Comparison of Spinal Cord Stimulators from Boston Sci., Nevro

Posted by elsa @elsa, Jul 26, 2020

I've lived with severe chronic pain in my legs and lumbar spine for the past ten years. Was on opiates for 8 years until I attended & graduated from Mayo's 3-week Pain Rehab Program in 2018. That program helped immensely and I got off 5 meds I used to take, including morphine and hydrocodone. Unfortunately, in the last year my spine health has worsened. I now have a toxic mix of scar tissue (from a dural tear during a microdiscectomy), stenosis at multiple levels, bulging discs and scoliosis. I am now scheduled to do a trial of Boston Scientific's "Wave Writer" SCS on August 10, 2020. Unfortunately my doctor did not guide me in the selection of this manufacturer/model. I did my own research. I considered doing trials of Nevro's HF-10 and Boston Scientific's Wave Writer. Finally decided on the Wave Writer.
I'm posting here to ask for people's knowledge of and/or experience with these two SCS's. Please reply if you can share any information. Thanks!

Interested in more discussions like this? Go to the Spine Health Support Group.

Profile picture for slavmauve @slavmauve

Glen, I had my Nevro implanted in November 2021 and have experienced the same situation as you have. They have tried multiple programs on me to no avail. I have met with the Nevro reps on multiple occasions to try and find the correct setting to get some relief. Like you, my trial worked wonderfully but with the permanent implant only a very slight relief. I am determined to make this work as I believe it will help bring relief to my legs and lower back. They tell me not to give up or be frustrated as they have so many programs to work with so I will keep at it.

Jump to this post

The reps kept saying dont over stimulate. Didnt make sense cause I felt that I was never stimulated. I figure out that there not one setting for all. You have to set a setting for 2 to 3 weeks to give your body time to adjust and for you to feel any improvement. It like the game hot or cold. If the setting not helping you are cold. If it feels better you are getting warm. If level 1 and 5 lites are good for me it might be worst for you. Just keep changing and play the game you get hot before you know it

REPLY
Profile picture for glenjunderwood @glenjunderwood

My name is Glen and i have had the Nevro HF10 spinal stimulator implanted since Sept 1, 2021 and the company rep hasn't been able to dial it in on my terrible lower back pain yet. I have complete confidence in this unit because the temporary one that they inserted worked unbelievably well. It's been 6 months and counting with no relief thus far. I'm hoping to reach out and hear from anyone out there about their experiences with this Nevro unit. Please help if you can! Thank You!

Jump to this post

You describe my experience perfectly. But I will not give up either. Let’s face it. Its the last best hope. It has definitely helped because I have the energy, ability, and desire to get up and DO! I did not have that anymore before placement. It has at least provided that baseline of relief that allows me to function through the remaining pain.

REPLY
Profile picture for rangerlester @rangerlester

The reps kept saying dont over stimulate. Didnt make sense cause I felt that I was never stimulated. I figure out that there not one setting for all. You have to set a setting for 2 to 3 weeks to give your body time to adjust and for you to feel any improvement. It like the game hot or cold. If the setting not helping you are cold. If it feels better you are getting warm. If level 1 and 5 lites are good for me it might be worst for you. Just keep changing and play the game you get hot before you know it

Jump to this post

I had it removed I could not get the adjustment made by the Medtronics support team to make changes; they were never available.

REPLY
Profile picture for gcranor @gcranor

I had it removed I could not get the adjustment made by the Medtronics support team to make changes; they were never available.

Jump to this post

So you have to wait for them to make changes? You can’t make changes on your own?
Also did you get the chargeable Medtronic battery and could you feel it in you after a couple of weeks of getting use to it? And can you see it in you?

REPLY
Profile picture for glenjunderwood @glenjunderwood

My name is Glen and i have had the Nevro HF10 spinal stimulator implanted since Sept 1, 2021 and the company rep hasn't been able to dial it in on my terrible lower back pain yet. I have complete confidence in this unit because the temporary one that they inserted worked unbelievably well. It's been 6 months and counting with no relief thus far. I'm hoping to reach out and hear from anyone out there about their experiences with this Nevro unit. Please help if you can! Thank You!

Jump to this post

Have been experiencing ongoing back pain (primary lower back) and mobility issue even though I had Laminectomy and Spinal Fusion surgery 15 months ago. My neurosurgeon who performed the surgery said that nothing looks out of order based upon a recent MRI and CT Scan. I went to get another opinion from a spine specialist who upon having my x-rays said that the surgery did not take. Specifically he said that I have screws that are coming loose in the S-1 / L5 area and also some kind of spacer needs to be replaced at lower end of my spine. Plus there are two screws loose at the T-10 vertebrae.

