airport many times. If you can wend your way around that you have the rest in the palm of your hand! I hope that you get back to us and let us know all about Mayo and the tests and results. You are one brave lady.

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@ethanmcconkey

Hi @marczappa, you may have noticed I moved your post to this existing Stem Cell and COPD discussion. I did this so all information on this topic would be in one place. Simply click VIEW & REPLY in your email notification to get to your post.

As for stem cell research at Mayo Clinic, any new information would be found at this link: http://mayocl.in/2ieWfYH

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So are there new trials in the works? I think I was put on a list when I spoke to your consultant last year.

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@marczappa

So are there new trials in the works? I think I was put on a list when I spoke to your consultant last year.

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Hi @marczappa, I'm glad to hear that you put your name on the list for Mayo Clinic's Regenerative Medicine. If you have not received a call, then it likely means that current research is not yet recruiting human subjects.

For anyone else interested in finding legitimate information about stem cell therapy for lung conditions and available clinical trials, you can call Mayo Clinic's Regenerative Medicine free telephone consult service. When you call, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of our experts.

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Good afternoon
How do I find out if my name is in the data base?
I just called and was told you are closed till Monday.
Thanks

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@colleenyoung

Hi @marczappa, I'm glad to hear that you put your name on the list for Mayo Clinic's Regenerative Medicine. If you have not received a call, then it likely means that current research is not yet recruiting human subjects.

For anyone else interested in finding legitimate information about stem cell therapy for lung conditions and available clinical trials, you can call Mayo Clinic's Regenerative Medicine free telephone consult service. When you call, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere, and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of our experts.

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This is one of the articles I came across. Are these guys legitimate? https://www.thelunghealthinstitute.com/blog/marijuana-and-copd-medical-professionals-are-still-unsure. Are these claims science based? Another alternative treatment we offer is cellular therapy. Cellular therapy is a minimally invasive procedure that uses concentrated platelets and cells from your body to target lung disease. These platelets release healing properties that, when combined with proteins, growth factors and other helpful cells, may promote healing in damaged tissue and reduce inflammation in your lungs.

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@marczappa

This is one of the articles I came across. Are these guys legitimate? https://www.thelunghealthinstitute.com/blog/marijuana-and-copd-medical-professionals-are-still-unsure. Are these claims science based? Another alternative treatment we offer is cellular therapy. Cellular therapy is a minimally invasive procedure that uses concentrated platelets and cells from your body to target lung disease. These platelets release healing properties that, when combined with proteins, growth factors and other helpful cells, may promote healing in damaged tissue and reduce inflammation in your lungs.

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No they are not. It's a scam.

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@marczappa

This is one of the articles I came across. Are these guys legitimate? https://www.thelunghealthinstitute.com/blog/marijuana-and-copd-medical-professionals-are-still-unsure. Are these claims science based? Another alternative treatment we offer is cellular therapy. Cellular therapy is a minimally invasive procedure that uses concentrated platelets and cells from your body to target lung disease. These platelets release healing properties that, when combined with proteins, growth factors and other helpful cells, may promote healing in damaged tissue and reduce inflammation in your lungs.

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@marczappa, here is an article by Consumer Reports on the Lung Institute
https://www.consumerreports.org/medical-treatments-procedures/trouble-with-stem-cell-therapy/

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Thank you Colleen.
when I spoke last year to Mayo Clinic I was told there is a list for when real studies are done. How to I check How do I find out if my name is in the data base and if I was put on it ?

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