Chronic Digestive Disorders
I am suffering 7 years with chronic digestive disorders , that take me out every day and night . I have Chronic Gastritis, Esophagitis, Class B GERD , small Hiatal hernia , diverticulosis. The worse thing is , I deep wet beach what tastes like sewer water 2000-3000 x a day/ night . My gut can’t handle any kind of food . It just constantly churns and is so loud , non stop . I live on Ultra Pepto . I’ve tried everything under the sun , RX wise , holistic wise , diet and elimination wise . Had so many tests done ✅. Even did acupuncture and 3 sessions of hypnotherapy. 6 Gastro Drs , in 2 states . I’m not celiac and no h pylori . I Eat small and healthy when I can eat . No fast food , no caffeine , low sugar ( just fruit) low dairy . Tried Keto and Gluten free . I’m on waitlist for Mayo Clinic in Jacksonville 6 weeks now . I’m a medical mystery and it’s now getting to me emotionally. I can’t lead a normal life . So much I want to do and I’m always sick . No Dr. has helped yet . I pray daily for relief of symptoms. Even for a day or two of relief. I’m desperately seeking and tried everything they make for gut health on Amazon. Today I will start on antidepressant . I’m sick if I eat or don’t eat and have empty stomach. We rarely go out to lunch and never to dinner . Just cook at Home . My poor body is getting weary of this . 7 years taken away and counting .
Interested in more discussions like this? Go to the Digestive Health Support Group.
I sent private message not sure it went over , I don’t see where you can friend someone on here ?
My husband keeps wanting me to go out on the boat with him. I don't think I could handle the jostling of the boat. I told him to get his brother or sister to go.. but he says it just isn't the same without you. I am still very limited on things I can do. .. I have other body problems. I had a SI joint fusion about 6 weeks ago. So far I think it worked. It changed my walk a bit so I am dealing with sore muscles and still some pain in surgery area. My ribs are giving me problems from the open surgery in 2015, but my pain specialist says he has found a way to help me with that pain, but have to get past this SI joint fusion first. I have missed out on a lot of things.. especially since 2012. I missed Thanksgiving dinners because the thought of food was overwhelming. Not a lot of bending.. don't lift over 10 pounds. Guess how much my last granddaughter weighed at birth.. I picked her up anyway. With my husband scolding me. Sometimes the pain is worth it. 😄 I have wanted to play with my grands and missed on doing a lot with them. We have 4 grands.
Covid has really messed everyone's working systems up. The Mayo Clinic is no exception. My doctors in home town .. they try not to have their waiting rooms full. They are beginning to relax with it some. Even though I have been vaccinated I will wear a mask in public.
Back to you. Have you kept a journal? Write in it what happens after you eat.. how long it lasted.. how much you ate. Does anything make it worse.. anything make it better… how lousy you feel. Yes, how you feel mentally.. write it down. All of it plays an important part in what is going on with your body. Have a written outline of your journal and of what you want to discuss with the doctors when you do talk with them. Take notes. Have someone with you if possible. An extra set of ears are definitely a good idea. My husband is the note taker. They may want to know what medications you are taking.. so have that handy. Sometimes they ask about your family health history… mostly parents, siblings, and grandparents.
I pray all goes well and you can get back to a happy life.
I'm not sure if that is such a good idea, because I use FB to vent my frustrations on the political system. My friends are used to it, but I'm sure a lot of people would be offended. I'd rather use this forum about the health issues, and will welcome future posts from you.
I have a type of microscopic colitis, collagenous colitis. Some dr.s don’t believe in it. You have to ask your gastro if they believe in it.
When they do a regular colonoscopy the dr. Has to take several large biopsies to find it. The dr.s Can’t see it so they are just hoping to catch it in a sample they send the lab. Took me 11 years to get diagnosed. I hope you find out what’s going on soon.