Originally this specialist told me that one of the options would be an ALIB or something like that where they enter through your navel and do a minimally evasive procedure. But today he said that he thinks that there would be a less than 50% chance that I would have any appreciable change in either my pain and / or mobility condition. He said that the MRI showed that there are no pinched nerve as that may be contributing to my pain.

So, I am now scheduled to see another specialist who would do some kind of spinal stimulator procedure which would be targeted to help relieve my pain. So with the long lead up, has anybody has any experience with this kind of procedure and / or application, good or bad ? The online research said that there have been some good results.

I also am to see a neurologist about my mobility issues. It is like my brain is telling my legs to move but they aren’t getting the message and have extreme difficulty getting around, although I ditched the wheel chair last year and the walker earlier this year and have been on a cane since then but very unstable.

Any thoughts or comments about your personal experience would be appreciated.

Note: I also have peripheral neuropathy that certainly impacts my mobility but was told that in having my Laminectomy and Spinal Fusion surgery it might improve my peripheral neuropathy. It hasn’t.

REPLY
Profile picture for covenantdga @covenantdga

Have been experiencing ongoing back pain (primary lower back) and mobility issue even though I had Laminectomy and Spinal Fusion surgery 15 months ago. My neurosurgeon who performed the surgery said that nothing looks out of order based upon a recent MRI and CT Scan. I went to get another opinion from a spine specialist who upon having my x-rays said that the surgery did not take. Specifically he said that I have screws that are coming loose in the S-1 / L5 area and also some kind of spacer needs to be replaced at lower end of my spine. Plus there are two screws loose at the T-10 vertebrae.

Originally this specialist told me that one of the options would be an ALIB or something like that where they enter through your navel and do a minimally evasive procedure. But today he said that he thinks that there would be a less than 50% chance that I would have any appreciable change in either my pain and / or mobility condition. He said that the MRI showed that there are no pinched nerve as that may be contributing to my pain.

So, I am now scheduled to see another specialist who would do some kind of spinal stimulator procedure which would be targeted to help relieve my pain. So with the long lead up, has anybody has any experience with this kind of procedure and / or application, good or bad ? The online research said that there have been some good results.

I also am to see a neurologist about my mobility issues. It is like my brain is telling my legs to move but they aren’t getting the message and have extreme difficulty getting around, although I ditched the wheel chair last year and the walker earlier this year and have been on a cane since then but very unstable.

Any thoughts or comments about your personal experience would be appreciated.

Note: I also have peripheral neuropathy that certainly impacts my mobility but was told that in having my Laminectomy and Spinal Fusion surgery it might improve my peripheral neuropathy. It hasn’t.

Jump to this post

Please go to the discussion on Spinal Cord Stimulator’s elsewhere. If you do get one, work closely with their techs and follow instructions re how long to leave changes in place.

REPLY
Profile picture for bunnybear @bunnybear

Please go to the discussion on Spinal Cord Stimulator’s elsewhere. If you do get one, work closely with their techs and follow instructions re how long to leave changes in place.

Jump to this post

Thanks for your comments !

REPLY
Profile picture for covenantdga @covenantdga

Have been experiencing ongoing back pain (primary lower back) and mobility issue even though I had Laminectomy and Spinal Fusion surgery 15 months ago. My neurosurgeon who performed the surgery said that nothing looks out of order based upon a recent MRI and CT Scan. I went to get another opinion from a spine specialist who upon having my x-rays said that the surgery did not take. Specifically he said that I have screws that are coming loose in the S-1 / L5 area and also some kind of spacer needs to be replaced at lower end of my spine. Plus there are two screws loose at the T-10 vertebrae.

Originally this specialist told me that one of the options would be an ALIB or something like that where they enter through your navel and do a minimally evasive procedure. But today he said that he thinks that there would be a less than 50% chance that I would have any appreciable change in either my pain and / or mobility condition. He said that the MRI showed that there are no pinched nerve as that may be contributing to my pain.

So, I am now scheduled to see another specialist who would do some kind of spinal stimulator procedure which would be targeted to help relieve my pain. So with the long lead up, has anybody has any experience with this kind of procedure and / or application, good or bad ? The online research said that there have been some good results.

I also am to see a neurologist about my mobility issues. It is like my brain is telling my legs to move but they aren’t getting the message and have extreme difficulty getting around, although I ditched the wheel chair last year and the walker earlier this year and have been on a cane since then but very unstable.

Any thoughts or comments about your personal experience would be appreciated.

Note: I also have peripheral neuropathy that certainly impacts my mobility but was told that in having my Laminectomy and Spinal Fusion surgery it might improve my peripheral neuropathy. It hasn’t.

