Comparison of Spinal Cord Stimulators from Boston Sci., Nevro
I've lived with severe chronic pain in my legs and lumbar spine for the past ten years. Was on opiates for 8 years until I attended & graduated from Mayo's 3-week Pain Rehab Program in 2018. That program helped immensely and I got off 5 meds I used to take, including morphine and hydrocodone. Unfortunately, in the last year my spine health has worsened. I now have a toxic mix of scar tissue (from a dural tear during a microdiscectomy), stenosis at multiple levels, bulging discs and scoliosis. I am now scheduled to do a trial of Boston Scientific's "Wave Writer" SCS on August 10, 2020. Unfortunately my doctor did not guide me in the selection of this manufacturer/model. I did my own research. I considered doing trials of Nevro's HF-10 and Boston Scientific's Wave Writer. Finally decided on the Wave Writer.
I'm posting here to ask for people's knowledge of and/or experience with these two SCS's. Please reply if you can share any information. Thanks!
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About 10 years ago, I had Calmare protocol administered by a pain management doctor (in staten Island, NY) and it did not alleviate my neuropathy condition. More recently, I had 25+ treatments with the RST Sanexas. This also did not work. Have improvements been made to the Calmare technology since then? I've had peripheral neuropathy in my feet for about 10 + years.
After 4 or 5 adjustments to increase the pump's output, I was feeling pretty good up. Even my wife noted that I seemed to have more pep in my step. Then, about 2 and a half weeks ago, the effect began to diminish. I went in for another adjustment about a week and a half ago, but it did not help, Even delivering a bolus has little to no effect. I am going back in today to get the pump refilled and have the pump and catheter checked to see if the meds are actually being delivered to where they are supposed to be. I am hoping it's just a matter of a larger dose increase. Other wise, I may have to go back under the knife to have something corrected.
Thank you for sharing your experience with the pain pump. I hope the larger dose will give you more pain relief. Please keep us informed. God bless.
Hello Colleen, Does Mayo offer the treatment scrambler Calmare? Thanks for all of your info.
Click the side power button. Then you can go up or down on the “P” (program) levels (takes 2 clicks to move up one number. You have to go through the higher numbers before it reverts back to the lower numbers.
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1 ReactionAn update on my pain pump refill/check. A new pain doctor that I had not seen before came in to do my pump refill. I asked him if he had gotten any of the messages I had sent/called in regarding having my pump checked for proper function since my pain level had suddenly increased. He was not aware of any such information. Go figure. Anyway, he did the dye test to see if the pump and associated hardware were actually delivering the meds to my soinal cord region. Yes, everything checked out ok. He said I was already at a higher level of meds than I was when my test was done! How is that possible. He didn't know. Said something about tolerance. Well, I spoke witha woman who has had a pump for over 25 years. So, end result of visit? Reduction in pump output, resulting in more pain as I am sitting he this morning. I will be forced to go back to tramadol. I have a couple of weeks' supply. After that, I don't know what I will do. Any suggestions from you subscribers out there. I had such high hopes for this pump. Now, I am feeling depressed, not knowing which way to turn.
Having had severe neuropathy for over 7 years, I can certainly empathize with you. Mine is due to a ski fall back in 2016. Hit my lower back and buttocks pretty hard. It's been a rollercoaster ride ever since. Along with back pain I have had sciatica and severe burning og the feet. I had it under control for about 3 years with meds and a spinal cord stimulator. Then, all the pain returned in 2021. Have seen more docs than I can keep track of. I had the morphine pain pump implanted back in April of this year. It worked well for about a week, and then began to lose its effectiveness. I am back on Tramadol (after being able to wean myself off it when the pain pimp was giving me decent relief). If they ever deny me access to this drug (and I only take 1 50 mg. tab 3 times a day), It will be interesting to see WHAT they do put me on.
Have you tried a spinal cord stimulator? You can do a trial to see if it gives you any pain relief.
Yes, I have a SCS in my back after the trial appeared to work. Regretably,, its not cutting it for me and at times seems to worsen the pain by overstimulating the nerves. the spinal doctor told me that the SCS is for pain only and will not mitigate the neuropathy symptoms (numbness, tingling etc). So, I usually have it turned off.
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1 ReactionI had my Nevro implanted in April. Still working with rep to get the best placement. It definitely helps. But so far, not complete coverage of pain. So the rep is combining settings snd I am trying that. I find it best to change to a new setting right at bedtime because new settings always have some pain at first that eventually fades. I sleep well regardless so that gets me through the adjustment phase so that I get a better read on what that setting offers.
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1 ReactionI have Nevro spinal implant and it's just not working as good as the trial did. I've had it about a year. I'm giving up. Just don't want to go through surgery to take it out. I pray someone gets relief from theirs. Prayers for all.
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