@eppie I feel your pain and frustration, that’s why I joined this group. Everyone on here is amazing! They are all fighting something and taking time to offer advice and give support. I honesty never thought I’d be here. You said you have PFD, I just started physical therapy for that and had an awful test done for it (I think) I don’t think it’s going to come back as something I have (not as bad as yours) but maybe some form of it.
And about the pain! OMG!!! You tell the doctors your in pain, they can see it, and when you get pain meds they blame you! At least that’s what happened at my last hospital stay 2 months ago. I literally say to them “ yep, I’m a doctor hopping pain pill seeker who loves these invasive procedures just to get a “fix”, give me a break!” Hardly anything touches the pain when it’s really bad. I get so upset when they assume things instead of doing their job! We all have these problems and don’t need to be judged by someone who’s never experienced anything like any of us have. I will be talking with my GI doctor after my next 2 tests to see about “ alternative pain meds” and I will be trying alternative help with my issues. Try everything! Then when it doesn’t work I like to shove it in their face (the mean docs anyway) and say see!!! Ugh!
Your attitude is great and it’s hard to always stay positive. This is part of my life and I’ve accepted it, but I keep trying to find ways to feel better. And take my good days and enjoy them. This site has really helped me, especially since I’ve been having some dark days. When I find something that actually helps me I will gladly share, until then, it’s more tests and emotional support to get thru them. And any emotional support I can give I sure will, because this not fun. Good luck