Jump to this post

Hello @covenantdga, you may notice I moved your discussion and combined it with an existing discussion titled, "How did you get relief with a spinal stimulator? Adjustments? -https://connect.mayoclinic.org/discussion/nevro-spinal-stimulator-patients"

I did this so you could read the experiences like members @rangerlester @bunnybear (who you have already met).

@covenantdga, did the specialist you were referred to say what kind of stimulator you were going to have? Many members start with a trial period before more permanent options are explored, is this what you will be having done as well?

REPLY
Profile picture for Justin McClanahan, Moderator @JustinMcClanahan

Hello @covenantdga, you may notice I moved your discussion and combined it with an existing discussion titled, "How did you get relief with a spinal stimulator? Adjustments? -https://connect.mayoclinic.org/discussion/nevro-spinal-stimulator-patients"

I did this so you could read the experiences like members @rangerlester @bunnybear (who you have already met).

@covenantdga, did the specialist you were referred to say what kind of stimulator you were going to have? Many members start with a trial period before more permanent options are explored, is this what you will be having done as well?

Jump to this post

Thanks !

REPLY
Profile picture for covenantdga @covenantdga

Have been experiencing ongoing back pain (primary lower back) and mobility issue even though I had Laminectomy and Spinal Fusion surgery 15 months ago. My neurosurgeon who performed the surgery said that nothing looks out of order based upon a recent MRI and CT Scan. I went to get another opinion from a spine specialist who upon having my x-rays said that the surgery did not take. Specifically he said that I have screws that are coming loose in the S-1 / L5 area and also some kind of spacer needs to be replaced at lower end of my spine. Plus there are two screws loose at the T-10 vertebrae.

Originally this specialist told me that one of the options would be an ALIB or something like that where they enter through your navel and do a minimally evasive procedure. But today he said that he thinks that there would be a less than 50% chance that I would have any appreciable change in either my pain and / or mobility condition. He said that the MRI showed that there are no pinched nerve as that may be contributing to my pain.

So, I am now scheduled to see another specialist who would do some kind of spinal stimulator procedure which would be targeted to help relieve my pain. So with the long lead up, has anybody has any experience with this kind of procedure and / or application, good or bad ? The online research said that there have been some good results.

I also am to see a neurologist about my mobility issues. It is like my brain is telling my legs to move but they aren’t getting the message and have extreme difficulty getting around, although I ditched the wheel chair last year and the walker earlier this year and have been on a cane since then but very unstable.

Any thoughts or comments about your personal experience would be appreciated.

Note: I also have peripheral neuropathy that certainly impacts my mobility but was told that in having my Laminectomy and Spinal Fusion surgery it might improve my peripheral neuropathy. It hasn’t.

Jump to this post

I do have an SCS and have had the same 2 surgeries as you. My fusion did resolve my spine slipping, so that's good, but did nothing for my damaged nerve root pain (as the Neurosurgeon told me it probably wouldn't, and he was right!).
My background: I still have the damaged nerve root pain from Lumbar to toes. HOWEVER, the SCS handles my back pain very well - just not the pain down my leg, nor the numbness nor the burning and of course, it cannot affect the weakness - just interrupts pain signals. Nothing really showed up on the last MRI I had, several years ago (Radiologist refuses to do MRI's to eval my brain tumor because I have 2 implants now, so haven't had a brain tumor update in 6 yrs, but it's OK anyway - and I did buy the MRI-Approved version!).
I tried 2 different SCS brands during my trial - and only 1 gave any relief down the back of my leg at all.
Both handled Lumbar constant achiness/pain. I tried Medtronic and Boston - and for me, the Boston was better. However, do be prepared for many weeks of adjustments by Techs before you achieve the best results. Due to programming background, they gave me code to do my own programming, and i was able to adjust it nightly until I got it to be the best it could be. I still do rely upon my SCS and use it 24x7. I also still require Meds for the burning feet and legs (it's like standing in a bon fire - all the time! Not even one breath without severe burning, achiness, and pain...in many years). But now I can walk without assistance! I do carry on a reduced, but mostly normal life. Stenosis is also an issue for me. And I can say, for me, it was worth the time, cost and small discomfort of the surgery. Definitely, even though it doesn't cover everything it was designed to cover and they told me it would cover.

I'll be more than happy to honestly answer any questions you may have. BUT I strongly recommend ONLY go with a Surgeon who's had many, many successful SCS's - as I belong to a few groups and have seen some terrible ones!
I would consider asking a Dr to review MRI results as to the screws, etc. That you do have constant pain that may be caused by them, and you want to know if that's correct - or if it's something else. Also, how lose are the screws? That may matter in the future!
Good luck.

REPLY
Please sign in or register to post a reply.