Suffered many of your symptoms for years without help from experts. Finally went to a very knowledgeable naturopathic doctor who taught me where to begin with diet. I had been eating ‘healthy’ low fat meals of fresh fruits and raw or undercooked vegetables, and my stomach was in pain after every meal. She suggested a broad spectrum, live probiotic and a change in diet. Start with well-cooked root vegetables only. Eat small meals throughout the day. If meat, only dark meat, beginning with duck or lamb, then turkey, chicken. Red meat and white meat are much harder to digest. Fish, especially salmon, are more easily digested. No fresh veggies or fruit…only cooked fully. Add foods consciously, so you know how your body reacts. Nuts in moderation. Little to no sugar or caffeine. She suggested withholding dairy for a week or so to see if I felt better. Then try withholding gluten.
Change of diet helped me immediately. No drugs, just common sense. Her explanation was that aging digestive systems, especially women’s, cannot handle raw diets and that going back to the diets of our ancestors was the way to think about it. It has worked for me for 10 years. I am now 67. Eating smarter made all the difference. I eat consciously now and ‘cheat’ regularly, because I still love a good salad and fresh fruit. My stomach can tolerate cheating now, but Ialways feel better eating cooked veggies and dark meats. There are certain fruits I just can’t stomach. Melon and guava or papaya, blueberries in small quantities or other less acidic fruits are easier for me to digest. Good luck to you. Wish you all the best!
I love your post. I got help through a dietitian and it has made all the difference. The most profound part of your post is “eat consciously.” Thank you.
I don’t eat uncooked veggies , once in a while some celery ( not much ). I stay away from salads although I like them very much . I usually eat mango or a good apple if it’s fruit or cherrys if in season . I do like blueberries and strawberries 🍓 but don’t eat many of those . I’m low low dairy ( no milk of any kind for 7 years), even tried lactose free. I do not have Celiac they said , not do I have SIBO ( was tested a few times ), I have tried a Gluten free diet but no change . I just tried Keto but not for full 28 days , no change. I take a good prebiotic ( and have tried probiotics) along with everything else holistic they make for the gut and intestines. We eat lean meat and a lot of chicken breast and sometimes Salmon or other fish . I’ve done many elimination diets over the years . The amount of gas that my own body produces in one day/ and at night is what most people produce in a month !! It’s non stop 🛑 churning , and the deep constant belching is horrendous.
7 years of this . 5 Gastro Dr’s diff RX ‘s , sessions of hypnotherapy ( that didn’t work). Visaral Massage , Myan Massage , you name it . I’ve tried it . My diagnosis is always same , Gastritis, Esphogitis , Clas B GERD , small hiatal hernia , some IBS . It breaks my sleep as I belch over 3000 x a day and night . Comes out both ways too , mostly belching .
No caffeine since I was a teen ( I’ve had PVC flair ups all my life ), no sweets , I eat small and healthy. Just like my stomach cannot tolerate anything .
Still waiting on Mayo Clinic to call me back ( Jacksonville). I’m still on waitlist. Had last colonoscopy and endoscopy last June and many , many tests prior at Duke in NC . I live on Ultra Pepto. I’m now on antidepressant and have anxiety meds because of all this .
I’m 59 .. this has changed me and not for the better . Thanks for sharing your story and input . I appreciate it so much , Rosemary 😌
I'm practically in the same boat as you but you do much better with your diet than I do. I have so much gas and don't know if I have IBS or not since my gastro hasn't stated I did, but do get colon polyps, and I have AVM's in stomach and colon, and had a bunch taken care of on the right side of my colon through a colonoscopy and also taken care of through endoscopy the same day. Can't seem to lose weight after exercising twice a day and my eating habits haven't changed. I'm not a big eater, eat on a small plate. I'm at a loss what to do. I also was diagnosed over the years with gastritis, Gerd, etc. I'm at the point I want to give up. I drink lactaid even though I'm not lactose intolerant and also include unsweetened coconut milk in my diet.
I’m so sorry . Don’t give up . I know I feel like giving up a lot but I have two kids engaged and getting married in 2022 . I just got on antidepressant Wellbutrin XL ext release . I’m hoping it helps with the mental end of this . It’s so bad because you want to do everything and this stops you in your tracks ( for years ). I hate eating but I have to in order to live and I’m just as bad if I don’t eat .
I’m not losing weight either .. 7 years.
It’s crazy .
I hope you find the right treatment.. I know I pray daily for someone to help me fix this .
God Bless …
Thank you for your post……very helpful. Which probiotic did your Naturopath suggest?